Re: So, I'm starting the Mayo Protocol on Monday administered locally here at UW-Hospital...

[Guest guest]

Leo,

I use humor to help me with problems. I also actually like to explore some of my

darker feelings for meaning and purpose. I read a ton. I am continually updating

my perks of being sick list:

I'll share a few:

1) I have an automatic excuse to say " no " to anything I don't want to do anyway.

2) People give me an aura of nobility and bravery because I suffer.

3) I am very thin (which is so stylin')

4) I've lost almost all my social restraints (I mean what are you going to do to

me that's worse than what I'm going through?)

5)I have a lot of time to read, watch TV, or movies.

6) I have an unlimited supply of Norco (well not quite unlimited)

7) If I work at being cheerful all of the time, it will annoy enough people to

make it worth my while

8) I get to ride those little scooters around in stores (really fun)

9) I have a handicap parking tag (how cool is that!)

10) I sleep in late all the time.

I also keep a notebook and write down all the absurd things that happen while I

am in the hospital or weird things people say to me. If you tell me what you

like to read or watch, I could give you a list of books and DVDs to enjoy. I

used to be a English teacher and have and do read all the time. Wishing all good

things and good outcomes, Cheryl in ID

So, I'm starting the Mayo Protocol on Monday administered

locally here at UW-Hospital...

> I've read some of the blog posts (thanks so much for the addresses everyone)

and it's helped a bunch to know a bit more about what's coming my way. I now

have the tatoos on my chest for radiation therapy to be pointed at and I'm

actually just waiting to go in for my first treatment Monday morning. I'll be

doing 5FU chemo pills 2x a day (I think) and those will be starting Monday too.

Does anyone here have any suggestions for things I can do to keep my spirits

(and my energy level!) up for the 6 weeks I'll be doing this before exploratory

surgery to find out if it worked well?

>

> Love and light to you all,

>

> -leo

>

>

>

>

>

[Guest guest]

Leo,

I use humor to help me with problems. I also actually like to explore some of my

darker feelings for meaning and purpose. I read a ton. I am continually updating

my perks of being sick list:

I'll share a few:

1) I have an automatic excuse to say " no " to anything I don't want to do anyway.

2) People give me an aura of nobility and bravery because I suffer.

3) I am very thin (which is so stylin')

4) I've lost almost all my social restraints (I mean what are you going to do to

me that's worse than what I'm going through?)

5)I have a lot of time to read, watch TV, or movies.

6) I have an unlimited supply of Norco (well not quite unlimited)

7) If I work at being cheerful all of the time, it will annoy enough people to

make it worth my while

8) I get to ride those little scooters around in stores (really fun)

9) I have a handicap parking tag (how cool is that!)

10) I sleep in late all the time.

I also keep a notebook and write down all the absurd things that happen while I

am in the hospital or weird things people say to me. If you tell me what you

like to read or watch, I could give you a list of books and DVDs to enjoy. I

used to be a English teacher and have and do read all the time. Wishing all good

things and good outcomes, Cheryl in ID

So, I'm starting the Mayo Protocol on Monday administered

locally here at UW-Hospital...

> I've read some of the blog posts (thanks so much for the addresses everyone)

and it's helped a bunch to know a bit more about what's coming my way. I now

have the tatoos on my chest for radiation therapy to be pointed at and I'm

actually just waiting to go in for my first treatment Monday morning. I'll be

doing 5FU chemo pills 2x a day (I think) and those will be starting Monday too.

Does anyone here have any suggestions for things I can do to keep my spirits

(and my energy level!) up for the 6 weeks I'll be doing this before exploratory

surgery to find out if it worked well?

>

> Love and light to you all,

>

> -leo

>

>

>

>

>

[Guest guest]

So far, very skinny hasn’t hit me yet – darn.

=================

3) I am very thin (which is so stylin')

[Guest guest]

So far, very skinny hasn’t hit me yet – darn.

=================

3) I am very thin (which is so stylin')

[Guest guest]

Cheryl,

Hi! I loved your list! I'm a big/huge/gigantic proponent of the if you have

the choice between laugh and cry, always choose laugh theory and it sounds like

you've got a similar philosophy.

To add to the tv book recommendations, I'm a former librarian (I specialized in

YS, but I worked in all areas), so feel free to hit me up for good reads, too!

On my list:

1) I very rarely have to miss an episode of General Hospital or Grey's Anatomy

2) I can spend the day in bed without being called lazy or self indulgent

3) I've developed a highly-attuned morbid sense of humor

4) I've become pseudo-famous and have my own shelf at the pharmacy and the

pharmacists know me by name.

5) I'm no longer freaked out by germs. I mean, what are they going to do, give

me some incurable disease?

6) When I have to use a wheelchair I can freak people out by sitting indian

style. - Try it, it really throws people for some reason.

7) I'm now so thin that my doctors have ordered me to eat ice cream and cake and

french fries and anything else I can think of that will give me some calories.

8) I've discovered that trying to think of new acronyms for PSC takes up oodles

of time and can be quite entertaining. (Pretty Special Cronies, Pearlman, Sandi

Cure, Please Send Chocolate, etc.)

Sandi in VA

[Guest guest]

Cheryl,

Hi! I loved your list! I'm a big/huge/gigantic proponent of the if you have

the choice between laugh and cry, always choose laugh theory and it sounds like

you've got a similar philosophy.

To add to the tv book recommendations, I'm a former librarian (I specialized in

YS, but I worked in all areas), so feel free to hit me up for good reads, too!

On my list:

1) I very rarely have to miss an episode of General Hospital or Grey's Anatomy

2) I can spend the day in bed without being called lazy or self indulgent

3) I've developed a highly-attuned morbid sense of humor

4) I've become pseudo-famous and have my own shelf at the pharmacy and the

pharmacists know me by name.

5) I'm no longer freaked out by germs. I mean, what are they going to do, give

me some incurable disease?

6) When I have to use a wheelchair I can freak people out by sitting indian

style. - Try it, it really throws people for some reason.

7) I'm now so thin that my doctors have ordered me to eat ice cream and cake and

french fries and anything else I can think of that will give me some calories.

8) I've discovered that trying to think of new acronyms for PSC takes up oodles

of time and can be quite entertaining. (Pretty Special Cronies, Pearlman, Sandi

Cure, Please Send Chocolate, etc.)

Sandi in VA

[Guest guest]

Cheryl,

Hi! I loved your list! I'm a big/huge/gigantic proponent of the if you have

the choice between laugh and cry, always choose laugh theory and it sounds like

you've got a similar philosophy.

To add to the tv book recommendations, I'm a former librarian (I specialized in

YS, but I worked in all areas), so feel free to hit me up for good reads, too!

On my list:

1) I very rarely have to miss an episode of General Hospital or Grey's Anatomy

2) I can spend the day in bed without being called lazy or self indulgent

3) I've developed a highly-attuned morbid sense of humor

4) I've become pseudo-famous and have my own shelf at the pharmacy and the

pharmacists know me by name.

5) I'm no longer freaked out by germs. I mean, what are they going to do, give

me some incurable disease?

6) When I have to use a wheelchair I can freak people out by sitting indian

style. - Try it, it really throws people for some reason.

7) I'm now so thin that my doctors have ordered me to eat ice cream and cake and

french fries and anything else I can think of that will give me some calories.

8) I've discovered that trying to think of new acronyms for PSC takes up oodles

of time and can be quite entertaining. (Pretty Special Cronies, Pearlman, Sandi

Cure, Please Send Chocolate, etc.)

Sandi in VA

[Guest guest]

Leo,

Hi! Hope your day's going great! You asked about suggestions to help keep you

entertained/upbeat, etc. I know some other people have already suggested TV,

reading, etc. and I'd be happy to share recommendations with you, if you'd like

any. I'm a former librarian, so reading recommendations come pretty easily to

me.

Do you know if you'll have access to a computer? If so, sites like Hulu.com

offer a lot of free full-length television programs. Netflix allows you to

watch unlimited movies for free on your laptop if you're a member. If you feel

like uncovering some deep, dark secrets, you can go to

https://implicit.harvard.edu/implicit/demo/ and take some Implicit Association

Tests from Harvard (there's a bunch to choose from). If you have a Facebook

account, there's a bunch of games on there and people to chat with. If you

don't think you'll have computer access, there's always crossword books, word

searches, card games (if you're near a library, check out Card Games for Kids.

It says it's a kid's book, but it has a lot of great games for 1, 2, 3 and 4+

players). You could become a kid again and get yourself some MadLibs. And last

but not least, I know this sounds a bit mental, but try coloring. Did you know

that it's physically impossible for your brain to

color and hang onto tension at the same time? It's a great stress reducer, so

send someone out for the latest SpongeBob Squarepants coloring book and the big

pack of Crayolas and have at it!

Sandi in VA

[Guest guest]

Leo,

Hi! Hope your day's going great! You asked about suggestions to help keep you

entertained/upbeat, etc. I know some other people have already suggested TV,

reading, etc. and I'd be happy to share recommendations with you, if you'd like

any. I'm a former librarian, so reading recommendations come pretty easily to

me.

Do you know if you'll have access to a computer? If so, sites like Hulu.com

offer a lot of free full-length television programs. Netflix allows you to

watch unlimited movies for free on your laptop if you're a member. If you feel

like uncovering some deep, dark secrets, you can go to

https://implicit.harvard.edu/implicit/demo/ and take some Implicit Association

Tests from Harvard (there's a bunch to choose from). If you have a Facebook

account, there's a bunch of games on there and people to chat with. If you

don't think you'll have computer access, there's always crossword books, word

searches, card games (if you're near a library, check out Card Games for Kids.

It says it's a kid's book, but it has a lot of great games for 1, 2, 3 and 4+

players). You could become a kid again and get yourself some MadLibs. And last

but not least, I know this sounds a bit mental, but try coloring. Did you know

that it's physically impossible for your brain to

color and hang onto tension at the same time? It's a great stress reducer, so

send someone out for the latest SpongeBob Squarepants coloring book and the big

pack of Crayolas and have at it!

Sandi in VA

[Guest guest]

Leo,

Hi! Hope your day's going great! You asked about suggestions to help keep you

entertained/upbeat, etc. I know some other people have already suggested TV,

reading, etc. and I'd be happy to share recommendations with you, if you'd like

any. I'm a former librarian, so reading recommendations come pretty easily to

me.

Do you know if you'll have access to a computer? If so, sites like Hulu.com

offer a lot of free full-length television programs. Netflix allows you to

watch unlimited movies for free on your laptop if you're a member. If you feel

like uncovering some deep, dark secrets, you can go to

https://implicit.harvard.edu/implicit/demo/ and take some Implicit Association

Tests from Harvard (there's a bunch to choose from). If you have a Facebook

account, there's a bunch of games on there and people to chat with. If you

don't think you'll have computer access, there's always crossword books, word

searches, card games (if you're near a library, check out Card Games for Kids.

It says it's a kid's book, but it has a lot of great games for 1, 2, 3 and 4+

players). You could become a kid again and get yourself some MadLibs. And last

but not least, I know this sounds a bit mental, but try coloring. Did you know

that it's physically impossible for your brain to

color and hang onto tension at the same time? It's a great stress reducer, so

send someone out for the latest SpongeBob Squarepants coloring book and the big

pack of Crayolas and have at it!

Sandi in VA

[Guest guest]

I've got another one to add to your list. After he was diagnosed last week, every time I've asked my husband to help me with something he says, "I can't, I'm suddenly suffering from fatigue."

Subject: Re: So, I'm starting the Mayo Protocol on Monday administered locally here at UW-Hospital...To: Date: Friday, February 20, 2009, 8:26 PM

Cheryl,Hi! I loved your list! I'm a big/huge/gigantic proponent of the if you have the choice between laugh and cry, always choose laugh theory and it sounds like you've got a similar philosophy. :)To add to the tv book recommendations, I'm a former librarian (I specialized in YS, but I worked in all areas), so feel free to hit me up for good reads, too!On my list:1) I very rarely have to miss an episode of General Hospital or Grey's Anatomy2) I can spend the day in bed without being called lazy or self indulgent3) I've developed a highly-attuned morbid sense of humor4) I've become pseudo-famous and have my own shelf at the pharmacy and the pharmacists know me by name.5) I'm no longer freaked out by germs. I mean, what are they going to do, give me some incurable disease?6) When I have to use a wheelchair I can freak people out by sitting indian style. - Try it, it really throws people for some

reason.7) I'm now so thin that my doctors have ordered me to eat ice cream and cake and french fries and anything else I can think of that will give me some calories.8) I've discovered that trying to think of new acronyms for PSC takes up oodles of time and can be quite entertaining. (Pretty Special Cronies, Pearlman, Sandi Cure, Please Send Chocolate, etc.)Sandi in VA

[Guest guest]

I know not everyone has THAT blessing, but if I had more weight on me I would

look younger so I would figure out how to make that a positive (for my list

purposes).

I also have a list I'm working on that goes like this:

I have so much time on my hand that I've started watching American Idol and I

actually care who wins. (you'd have to know me before to understand how ironic

that is)

I have lost so much dignity that there is no bodily excretion I am not willing

to discuss with virtual strangers.

You get the idea. Have a good weekend, Cheryl

RE: So, I'm starting the Mayo Protocol on Monday

administered locally here at UW-Hospital...

> So far, very skinny hasn’t hit me yet – darn.

>

> =================

>

> 3) I am very thin (which is so stylin')

>

>

>

>

>

[Guest guest]

I know not everyone has THAT blessing, but if I had more weight on me I would

look younger so I would figure out how to make that a positive (for my list

purposes).

I also have a list I'm working on that goes like this:

I have so much time on my hand that I've started watching American Idol and I

actually care who wins. (you'd have to know me before to understand how ironic

that is)

I have lost so much dignity that there is no bodily excretion I am not willing

to discuss with virtual strangers.

You get the idea. Have a good weekend, Cheryl

RE: So, I'm starting the Mayo Protocol on Monday

administered locally here at UW-Hospital...

> So far, very skinny hasn’t hit me yet – darn.

>

> =================

>

> 3) I am very thin (which is so stylin')

>

>

>

>

>