RE: I checked out IU transplant center

[Guest guest]

I think I should move to Indiana.

Good luck today!

Chaim Boermeester, Israel

From: [mailto: ] On Behalf Of Bobbi

Sent: Wednesday, October 22, 2008

14:06

To:

Subject: I checked

out IU transplant center

So I spent some time checking out the IU transplant

center online yesterday. Since we're in

Indiana,

that's where my hubby will have his transplant when the time comes. I was

SHOCKED and AMAZED to hear that the typical wait time at IU is, are you ready

for this? 18-

20 days! I about fell off my chair. That is amazing!

Anyway, we see his hepatologist today at 10:50. Keep us in your thoughts &

prayers and I will

update everyone later today.

[Guest guest]

I had my transplant from there in Sep of '06 and am doing great. They have a wonderful staff and I was out out the hospital 7 days after the operation.

Psc Sept 11,2001

Subject: RE: I checked out IU transplant centerTo: Date: Wednesday, October 22, 2008, 8:37 AM

I think I should move to Indiana .

Good luck today!

Chaim Boermeester, Israel

From: @ yahoogroups. com [mailto: @ yahoogroups. com ] On Behalf Of BobbiSent: Wednesday, October 22, 2008 14:06To: @ yahoogroups. comSubject: I checked out IU transplant center

So I spent some time checking out the IU transplant center online yesterday. Since we're in Indiana , that's where my hubby will have his transplant when the time comes. I was SHOCKED and AMAZED to hear that the typical wait time at IU is, are you ready for this? 18-20 days! I about fell off my chair. That is amazing! Anyway, we see his hepatologist today at 10:50. Keep us in your thoughts & prayers and I will update everyone later today.

[Guest guest]

We had Chris's appointment today. It went pretty much how we expected. We didn't

get to

see his actual doctor because he was on call seeing patients who were admitted

to the

hospital. Anyway, in the words of the doctor, his labs look like " crap. " Nice

when a doctor

tells you that huh? LOL His creatinine is good but his INR isn't. His billirubin

had actually

come down some. He had more blood work today so we'll know early next week how

it

was today. He also had CT scan to check for varicies. The dr we saw said he

suspected

that his MELD score would be pretty high but didn't really give us any

indication of what it

might be.

The next plan of action is to see the surgeon who will do his colectomy on

November 12.

He will look at the slides from his most recent colonoscopy and decide if

colectomy is the

best way to go. The dr we saw today said given his Crohn's/colitis PLUS psc,

that is likely

the best route to take. They want to get that taken care of and have him healed

BEFORE we

get to listing him. And right now he has enough liver function that it's not

crucial to list

him immediately.

We will go back to the transplant center a few weeks after that to meet with the

transplant

surgeons. I guess at that point they'll have a better idea of where to go next.

From the

sounds of things, we are in for a bumpy couple of years but we're both at a

point of just

wanting him healthy. I told him today I'd like to have a baby before I'm 40.

I'm 34 and he

will be 34 in December. So we have about 5 1/2 years to remove his colon, get

him a new

liver, get him all healed up and get me pregnant. Not too much to ask, right?

We went to visit a friend who is a patient on the transplant floor right now. He

had a

transplant 4 years ago and actually I met his wife right here on this lovely psc

support

group. I don't know if they're still members here or not. Anyway, his Prograf &

Coumadin

levels were off the charts and he was severely dehydrated. Hopefully they'll get

it all

figured out and get him on to a path to better health. If you wouldn't mind,

keeping them

in your prayers, I'd appreciate it. Thanks!

[Guest guest]

We had Chris's appointment today. It went pretty much how we expected. We didn't

get to

see his actual doctor because he was on call seeing patients who were admitted

to the

hospital. Anyway, in the words of the doctor, his labs look like " crap. " Nice

when a doctor

tells you that huh? LOL His creatinine is good but his INR isn't. His billirubin

had actually

come down some. He had more blood work today so we'll know early next week how

it

was today. He also had CT scan to check for varicies. The dr we saw said he

suspected

that his MELD score would be pretty high but didn't really give us any

indication of what it

might be.

The next plan of action is to see the surgeon who will do his colectomy on

November 12.

He will look at the slides from his most recent colonoscopy and decide if

colectomy is the

best way to go. The dr we saw today said given his Crohn's/colitis PLUS psc,

that is likely

the best route to take. They want to get that taken care of and have him healed

BEFORE we

get to listing him. And right now he has enough liver function that it's not

crucial to list

him immediately.

We will go back to the transplant center a few weeks after that to meet with the

transplant

surgeons. I guess at that point they'll have a better idea of where to go next.

From the

sounds of things, we are in for a bumpy couple of years but we're both at a

point of just

wanting him healthy. I told him today I'd like to have a baby before I'm 40.

I'm 34 and he

will be 34 in December. So we have about 5 1/2 years to remove his colon, get

him a new

liver, get him all healed up and get me pregnant. Not too much to ask, right?

We went to visit a friend who is a patient on the transplant floor right now. He

had a

transplant 4 years ago and actually I met his wife right here on this lovely psc

support

group. I don't know if they're still members here or not. Anyway, his Prograf &

Coumadin

levels were off the charts and he was severely dehydrated. Hopefully they'll get

it all

figured out and get him on to a path to better health. If you wouldn't mind,

keeping them

in your prayers, I'd appreciate it. Thanks!

[Guest guest]

We had Chris's appointment today. It went pretty much how we expected. We didn't

get to

see his actual doctor because he was on call seeing patients who were admitted

to the

hospital. Anyway, in the words of the doctor, his labs look like " crap. " Nice

when a doctor

tells you that huh? LOL His creatinine is good but his INR isn't. His billirubin

had actually

come down some. He had more blood work today so we'll know early next week how

it

was today. He also had CT scan to check for varicies. The dr we saw said he

suspected

that his MELD score would be pretty high but didn't really give us any

indication of what it

might be.

The next plan of action is to see the surgeon who will do his colectomy on

November 12.

He will look at the slides from his most recent colonoscopy and decide if

colectomy is the

best way to go. The dr we saw today said given his Crohn's/colitis PLUS psc,

that is likely

the best route to take. They want to get that taken care of and have him healed

BEFORE we

get to listing him. And right now he has enough liver function that it's not

crucial to list

him immediately.

We will go back to the transplant center a few weeks after that to meet with the

transplant

surgeons. I guess at that point they'll have a better idea of where to go next.

From the

sounds of things, we are in for a bumpy couple of years but we're both at a

point of just

wanting him healthy. I told him today I'd like to have a baby before I'm 40.

I'm 34 and he

will be 34 in December. So we have about 5 1/2 years to remove his colon, get

him a new

liver, get him all healed up and get me pregnant. Not too much to ask, right?

We went to visit a friend who is a patient on the transplant floor right now. He

had a

transplant 4 years ago and actually I met his wife right here on this lovely psc

support

group. I don't know if they're still members here or not. Anyway, his Prograf &

Coumadin

levels were off the charts and he was severely dehydrated. Hopefully they'll get

it all

figured out and get him on to a path to better health. If you wouldn't mind,

keeping them

in your prayers, I'd appreciate it. Thanks!