Re: Possible carcinoma and transplant?

[Guest guest]

Gene and , thank you both for responding! I feel much better

knowing there are others here who have been through this. Perhaps,

might the folks who have been through the protocol and transplant

already hang out more in the transplant group?

, I've started reading your blog, and intend to read the whole

thing now--sounds exACTly like my situation! Caught in the same

manner, same stage, same protocol, etc. Only thing that sounds

different so far is the brachytherapy: I'm having two three-week

cycles of chemo first, before my five weeks of chemo/radiation and

oral chemo, and not having the brachytherapy. I just had my first

round of chemo for the first set of cycles last Wednesday, and it

wasn't nearly as bad as I expected it to be. I'm sure I'll have lots

of questions for you all as I follow along with the blog. What a

great resource, thank you for posting the link!

Genevieve

UC 1983, J-Pouch 1999, PSC 12/07, CCA 10/08

>

> Holly and Geneveive,

>

> was transplanted in May after going through all the

radiation,

> chemo, staging laparotomy hell and is doing great. They had found

> cancer cells in a brushing, but he did not have any tumors. We

feel

> quite blessed.

>

> I kept a blog at bbfranson.blogspot.com if you want something to

> compare your experiences to, or you can email me at bbfranson@...

> if you have any questions or just need to vent. There is also a

great

> support group at cholangiocarcinoma.org for patients and

caretakers

> dealing with cca.

>

> My prayers are with you.

>

>

>