confused!!!!

[Guest guest]

hi gang,

i know its been a while since a/one last heard from me, so for all

the b/days, anniversarys or a/thing special i missed out on, i hope

it was all u would of wished for. Even though i am a day late happy

4th to all.

well......i think u folks would rememeber that i had to go to

barbados for a dx, since they could not find what was wrong with me

here at home. So....... i just came back about a week now and i

really dont know what i have now......my doctor said that she is

confused (well can u imagine me lol)

i went back to bar. in the 1st place cause i was feeling like shit

and my six months on the same meds was running low. She said my

tests results was good except for my esr...still high and i am very

anemic, i am stll getting pains all over my body and my ankles were

swollen a bit...generally feeling like i was beaten and exhausted,

and oh! the headaches...but now she said she is not sure if i have

lupus...my 1st ana test was negative and she did not repeat it. She

suggested that maybe i have sickle cell and ask me to go see another

doc. and do that test....(i sincerely doubt that is my problem since

it is easy to dx and would of been done right here at home, since i

saw about five doc. before i went to bar.)

However before i left bar. i was having nosebleeds and some severe

headaches, i call her and ask if maybe i was getting a flare...her

response was that " nose bleeds and lupus is not closely

related " ...so here i am at home without any dx or meds,still feeling

exhausted in addition to other stuff and i flat out refuse to go see

any doctor to explore the avenue of sickle cell.

I mean its one thing to have s/thing but what do u do when u dont

know period what it is....i say i will leave it alone and w/ever it

is will present itself soon enough....i do hope that by then it not

too late lol.

a/how folks just though i would fill u all in.

sincerely sami.