Re: dietician, book reccomendations

[Guest guest]

Thanks everyone for answering. Happy Thanksgiving.To: Sent: Monday, November 24, 2008 12:05:32 PMSubject: Re: dietician, book reccomendations

Karla,

Hi! I've seen several nutritionists/ dieticians. I got some good advice from them in terms of they'd like us (and everyone) to eat 6 small meals a day (about the size of the toddler dishes/plates for serving size) instead of 3 big meals. Other than that, as far as PSC, I've been told by one to eat as many high fat foods as I can (they specifically recommended milkshakes, ice cream, hamburgers, etc.). Another one told me to stick to low-fat foods and avoid all dairy and yet another one told me that there is no "diet" for PSC and the best thing I can do is eat what my body craves when it craves it. All of these nutritionists/ dieticians are accredited and well-respected in the field. I think it just boils down to the fact that we're all so different with this disease that you sort of have to play trial and error and see what works for you. I know I'm okay with sugar, but a good pal of mine itches something

awful

whenever he ingests it. Another pal of mine can tolerate veggies really well but I can't handle them at all. I think if seeing someone will give you peace of mind and a starting point, it's well worth it, but I'm guessing since PSC is so individualized, it may be a time will tell kind of diet plan that seems to work best for you!

Best of luck! Hope this helped a bit!

Sandi in VA

[Guest guest]

Karla.

Welcome, sorry for your diagnosis, but happy you found us. I don't have any dietary recommendations because it is very much a personal disease (works differently in us all). Some of us are very much helped by URSO but others can not tolerate it. I searched your name on facebook and found one with your name in Seattle (maybe who?). Many of us are on facebook including Sandi Pearlman which also responded to you (although sandi uses a different email for FB), and there are others in the Seattle area. Facebook helps us know more about each other and we feel closer.

Our prayers and support go out to you. Have a great Thanksgiving.

Ian (52) PSE 89.

By the tage line I mean I am 52 years old and was diagnosed in 89, 19 years ago so be encouraged you can get through this!

Hello everyone,I am 30 y.o. and new to this party, just diagnosed with PSC a week ago and I already had colitis. Can anybody recommend any good books about liver health or alternative medicine?

What about seeing a dietician? Does anyone think that is helpful? From what I can tell from a brief look on the internet, their focus seems to be on diabetes and obesity, and I don't have either. I exercise, eat plenty of fruits and veggies, and skip the deserts, fast food, and processed foods, but I feel like a want to do something more.

Thanks!Karla

-- Ian Cribb P.Eng.

[Guest guest]

Karla.

Welcome, sorry for your diagnosis, but happy you found us. I don't have any dietary recommendations because it is very much a personal disease (works differently in us all). Some of us are very much helped by URSO but others can not tolerate it. I searched your name on facebook and found one with your name in Seattle (maybe who?). Many of us are on facebook including Sandi Pearlman which also responded to you (although sandi uses a different email for FB), and there are others in the Seattle area. Facebook helps us know more about each other and we feel closer.

Our prayers and support go out to you. Have a great Thanksgiving.

Ian (52) PSE 89.

By the tage line I mean I am 52 years old and was diagnosed in 89, 19 years ago so be encouraged you can get through this!

Hello everyone,I am 30 y.o. and new to this party, just diagnosed with PSC a week ago and I already had colitis. Can anybody recommend any good books about liver health or alternative medicine?

What about seeing a dietician? Does anyone think that is helpful? From what I can tell from a brief look on the internet, their focus seems to be on diabetes and obesity, and I don't have either. I exercise, eat plenty of fruits and veggies, and skip the deserts, fast food, and processed foods, but I feel like a want to do something more.

Thanks!Karla

-- Ian Cribb P.Eng.