Re: polyarteritis/Gwynn

[Guest guest]

Dear Gwynn;

I've been thinking of you and Cheryl, and I hope that all went well

today. I feel quite awkward that I do not have any first hand

experience with polyarteritis, and so can't provide much assistance.

I do hope that the mystery is resolved for you today, and that a

therapy such as corticosteroids can be started soon (I have read that

this can be very helpful for polyarteritis!).

Sorry that the hepatitis B link turned out to be irrelevant, but I

was very interested in the meningitis B vaccination link that you

described. My son had meningitis when he was 6 mo old, and we thought

we were going to lose him back then. And he did have a very bad

reaction to a DPT shot a month or so before the meningitis incident.

I guess then that Cheryl shares several things in common with my son,

including young age at PSC & UC diagnosis, bad reactions to

vaccinations, and both probably now have antibodies to hepatitis B

and meningitis. Often we can only share a little thread of something

that we have in common, and a few words of comfort that we understand

what you are going through. I wish you strength and courage during

this rough time.

Best regards,

Dave

(father of (23); PSC 07/03; UC 08/03)