Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Yes I had to stop taking URSO because it increased my RUQ pain and fatique. PSC 5/07 at stage IV, Listed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Thanks Sandi! I'll ask my Dr about Urso Forte! Nita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 > > Has anyone else had to stop taking Ursodiol because of side effects? =============================================== Yes, indeed!!! Urso gave me intense abdominal pain, nausea, headaches, and (weirdly enough) night terrors. They switched me to Actigall (same drug, slightly different formulation) but I suffered the very same side effects. And so, I don't take anything to thin the bile. There are just a very tiny handful of us in this group who can't tolerate this drug, but we do exist! I must say, the idea of taking phenobarbitol seems pretty drastic to me. I've managed quite well without the Urso .... I sure wouldn't be willing to take phenobarb!!! Regards, Carolyn B. in SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Hi Carolyn, My situation is weird in that I am dependent on a biliary drain threaded all the way across my liver. It drains internally, through the anastomosis created by the Roux-en-Y. If the bile isn't kept thin enough to go through the little holes in the drain tube, you might as well butter me - I'm toast. Nita Re: Urso >> Has anyone else had to stop taking Ursodiol because of side effects?===============================================Yes, indeed!!! Urso gave me intense abdominal pain, nausea,headaches, and (weirdly enough) night terrors. They switched me toActigall (same drug, slightly different formulation) but I sufferedthe very same side effects. And so, I don't take anything to thin thebile. There are just a very tiny handful of us in this group whocan't tolerate this drug, but we do exist!I must say, the idea of taking phenobarbitol seems pretty drastic tome. I've managed quite well without the Urso .... I sure wouldn't bewilling to take phenobarb!!!Regards,Carolyn B. in SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Hi Carolyn, My situation is weird in that I am dependent on a biliary drain threaded all the way across my liver. It drains internally, through the anastomosis created by the Roux-en-Y. If the bile isn't kept thin enough to go through the little holes in the drain tube, you might as well butter me - I'm toast. Nita Re: Urso >> Has anyone else had to stop taking Ursodiol because of side effects?===============================================Yes, indeed!!! Urso gave me intense abdominal pain, nausea,headaches, and (weirdly enough) night terrors. They switched me toActigall (same drug, slightly different formulation) but I sufferedthe very same side effects. And so, I don't take anything to thin thebile. There are just a very tiny handful of us in this group whocan't tolerate this drug, but we do exist!I must say, the idea of taking phenobarbitol seems pretty drastic tome. I've managed quite well without the Urso .... I sure wouldn't bewilling to take phenobarb!!!Regards,Carolyn B. in SC Quote Link to comment Share on other sites More sharing options...
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