Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 I know everyday how lucky I am that I have been able to continue to work and remain relatively healthy. I do fight the fatigue daily though. By the weekend I am done for. Most of it is spent either sleeping or sitting in front of my computer in my night shirt recharging for the next week. So far the worst of mine is the joint pain and the skin lesions. I have a slightly enlarged heart and some kidney envolement but not too bad yet. Thank God. I am on Plaquenil which does not help much but my pcp says I would be a lot worse without. I just take day by day and hope to maintain at the level I am now for awhile. I hope that you see improvement soon. I know how difficult it is to never feel like you have had enough sleep. Quote Link to comment Share on other sites More sharing options...
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