Guest guest Posted January 7, 2009 Report Share Posted January 7, 2009 I have been tested for Celiac disease and test negative. I have had several hepatologist and none have ever suggested a gluten free diet and I always about dietery restrictions. I was just placed on a Low Oxalate diet by my physician because I am having kidney problems. When I was being tested for Celiac disease I went to the pubmed website and I don't recall much being there regarding PSC and Gluten, maybe a few articles and if I recall correctly there wasn't a large scale study conducted. If there is a chance that you have celiac disease it might be helpful, but I believe in asking my own doctor before I make changes because he knows my body and I don't typically respond to things like other people. Any way these are just my thoughts. DAwn > > Having only being diagnosed with PSC and Crones these last couple > month....AND SCARED TO HECK>>>I'm sure the board has heard it > all...I'm the guy that answered a sleep ad question and a few people > told me 5 HTP was bad for the liver....well I told my dear old sister > this and here's what she heard back from her Doctor. > > " My Doctor is very knowledgeable about what you have and has had > patients with it, evidently. In my case it doesn't apply because I > take low dosages...She strongly recommended that you be tested for > celiac disease, which goes along with Crohns and IBS. If you have > celiac disease (it runs in family's just like hypothyroidism which is > in our family too) you should be on a COMPLETELY gluten free diet. > (She tested me and I am borderline.) She said there have been cases > of reversal of your symptoms and recovery from PSC backing up this > information and referred a site : pubmed.gov. She said to search it > like this. PSC AND gluten. It will take you to those cases. She said > even if you came back borderline with a gluten sensitivity she would > stay completely on a gluten free diet. I know that is hard because > that is what I am doing. I feel a LOT better and the minute I eat > gluten I feel bad again.Thankfully there are a lot of gluten free > products now. " > > Chime in (members of the club nobody wants to be a member of) > > DB in SC > Quote Link to comment Share on other sites More sharing options...
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