Re: my personal theory about fms cause/effect

[Guest guest]

I have had diagnosed sleep apnea since college, when I was put

through a sleep study. I have been treating it for years before I

was diagnosed with Fibro. I don't simply have just apnea. Also I

doubt my apnea could go on for nine years before I suddenly came

down with severe pain and other fibro problems. Shandi

> Hello. I'm new to this group and have read some of the messages -

> many more to go

>

> Thankfully, I don't have fms or cfs. I ended up here via another

> disorder that I found can cause symptoms of fms. Most pages I read

> about fms tell me that fms causes sleep disorders, and some even

say

> that fms goes hand in hand with a sleep disorder, or that fms IS a

> sleep disorder. That's true but the cause-effect relationship is

> backwards.

>

> In short, here is my theory:

>

> Stress, illness, pain, and apnea can interfer with sleep. When the

> deep stages of sleep (3,4) are reduced or eliminated, the body

doesn't

> repair itself which leads to joint/muscle pain, depression,

anxiety,

> infections, etc. This causes a cycle which is difficult to break

in

> some people. I suppose a lot of people already know this stuff but

> we're missing the point that sleep is the culprit.

>

> What many people don't know yet is that a LARGE portion of our

society

> has sleep apnea. This is when you relax to sleep your airways shut

> off which awakens you (without knowing it usually) and keeps you

from

> getting into the deeper sleep stages. Apnea leads to many other

sleep

> disorders such as restless legs, narcolepsy, insomnia - but not the

> other way around. Yes, these disorders can happen on their own but

> they can be caused by apnea. Some of the signs of apnea are:

snoring,

> night sweats, frequent urination, high blood pressure, acid reflux,

> weight gain, racing heart and a bunch of other things that don't

look

> sleep related at all. Not everyone who has apnea has all these

symptoms.

>

> My estimation is that 50%+ of people in the US over the age of 40

have

> sleep apena. I'm sure I'll get a lot of hate mail about this

because

> for some reason people can't stand the idea that they may simply

have

> apnea. ly, you should jump for joy if that's the problem

because

> it's so easily fixed and doesn't require you to take a pill that

has

> side effects.

>

> It's very simple, air is very important and we spend 1/3 of our

life

> sleeping. You can die without food for a couple of weeks, without

> water for a couple of days, without air for a couple of minuites -

see

> the priorities?

> Please consider this as a possible cause of your fms/cfs. Because

I

> think they could be the symptom of apena. Consider asking your dr

for

> a sleep test referral. Please don't rely on the on-line

questionaires

> about apnea, they are useless and have given many people false

> readings. Talk to your dr about it.

>

> Thanks for listening and I hope this helps someone,

> roger

[Guest guest]

> I have had diagnosed sleep apnea since college, when I was put

> through a sleep study. I have been treating it for years before I

> was diagnosed with Fibro. I don't simply have just apnea. Also I

> doubt my apnea could go on for nine years before I suddenly came

> down with severe pain and other fibro problems.

Shandi:

If you're apena is under control using cpap, have you been

retitrated recently? Should do that every couple of years at least

since apnea can changed based on body weight and other factors.

Also, 100% cpap compliance is necessary for some people.

I did mention other things that can disrupt stage 4 sleep

including some drugs.

r

[Guest guest]

In a message dated 5/10/2002 9:07:52 PM Pacific Daylight Time,

roger@... writes:

> Please consider this as a possible cause of your fms/cfs. Because I

> think they could be the symptom of apena. Consider asking your dr for

> a sleep test referral. Please don't rely on the on-line questionaires

> about apnea, they are useless and have given many people false

> readings. Talk to your dr about it.

>

> Thanks for listening and I hope this helps someone,

> roger

>

>

Hi ,

What do you think about FM running in families? I've had it since I

was 15 and I sleep just fine. In my family it seems to go along with auto

immune diseases like Rheumatoid Arthritis, lupus, and alopecia.

[Guest guest]

In a message dated 5/11/2002 8:55:30 AM Pacific Daylight Time,

roger@... writes:

> :

> Have you ever asked an arthritis dr what causes it? They dont know.

> Isn't that amazing to anyone that there are entire industries built

> around these symptoms and no one has a clue? I'm wondering if we're

> missing something more basic/simple here and a lot of these are

> connected.

>

> It's obvious that certain people are more sensitive to toxins, stress,

> etc. And different people have different symptoms for the same

> problem. This could be because of your genetic makeup.

>

> Have you or anyone in your family ever had a sleep study? Would be

> interesting to know if you're getting deep sleep.

>

>

>

>

I haven't had a sleep study but my uncle did and it was normal. Our family

had forms of rheumatism back into the 1800s. My great grandparents were first

cousins (arranged marriage) and they both carried it. When they crossed their

genes something happened and almost everyone I'm related to through them has

some kind of rheumatism.

[Guest guest]

In a message dated 5/11/2002 8:55:30 AM Pacific Daylight Time,

roger@... writes:

> :

> Have you ever asked an arthritis dr what causes it? They dont know.

> Isn't that amazing to anyone that there are entire industries built

> around these symptoms and no one has a clue? I'm wondering if we're

> missing something more basic/simple here and a lot of these are

> connected.

>

> It's obvious that certain people are more sensitive to toxins, stress,

> etc. And different people have different symptoms for the same

> problem. This could be because of your genetic makeup.

>

> Have you or anyone in your family ever had a sleep study? Would be

> interesting to know if you're getting deep sleep.

>

>

>

>

I haven't had a sleep study but my uncle did and it was normal. Our family

had forms of rheumatism back into the 1800s. My great grandparents were first

cousins (arranged marriage) and they both carried it. When they crossed their

genes something happened and almost everyone I'm related to through them has

some kind of rheumatism.

[Guest guest]

> Hi ,

> What do you think about FM running in families? I've had it since I

> was 15 and I sleep just fine. In my family it seems to go along with

> auto immune diseases like Rheumatoid Arthritis, lupus, and alopecia.

:

Have you ever asked an arthritis dr what causes it? They dont know.

Isn't that amazing to anyone that there are entire industries built

around these symptoms and no one has a clue? I'm wondering if we're

missing something more basic/simple here and a lot of these are

connected.

It's obvious that certain people are more sensitive to toxins, stress,

etc. And different people have different symptoms for the same

problem. This could be because of your genetic makeup.

Have you or anyone in your family ever had a sleep study? Would be

interesting to know if you're getting deep sleep.

[Guest guest]

Thanks for taking the time to write this message.

--- angel_of_harlemu2 angel_of_harlemu2@...>

wrote:

> I have had diagnosed sleep apnea since college, when

> I was put

> through a sleep study. I have been treating it for

> years before I

> was diagnosed with Fibro. I don't simply have just

> apnea. Also I

> doubt my apnea could go on for nine years before I

> suddenly came

> down with severe pain and other fibro problems.

> Shandi

>

>

> > Hello. I'm new to this group and have read some

> of the messages -

> > many more to go

> >

> > Thankfully, I don't have fms or cfs. I ended up

> here via another

> > disorder that I found can cause symptoms of fms.

> Most pages I read

> > about fms tell me that fms causes sleep disorders,

> and some even

> say

> > that fms goes hand in hand with a sleep disorder,

> or that fms IS a

> > sleep disorder. That's true but the cause-effect

> relationship is

> > backwards.

> >

> > In short, here is my theory:

> >

> > Stress, illness, pain, and apnea can interfer with

> sleep. When the

> > deep stages of sleep (3,4) are reduced or

> eliminated, the body

> doesn't

> > repair itself which leads to joint/muscle pain,

> depression,

> anxiety,

> > infections, etc. This causes a cycle which is

> difficult to break

> in

> > some people. I suppose a lot of people already

> know this stuff but

> > we're missing the point that sleep is the culprit.

> >

> > What many people don't know yet is that a LARGE

> portion of our

> society

> > has sleep apnea. This is when you relax to sleep

> your airways shut

> > off which awakens you (without knowing it usually)

> and keeps you

> from

> > getting into the deeper sleep stages. Apnea leads

> to many other

> sleep

> > disorders such as restless legs, narcolepsy,

> insomnia - but not the

> > other way around. Yes, these disorders can happen

> on their own but

> > they can be caused by apnea. Some of the signs of

> apnea are:

> snoring,

> > night sweats, frequent urination, high blood

> pressure, acid reflux,

> > weight gain, racing heart and a bunch of other

> things that don't

> look

> > sleep related at all. Not everyone who has apnea

> has all these

> symptoms.

> >

> > My estimation is that 50%+ of people in the US

> over the age of 40

> have

> > sleep apena. I'm sure I'll get a lot of hate mail

> about this

> because

> > for some reason people can't stand the idea that

> they may simply

> have

> > apnea. ly, you should jump for joy if that's

> the problem

> because

> > it's so easily fixed and doesn't require you to

> take a pill that

> has

> > side effects.

> >

> > It's very simple, air is very important and we

> spend 1/3 of our

> life

> > sleeping. You can die without food for a couple

> of weeks, without

> > water for a couple of days, without air for a

> couple of minuites -

> see

> > the priorities?

> > Please consider this as a possible cause of your

> fms/cfs. Because

> I

> > think they could be the symptom of apena.

> Consider asking your dr

> for

> > a sleep test referral. Please don't rely on the

> on-line

> questionaires

> > about apnea, they are useless and have given many

> people false

> > readings. Talk to your dr about it.

> >

> > Thanks for listening and I hope this helps

> someone,

> > roger

>

>

__________________________________________________

[Guest guest]

Thanks for taking the time to write this message.

--- angel_of_harlemu2 angel_of_harlemu2@...>

wrote:

> I have had diagnosed sleep apnea since college, when

> I was put

> through a sleep study. I have been treating it for

> years before I

> was diagnosed with Fibro. I don't simply have just

> apnea. Also I

> doubt my apnea could go on for nine years before I

> suddenly came

> down with severe pain and other fibro problems.

> Shandi

>

>

> > Hello. I'm new to this group and have read some

> of the messages -

> > many more to go

> >

> > Thankfully, I don't have fms or cfs. I ended up

> here via another

> > disorder that I found can cause symptoms of fms.

> Most pages I read

> > about fms tell me that fms causes sleep disorders,

> and some even

> say

> > that fms goes hand in hand with a sleep disorder,

> or that fms IS a

> > sleep disorder. That's true but the cause-effect

> relationship is

> > backwards.

> >

> > In short, here is my theory:

> >

> > Stress, illness, pain, and apnea can interfer with

> sleep. When the

> > deep stages of sleep (3,4) are reduced or

> eliminated, the body

> doesn't

> > repair itself which leads to joint/muscle pain,

> depression,

> anxiety,

> > infections, etc. This causes a cycle which is

> difficult to break

> in

> > some people. I suppose a lot of people already

> know this stuff but

> > we're missing the point that sleep is the culprit.

> >

> > What many people don't know yet is that a LARGE

> portion of our

> society

> > has sleep apnea. This is when you relax to sleep

> your airways shut

> > off which awakens you (without knowing it usually)

> and keeps you

> from

> > getting into the deeper sleep stages. Apnea leads

> to many other

> sleep

> > disorders such as restless legs, narcolepsy,

> insomnia - but not the

> > other way around. Yes, these disorders can happen

> on their own but

> > they can be caused by apnea. Some of the signs of

> apnea are:

> snoring,

> > night sweats, frequent urination, high blood

> pressure, acid reflux,

> > weight gain, racing heart and a bunch of other

> things that don't

> look

> > sleep related at all. Not everyone who has apnea

> has all these

> symptoms.

> >

> > My estimation is that 50%+ of people in the US

> over the age of 40

> have

> > sleep apena. I'm sure I'll get a lot of hate mail

> about this

> because

> > for some reason people can't stand the idea that

> they may simply

> have

> > apnea. ly, you should jump for joy if that's

> the problem

> because

> > it's so easily fixed and doesn't require you to

> take a pill that

> has

> > side effects.

> >

> > It's very simple, air is very important and we

> spend 1/3 of our

> life

> > sleeping. You can die without food for a couple

> of weeks, without

> > water for a couple of days, without air for a

> couple of minuites -

> see

> > the priorities?

> > Please consider this as a possible cause of your

> fms/cfs. Because

> I

> > think they could be the symptom of apena.

> Consider asking your dr

> for

> > a sleep test referral. Please don't rely on the

> on-line

> questionaires

> > about apnea, they are useless and have given many

> people false

> > readings. Talk to your dr about it.

> >

> > Thanks for listening and I hope this helps

> someone,

> > roger

>

>

__________________________________________________

[Guest guest]

Thanks for taking the time to write this message.

--- angel_of_harlemu2 angel_of_harlemu2@...>

wrote:

> I have had diagnosed sleep apnea since college, when

> I was put

> through a sleep study. I have been treating it for

> years before I

> was diagnosed with Fibro. I don't simply have just

> apnea. Also I

> doubt my apnea could go on for nine years before I

> suddenly came

> down with severe pain and other fibro problems.

> Shandi

>

>

> > Hello. I'm new to this group and have read some

> of the messages -

> > many more to go

> >

> > Thankfully, I don't have fms or cfs. I ended up

> here via another

> > disorder that I found can cause symptoms of fms.

> Most pages I read

> > about fms tell me that fms causes sleep disorders,

> and some even

> say

> > that fms goes hand in hand with a sleep disorder,

> or that fms IS a

> > sleep disorder. That's true but the cause-effect

> relationship is

> > backwards.

> >

> > In short, here is my theory:

> >

> > Stress, illness, pain, and apnea can interfer with

> sleep. When the

> > deep stages of sleep (3,4) are reduced or

> eliminated, the body

> doesn't

> > repair itself which leads to joint/muscle pain,

> depression,

> anxiety,

> > infections, etc. This causes a cycle which is

> difficult to break

> in

> > some people. I suppose a lot of people already

> know this stuff but

> > we're missing the point that sleep is the culprit.

> >

> > What many people don't know yet is that a LARGE

> portion of our

> society

> > has sleep apnea. This is when you relax to sleep

> your airways shut

> > off which awakens you (without knowing it usually)

> and keeps you

> from

> > getting into the deeper sleep stages. Apnea leads

> to many other

> sleep

> > disorders such as restless legs, narcolepsy,

> insomnia - but not the

> > other way around. Yes, these disorders can happen

> on their own but

> > they can be caused by apnea. Some of the signs of

> apnea are:

> snoring,

> > night sweats, frequent urination, high blood

> pressure, acid reflux,

> > weight gain, racing heart and a bunch of other

> things that don't

> look

> > sleep related at all. Not everyone who has apnea

> has all these

> symptoms.

> >

> > My estimation is that 50%+ of people in the US

> over the age of 40

> have

> > sleep apena. I'm sure I'll get a lot of hate mail

> about this

> because

> > for some reason people can't stand the idea that

> they may simply

> have

> > apnea. ly, you should jump for joy if that's

> the problem

> because

> > it's so easily fixed and doesn't require you to

> take a pill that

> has

> > side effects.

> >

> > It's very simple, air is very important and we

> spend 1/3 of our

> life

> > sleeping. You can die without food for a couple

> of weeks, without

> > water for a couple of days, without air for a

> couple of minuites -

> see

> > the priorities?

> > Please consider this as a possible cause of your

> fms/cfs. Because

> I

> > think they could be the symptom of apena.

> Consider asking your dr

> for

> > a sleep test referral. Please don't rely on the

> on-line

> questionaires

> > about apnea, they are useless and have given many

> people false

> > readings. Talk to your dr about it.

> >

> > Thanks for listening and I hope this helps

> someone,

> > roger

>

>

__________________________________________________

[Guest guest]

and don't forget about the PTFMS,

post-traumatic FMS. its a mess,

no one in my fam but me with it.

happened right after an auto

wreck.

xoxoxooxxo

mel

> In a message dated 5/10/2002 9:07:52 PM Pacific Daylight Time,

> roger@s... writes:

>

>

> > Please consider this as a possible cause of your fms/cfs.

Because I

> > think they could be the symptom of apena. Consider asking your

dr for

> > a sleep test referral. Please don't rely on the on-line

questionaires

> > about apnea, they are useless and have given many people false

> > readings. Talk to your dr about it.

> >

> > Thanks for listening and I hope this helps someone,

> > roger

> >

> >

>

> Hi ,

> What do you think about FM running in families? I've had it

since I

> was 15 and I sleep just fine. In my family it seems to go along

with auto

> immune diseases like Rheumatoid Arthritis, lupus, and alopecia.

>

>

>

>

[Guest guest]

I don't -- totally -- disagree with your theory on FMS, but....

I have been diagnosed and properly treated for sleep apnea since 1996.

I am 110% compliant with my CPAP (I get severe migraines when I try

not to use it). I was not diagnosed with FMS until October 2001. I

have been through sleep studies to make sure my pressure is

appropriate, etc. In fact, I have another scheduled in July. I still

have FMS.

The one part of your theory I do agree with is that good, deep sleep

makes me feel significantly better when I am able to acheive it on a

CONSISTENT, nightly basis for a week or more. This is difficult to do

without medication for me.

Wish FMS was as easy as your concept...believe me, most of us would

love to have a solution to this thing.

Jeanette

> Hello. I'm new to this group and have read some of the messages -

> many more to go

[Guest guest]

Who tested you for sleep apnea...I think I have it or at least have a very

difficult time breathing when lying down because I don't seem to get enough air

through my nose.

anne

Re: my personal theory about fms cause/effect

I don't -- totally -- disagree with your theory on FMS, but....

I have been diagnosed and properly treated for sleep apnea since 1996.

I am 110% compliant with my CPAP (I get severe migraines when I try

not to use it). I was not diagnosed with FMS until October 2001. I

have been through sleep studies to make sure my pressure is

appropriate, etc. In fact, I have another scheduled in July. I still

have FMS.

The one part of your theory I do agree with is that good, deep sleep

makes me feel significantly better when I am able to acheive it on a

CONSISTENT, nightly basis for a week or more. This is difficult to do

without medication for me.

Wish FMS was as easy as your concept...believe me, most of us would

love to have a solution to this thing.

Jeanette

> Hello. I'm new to this group and have read some of the messages -

> many more to go

[Guest guest]

I was referred to a pulmonologist by my primary doctor. The pulmo is

the one who arranges and reads my sleep study results. I see him at

least once a year...more often if I am having difficulties.

Jeanette

> Who tested you for sleep apnea...I think I have it or at least have

a very difficult time breathing when lying down because I don't seem

to get enough air through my nose.

>

> anne

[Guest guest]

I was referred to a pulmonologist by my primary doctor. The pulmo is

the one who arranges and reads my sleep study results. I see him at

least once a year...more often if I am having difficulties.

Jeanette

> Who tested you for sleep apnea...I think I have it or at least have

a very difficult time breathing when lying down because I don't seem

to get enough air through my nose.

>

> anne