Guest guest Posted August 26, 2002 Report Share Posted August 26, 2002 I joined this group about a week ago and have been reading these posts daily. I too have found very little helpful information like I had hoped I would. So I guess I will be the first to give some helpful advice. A positive attitude IS helpful 9 times out of 10. There is always a good side to everything. The positive side to this central nervous system disease is that it is not fatal like many other diseases like cancer for example. It is extremely hard to deal with and makes us miserable but we will survive it one way or another. Restful sleep is extremely important and I have found that if I put myself on a regular schedule and go to bed at the same time every night and get up at the same time every morning and don't take naps during the day that with my meds I tend to sleep better. Taking naps during the day keeps you from sleeping as good at night because you're not exhausted enough. A good combination of meds to help with the migraines for me is neurontin and a skeletal muscle relaxer called robaxin. I am also on a regular muscle relaxer to help with the pain and tightness in my muscles (tizanidine, generic name), along with trileptal (which is actually for seizures) but help with muscle spasms. Effexor XR is an excellent antidepressant for fibro and I'm on paxil also. My husband (bless his good heart), found a seat cover that can be used on a chair, couch or on my car seat, that massages and also provides heat at Wal-mart. I got it for Christmas and it is extremely helpful for back and shoulder flare-ups in my muscles. I can sit on it for about 20 min. and feel rejuvenated and the tension and spasms seem to disappear for a while. I have also found that going to the chiropractor every 3-4 months is helpful too. If your spine or neck is even slightly out of whack it can cause every muscle and joint in your body to be out of whack also because they are trying to make up for what isn't right. My neurologist gives me Botox shots in my tender/sore spots every 3-4 months also. It is a mild muscle relaxant that is shot directly into the muscles and has very rare side effects. It also is extremely helpful and last for about 3 months. I've done an extreme amount of research on FMS and they are coming out with new information frequently so keep on searching. A good source of information is the Fibromyalgia Network. It can be found on the net and has quarterly newsletters to keep you updated on the new scientific research, new meds, biofeedback and sleep studies, and non-med techniques that can be helpful. I hope that I have given some helpful advice here and have a lot more to give but it's time to quit for now and do my stretching excercises that I do faithfully every morning and evening. I've found that it is the best way to start my day after checking my e-mail. Love to all and God Bless. Sincerely, Cheryl L. Gross Life is too short. Enjoy what you make of it and Live it day by day. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2002 Report Share Posted August 26, 2002 Thank you Cheryl. I believe you are absolutely correct about the positive attitude and appreciate the email as such. It's great to see people with such positive things to say. a Faye --- Cheryl Gross myangelicblues@...> wrote: > > I joined this group about a week ago and have been > reading these posts daily. I too have found very > little helpful information like I had hoped I would. > So I guess I will be the first to give some helpful > advice. > > A positive attitude IS helpful 9 times out of 10. > There is always a good side to everything. The > positive side to this central nervous system disease > is that it is not fatal like many other diseases > like cancer for example. It is extremely hard to > deal with and makes us miserable but we will survive > it one way or another. > > Restful sleep is extremely important and I have > found that if I put myself on a regular schedule and > go to bed at the same time every night and get up at > the same time every morning and don't take naps > during the day that with my meds I tend to sleep > better. Taking naps during the day keeps you from > sleeping as good at night because you're not > exhausted enough. > > A good combination of meds to help with the > migraines for me is neurontin and a skeletal muscle > relaxer called robaxin. I am also on a regular > muscle relaxer to help with the pain and tightness > in my muscles (tizanidine, generic name), along with > trileptal (which is actually for seizures) but help > with muscle spasms. Effexor XR is an excellent > antidepressant for fibro and I'm on paxil also. > > My husband (bless his good heart), found a seat > cover that can be used on a chair, couch or on my > car seat, that massages and also provides heat at > Wal-mart. I got it for Christmas and it is extremely > helpful for back and shoulder flare-ups in my > muscles. I can sit on it for about 20 min. and feel > rejuvenated and the tension and spasms seem to > disappear for a while. > > I have also found that going to the chiropractor > every 3-4 months is helpful too. If your spine or > neck is even slightly out of whack it can cause > every muscle and joint in your body to be out of > whack also because they are trying to make up for > what isn't right. My neurologist gives me Botox > shots in my tender/sore spots every 3-4 months also. > It is a mild muscle relaxant that is shot directly > into the muscles and has very rare side effects. It > also is extremely helpful and last for about 3 > months. > > I've done an extreme amount of research on FMS and > they are coming out with new information frequently > so keep on searching. A good source of information > is the Fibromyalgia Network. It can be found on the > net and has quarterly newsletters to keep you > updated on the new scientific research, new meds, > biofeedback and sleep studies, and non-med > techniques that can be helpful. > > I hope that I have given some helpful advice here > and have a lot more to give but it's time to quit > for now and do my stretching excercises that I do > faithfully every morning and evening. I've found > that it is the best way to start my day after > checking my e-mail. > > Love to all and God Bless. > > > > Sincerely, > > Cheryl L. Gross > > > > Life is too short. Enjoy what you make of it and > Live it day by day. > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2002 Report Share Posted August 26, 2002 Thank you Cheryl. I believe you are absolutely correct about the positive attitude and appreciate the email as such. It's great to see people with such positive things to say. a Faye --- Cheryl Gross myangelicblues@...> wrote: > > I joined this group about a week ago and have been > reading these posts daily. I too have found very > little helpful information like I had hoped I would. > So I guess I will be the first to give some helpful > advice. > > A positive attitude IS helpful 9 times out of 10. > There is always a good side to everything. The > positive side to this central nervous system disease > is that it is not fatal like many other diseases > like cancer for example. It is extremely hard to > deal with and makes us miserable but we will survive > it one way or another. > > Restful sleep is extremely important and I have > found that if I put myself on a regular schedule and > go to bed at the same time every night and get up at > the same time every morning and don't take naps > during the day that with my meds I tend to sleep > better. Taking naps during the day keeps you from > sleeping as good at night because you're not > exhausted enough. > > A good combination of meds to help with the > migraines for me is neurontin and a skeletal muscle > relaxer called robaxin. I am also on a regular > muscle relaxer to help with the pain and tightness > in my muscles (tizanidine, generic name), along with > trileptal (which is actually for seizures) but help > with muscle spasms. Effexor XR is an excellent > antidepressant for fibro and I'm on paxil also. > > My husband (bless his good heart), found a seat > cover that can be used on a chair, couch or on my > car seat, that massages and also provides heat at > Wal-mart. I got it for Christmas and it is extremely > helpful for back and shoulder flare-ups in my > muscles. I can sit on it for about 20 min. and feel > rejuvenated and the tension and spasms seem to > disappear for a while. > > I have also found that going to the chiropractor > every 3-4 months is helpful too. If your spine or > neck is even slightly out of whack it can cause > every muscle and joint in your body to be out of > whack also because they are trying to make up for > what isn't right. My neurologist gives me Botox > shots in my tender/sore spots every 3-4 months also. > It is a mild muscle relaxant that is shot directly > into the muscles and has very rare side effects. It > also is extremely helpful and last for about 3 > months. > > I've done an extreme amount of research on FMS and > they are coming out with new information frequently > so keep on searching. A good source of information > is the Fibromyalgia Network. It can be found on the > net and has quarterly newsletters to keep you > updated on the new scientific research, new meds, > biofeedback and sleep studies, and non-med > techniques that can be helpful. > > I hope that I have given some helpful advice here > and have a lot more to give but it's time to quit > for now and do my stretching excercises that I do > faithfully every morning and evening. I've found > that it is the best way to start my day after > checking my e-mail. > > Love to all and God Bless. > > > > Sincerely, > > Cheryl L. Gross > > > > Life is too short. Enjoy what you make of it and > Live it day by day. > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
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