Re: Anyone else obsessed with the C word?

[Guest guest]

Been there, done that. Still do on occasion. I think Ian hit the nail on the head...

C.

I know my chances, I know statistics, all of that, but I can not getCCa off the brain. Maybe it is because I am newly diagnosed? I am sucha glass-half-full person, and I am driving myself a little nuts herewith the fear of getting cancer and dying from it. Am I the only one? Plan your next getaway with AOL Travel. Check out Today's Hot 5 Travel Deals!

[Guest guest]

Been there, done that. Still do on occasion. I think Ian hit the nail on the head...

C.

I know my chances, I know statistics, all of that, but I can not getCCa off the brain. Maybe it is because I am newly diagnosed? I am sucha glass-half-full person, and I am driving myself a little nuts herewith the fear of getting cancer and dying from it. Am I the only one? Plan your next getaway with AOL Travel. Check out Today's Hot 5 Travel Deals!

[Guest guest]

ee,

I was worried about dieing for the first 10 years after diagnosis,but now 19 years later I see that it isn't just around the corner and that God has a purpose for keeping me alive. Whether I live or die I pray that the Lords Kingdom will be furthered by the event. There does not seem to be any benefit by worrying about dieing. You cannot stop it (other than living healthy) and you can not get life insurance (don't try and fool them they will find out after your gone and deny your claim). Live your life to leave a legacy after your gone.

Ian (52) PSC 89

I know my chances, I know statistics, all of that, but I can not getCCa off the brain. Maybe it is because I am newly diagnosed? I am sucha glass-half-full person, and I am driving myself a little nuts here

with the fear of getting cancer and dying from it. Am I the only one? eeparanoid/PSC 09/08, CD 2000 -- Ian Cribb P.Eng.

[Guest guest]

ee,

I was worried about dieing for the first 10 years after diagnosis,but now 19 years later I see that it isn't just around the corner and that God has a purpose for keeping me alive. Whether I live or die I pray that the Lords Kingdom will be furthered by the event. There does not seem to be any benefit by worrying about dieing. You cannot stop it (other than living healthy) and you can not get life insurance (don't try and fool them they will find out after your gone and deny your claim). Live your life to leave a legacy after your gone.

Ian (52) PSC 89

I know my chances, I know statistics, all of that, but I can not getCCa off the brain. Maybe it is because I am newly diagnosed? I am sucha glass-half-full person, and I am driving myself a little nuts here

with the fear of getting cancer and dying from it. Am I the only one? eeparanoid/PSC 09/08, CD 2000 -- Ian Cribb P.Eng.

[Guest guest]

Thanks. I am mostly NOT afraid of dying. I know where I am going, and

I know I will be happy there. As a woman of faith, I have the

afterlife buttoned up. This is why I am so surprised at myself. In

truth, my risks are just the same as they were before diagnosis. I

risk my life every day in my car. You never truly know when or how

death can occur. But I guess the difference is that now I have a

tangible threat, not a hypothetical one. Of course, as a mother, it is

sickening to think of leaving young children. I just need to find a

way to change my thought patterns and visualize years and years of

living with PSC.

So...no life insurance huh? I hadn't thought of that.

>

> Been there, done that. Still do on occasion. I think Ian hit the

nail on

> the head...

>

> C.

>

>

>

[Guest guest]

Thanks. I am mostly NOT afraid of dying. I know where I am going, and

I know I will be happy there. As a woman of faith, I have the

afterlife buttoned up. This is why I am so surprised at myself. In

truth, my risks are just the same as they were before diagnosis. I

risk my life every day in my car. You never truly know when or how

death can occur. But I guess the difference is that now I have a

tangible threat, not a hypothetical one. Of course, as a mother, it is

sickening to think of leaving young children. I just need to find a

way to change my thought patterns and visualize years and years of

living with PSC.

So...no life insurance huh? I hadn't thought of that.

>

> Been there, done that. Still do on occasion. I think Ian hit the

nail on

> the head...

>

> C.

>

>

>

[Guest guest]

I am a survivor of two breast cancers and a mother of two when being

told that I probably would never have children. I can only say that

you need to find a passion that consumes you to replace your fears

with joy.Feeling grateful everyday also will change your perspective

as sometimes we become too introspective.If you can, volunteer to help

others and take your mind away from something that may never

happen.The stress you give yourself can change every cell in your body

as so can contentment.Choose joy and live!

Dora

[Guest guest]

I am a survivor of two breast cancers and a mother of two when being

told that I probably would never have children. I can only say that

you need to find a passion that consumes you to replace your fears

with joy.Feeling grateful everyday also will change your perspective

as sometimes we become too introspective.If you can, volunteer to help

others and take your mind away from something that may never

happen.The stress you give yourself can change every cell in your body

as so can contentment.Choose joy and live!

Dora

[Guest guest]

shawnee,

sorry to give you something else to think about. Maybe it's a blessing to be not able to get life insurance. It seems like such suckers bet, paying all those premiums betting you'll die before you've paid enough for them to make money.

I'm glad you know where you will be going after you die. But also trust in the Lord to look after those you leave behind, He's trustworthy.

Ian (52) PSC 89

Thanks. I am mostly NOT afraid of dying. I know where I am going, andI know I will be happy there. As a woman of faith, I have theafterlife buttoned up. This is why I am so surprised at myself. Intruth, my risks are just the same as they were before diagnosis. I

risk my life every day in my car. You never truly know when or howdeath can occur. But I guess the difference is that now I have atangible threat, not a hypothetical one. Of course, as a mother, it issickening to think of leaving young children. I just need to find a

way to change my thought patterns and visualize years and years ofliving with PSC. So...no life insurance huh? I hadn't thought of that.

>> Been there, done that. Still do on occasion. I think Ian hit thenail on > the head...> > C.> > > -- Ian Cribb P.Eng.

[Guest guest]

shawnee,

sorry to give you something else to think about. Maybe it's a blessing to be not able to get life insurance. It seems like such suckers bet, paying all those premiums betting you'll die before you've paid enough for them to make money.

I'm glad you know where you will be going after you die. But also trust in the Lord to look after those you leave behind, He's trustworthy.

Ian (52) PSC 89

Thanks. I am mostly NOT afraid of dying. I know where I am going, andI know I will be happy there. As a woman of faith, I have theafterlife buttoned up. This is why I am so surprised at myself. Intruth, my risks are just the same as they were before diagnosis. I

risk my life every day in my car. You never truly know when or howdeath can occur. But I guess the difference is that now I have atangible threat, not a hypothetical one. Of course, as a mother, it issickening to think of leaving young children. I just need to find a

way to change my thought patterns and visualize years and years ofliving with PSC. So...no life insurance huh? I hadn't thought of that.

>> Been there, done that. Still do on occasion. I think Ian hit thenail on > the head...> > C.> > > -- Ian Cribb P.Eng.

[Guest guest]

shawnee,

sorry to give you something else to think about. Maybe it's a blessing to be not able to get life insurance. It seems like such suckers bet, paying all those premiums betting you'll die before you've paid enough for them to make money.

I'm glad you know where you will be going after you die. But also trust in the Lord to look after those you leave behind, He's trustworthy.

Ian (52) PSC 89

Thanks. I am mostly NOT afraid of dying. I know where I am going, andI know I will be happy there. As a woman of faith, I have theafterlife buttoned up. This is why I am so surprised at myself. Intruth, my risks are just the same as they were before diagnosis. I

risk my life every day in my car. You never truly know when or howdeath can occur. But I guess the difference is that now I have atangible threat, not a hypothetical one. Of course, as a mother, it issickening to think of leaving young children. I just need to find a

way to change my thought patterns and visualize years and years ofliving with PSC. So...no life insurance huh? I hadn't thought of that.

>> Been there, done that. Still do on occasion. I think Ian hit thenail on > the head...> > C.> > > -- Ian Cribb P.Eng.

[Guest guest]

What nice thoughts, thank you!

I just heard an interview with Amy Grant on the radio, who was talking

about a terminally ill relative. He had said, while waiting for news

from his doctor, " what's the worst they can do, threaten me with

Heaven? " Just what I needed to hear.

>

>

> I am a survivor of two breast cancers and a mother of two when being

> told that I probably would never have children. I can only say that

> you need to find a passion that consumes you to replace your fears

> with joy.Feeling grateful everyday also will change your perspective

> as sometimes we become too introspective.If you can, volunteer to help

> others and take your mind away from something that may never

> happen.The stress you give yourself can change every cell in your body

> as so can contentment.Choose joy and live!

> Dora

>

[Guest guest]

I think we can all take comfort in the fact that we have some of the best doctors in the world monitoring us. They are always looking for problems and if they don't, we can remind them. Of coarse it is up to us to ask about tests and to remind them when you think you need another colonoscopy. I've never known a G.I. to turn down a chance to play with an endoscope. Worrying about cancer never prevented it.

Take Care

MizKit

McCain or Obama? Stay up to date on the latest from the campaign trail with

AOL News.

[Guest guest]

I think we can all take comfort in the fact that we have some of the best doctors in the world monitoring us. They are always looking for problems and if they don't, we can remind them. Of coarse it is up to us to ask about tests and to remind them when you think you need another colonoscopy. I've never known a G.I. to turn down a chance to play with an endoscope. Worrying about cancer never prevented it.

Take Care

MizKit

McCain or Obama? Stay up to date on the latest from the campaign trail with

AOL News.

[Guest guest]

I think we can all take comfort in the fact that we have some of the best doctors in the world monitoring us. They are always looking for problems and if they don't, we can remind them. Of coarse it is up to us to ask about tests and to remind them when you think you need another colonoscopy. I've never known a G.I. to turn down a chance to play with an endoscope. Worrying about cancer never prevented it.

Take Care

MizKit

McCain or Obama? Stay up to date on the latest from the campaign trail with

AOL News.

[Guest guest]

>

> I know my chances, I know statistics, all of that, but I can not get

> CCa off the brain. Maybe it is because I am newly diagnosed? I am such

> a glass-half-full person, and I am driving myself a little nuts here

> with the fear of getting cancer and dying from it. Am I the only one?

>

> ee

> paranoid/PSC 09/08, CD 2000

>

This is my first post on the message board. I was just diagnosed a

couple of months ago and am going through the same thing. I am not a

religious person (with complete respect to those who are). It helps me

to think of the statistics in reverse. Starting out, I obsessed over

the 15-20% get cancer thing, for some reason, thinking that 80-85%

don't get it feels better (even though I kow it is just

psychological). Really, none of us did anything to get this, it is

just the " roulette " wheel in life, so we just have to move on and deal

with the hand we are dealt (exhausting all possible casino

references). Take a break from the message board every once in a

while, I have been checking it for about a month and there are many sad

stories, but also positive ones. Just try to take this time to

reassess your priorities in life and keep on chugging along : )

[Guest guest]

>

> I know my chances, I know statistics, all of that, but I can not get

> CCa off the brain. Maybe it is because I am newly diagnosed? I am such

> a glass-half-full person, and I am driving myself a little nuts here

> with the fear of getting cancer and dying from it. Am I the only one?

>

> ee

> paranoid/PSC 09/08, CD 2000

>

This is my first post on the message board. I was just diagnosed a

couple of months ago and am going through the same thing. I am not a

religious person (with complete respect to those who are). It helps me

to think of the statistics in reverse. Starting out, I obsessed over

the 15-20% get cancer thing, for some reason, thinking that 80-85%

don't get it feels better (even though I kow it is just

psychological). Really, none of us did anything to get this, it is

just the " roulette " wheel in life, so we just have to move on and deal

with the hand we are dealt (exhausting all possible casino

references). Take a break from the message board every once in a

while, I have been checking it for about a month and there are many sad

stories, but also positive ones. Just try to take this time to

reassess your priorities in life and keep on chugging along : )

[Guest guest]

Matt,

Welcome to the group, sorry about your diagnosis. I also find it helpful to look at statistics in reverse and/or covert them to fractional numbers. Once before my diagnosis I was in a hospital for a procedure to determine what was wrong with me. The doctor that was doing the procedure flippantly stated there was a 20% chance of complications that might result in death. While I quickly figured out from those odds that 1 in 5 people would see tomorrow. I wasn't given those figures before, hadn't prepared for that possibility when I had last seen my wife that morning, so I stopped the procedure right there on the spot. I went through with the procedure at a later date. That same doctor at this later date had reduce his odds of complications to 5% (I surmise that this time he was taking my young age, 33, and general health into consideration). But enough about my story.

As they make medical advances those odds that they quote are going down (getting better) and can be beaten.

Take courage both you and ee.

Ian (52) PSC 89

>> I know my chances, I know statistics, all of that, but I can not get> CCa off the brain. Maybe it is because I am newly diagnosed? I am such> a glass-half-full person, and I am driving myself a little nuts here

> with the fear of getting cancer and dying from it. Am I the only one? > > ee> paranoid/PSC 09/08, CD 2000>This is my first post on the message board. I was just diagnosed a

couple of months ago and am going through the same thing. I am not a religious person (with complete respect to those who are). It helps me to think of the statistics in reverse. Starting out, I obsessed over

the 15-20% get cancer thing, for some reason, thinking that 80-85% don't get it feels better (even though I kow it is just psychological). Really, none of us did anything to get this, it is just the " roulette " wheel in life, so we just have to move on and deal

with the hand we are dealt (exhausting all possible casino references). Take a break from the message board every once in a while, I have been checking it for about a month and there are many sad stories, but also positive ones. Just try to take this time to

reassess your priorities in life and keep on chugging along : ) -- Ian Cribb P.Eng.

[Guest guest]

Matt,

Welcome to the group, sorry about your diagnosis. I also find it helpful to look at statistics in reverse and/or covert them to fractional numbers. Once before my diagnosis I was in a hospital for a procedure to determine what was wrong with me. The doctor that was doing the procedure flippantly stated there was a 20% chance of complications that might result in death. While I quickly figured out from those odds that 1 in 5 people would see tomorrow. I wasn't given those figures before, hadn't prepared for that possibility when I had last seen my wife that morning, so I stopped the procedure right there on the spot. I went through with the procedure at a later date. That same doctor at this later date had reduce his odds of complications to 5% (I surmise that this time he was taking my young age, 33, and general health into consideration). But enough about my story.

As they make medical advances those odds that they quote are going down (getting better) and can be beaten.

Take courage both you and ee.

Ian (52) PSC 89

>> I know my chances, I know statistics, all of that, but I can not get> CCa off the brain. Maybe it is because I am newly diagnosed? I am such> a glass-half-full person, and I am driving myself a little nuts here

> with the fear of getting cancer and dying from it. Am I the only one? > > ee> paranoid/PSC 09/08, CD 2000>This is my first post on the message board. I was just diagnosed a

couple of months ago and am going through the same thing. I am not a religious person (with complete respect to those who are). It helps me to think of the statistics in reverse. Starting out, I obsessed over

the 15-20% get cancer thing, for some reason, thinking that 80-85% don't get it feels better (even though I kow it is just psychological). Really, none of us did anything to get this, it is just the " roulette " wheel in life, so we just have to move on and deal

with the hand we are dealt (exhausting all possible casino references). Take a break from the message board every once in a while, I have been checking it for about a month and there are many sad stories, but also positive ones. Just try to take this time to

reassess your priorities in life and keep on chugging along : ) -- Ian Cribb P.Eng.

[Guest guest]

I was told only 1% of those who have UC end up with

PSC. I was one of those lucky 1% people.

But, statistics are just statistics. My family

history was riddled with, you only have this much

time, or they won't make it thru, or he should have

died based on our statistics.......but what statistics

don't factor in is your Attitude and Determination to

carry on. My family are all fighters. My brother was

told more than 50 times he wouldn't make it, had even

died clinically and because his directives were for

full CODE, he was brought back dozens and dozens of

times. My mom battled breast cancer and was a fighter

and was clean for 7 years....and then she got bone

cancer....and fought for 4 years and then one

day...she decided she didn't want to live and

announced she was ready to go and she went 'on the

date' she told us she would. She willed herself to

go.

Cindy Baudoux-Northrup

[Guest guest]

I was told only 1% of those who have UC end up with

PSC. I was one of those lucky 1% people.

But, statistics are just statistics. My family

history was riddled with, you only have this much

time, or they won't make it thru, or he should have

died based on our statistics.......but what statistics

don't factor in is your Attitude and Determination to

carry on. My family are all fighters. My brother was

told more than 50 times he wouldn't make it, had even

died clinically and because his directives were for

full CODE, he was brought back dozens and dozens of

times. My mom battled breast cancer and was a fighter

and was clean for 7 years....and then she got bone

cancer....and fought for 4 years and then one

day...she decided she didn't want to live and

announced she was ready to go and she went 'on the

date' she told us she would. She willed herself to

go.

Cindy Baudoux-Northrup

[Guest guest]

True, all of it! Here I am, a female with Crohn's, not a male with UC,

so I sort of understand where you are coming from. However, your

family sounds amazing, those are some incredible stories!

I am also encouraged by the advances being made every day in the

diagnosis and treatment of CCa. They are catching it earlier more

often, and treating it more effectively every day. So perhaps, one

fine day, that 1.5% increase in odds we get each year could be

counterbalanced by breakthroughs and successes!

ee

>

> I was told only 1% of those who have UC end up with

> PSC. I was one of those lucky 1% people.

>

[Guest guest]

True, all of it! Here I am, a female with Crohn's, not a male with UC,

so I sort of understand where you are coming from. However, your

family sounds amazing, those are some incredible stories!

I am also encouraged by the advances being made every day in the

diagnosis and treatment of CCa. They are catching it earlier more

often, and treating it more effectively every day. So perhaps, one

fine day, that 1.5% increase in odds we get each year could be

counterbalanced by breakthroughs and successes!

ee

>

> I was told only 1% of those who have UC end up with

> PSC. I was one of those lucky 1% people.

>

[Guest guest]

I read the post about only 1 % who have UC do not get PSC. Well my daughter who is 5 has UC and PSC and she has been on the diet for 16 days. Anyone else have a liver disease along with their digestion problems?Plan your next getaway with AOL Travel. Check out Today's Hot 5 Travel Deals!

[Guest guest]

I read the post about only 1 % who have UC do not get PSC. Well my daughter who is 5 has UC and PSC and she has been on the diet for 16 days. Anyone else have a liver disease along with their digestion problems?Plan your next getaway with AOL Travel. Check out Today's Hot 5 Travel Deals!