Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Yes I had to stop taking URSO because it increased my RUQ pain and fatique. PSC 5/07 at stage IV, Listed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 -----Original Message----- Has anyone else had to stop taking Ursodiol because of side effects? My son did. He had an almost constant stomach ache and pretty bad nausea. He also complained about headaches, we were never sure the Actigal caused them, until he stopped taking it and the headaches went away. Funny thing….. after his transplant, he was put back on Actigal and hasn’t had a single problem. Barb in Texas - Together in the Fight - Whatever it Takes! Son Ken (34) UC 91 PSC 99, LTX 6/21 & 6/30 2007 @ Baylor/Dallas _._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 -----Original Message----- Has anyone else had to stop taking Ursodiol because of side effects? My son did. He had an almost constant stomach ache and pretty bad nausea. He also complained about headaches, we were never sure the Actigal caused them, until he stopped taking it and the headaches went away. Funny thing….. after his transplant, he was put back on Actigal and hasn’t had a single problem. Barb in Texas - Together in the Fight - Whatever it Takes! Son Ken (34) UC 91 PSC 99, LTX 6/21 & 6/30 2007 @ Baylor/Dallas _._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 -----Original Message----- Has anyone else had to stop taking Ursodiol because of side effects? My son did. He had an almost constant stomach ache and pretty bad nausea. He also complained about headaches, we were never sure the Actigal caused them, until he stopped taking it and the headaches went away. Funny thing….. after his transplant, he was put back on Actigal and hasn’t had a single problem. Barb in Texas - Together in the Fight - Whatever it Takes! Son Ken (34) UC 91 PSC 99, LTX 6/21 & 6/30 2007 @ Baylor/Dallas _._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Anita, I know one member posted that they were having problem with the dose prescribed but they reduced the dose and slowly raised it back up and the side effects were eliminated. Ian Hi Carolyn, My situation is weird in that I am dependent on a biliary drain threaded all the way across my liver. It drains internally, through the anastomosis created by the Roux-en-Y. If the bile isn't kept thin enough to go through the little holes in the drain tube, you might as well butter me - I'm toast. Nita Re: Urso >> Has anyone else had to stop taking Ursodiol because of side effects?===============================================Yes, indeed!!! Urso gave me intense abdominal pain, nausea,headaches, and (weirdly enough) night terrors. They switched me to Actigall (same drug, slightly different formulation) but I sufferedthe very same side effects. And so, I don't take anything to thin thebile. There are just a very tiny handful of us in this group whocan't tolerate this drug, but we do exist! I must say, the idea of taking phenobarbitol seems pretty drastic tome. I've managed quite well without the Urso .... I sure wouldn't bewilling to take phenobarb!!!Regards,Carolyn B. in SC -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
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