Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Again I cannot say enough about IV Glutathione. It completely took away my third stage son's fatigue. If you resarch it you can see that it is used for CFS....and many other diseases. We personnally will never do without it again it was that much of a life change for him! Marna and Wesley PSC/UC for almost 13 years. He will soon be 14 > > To Debbie in Atlanta from in Atlanta: > Hi y'all! > > Re: fatigue. Interesting about the higher Urso dose helping your fatigue > levels. Since Fred's dropped some of his Actigal (same as Urso) dose, > he's definitely been more tired, but I'm actually not sure if it's > coincidental or not. (Dr. Lindor of the Mayo Clinic recently came to the > conclusion after a few years' study that high dose Urso was not near > as helpful in treating PSC as he/others thought, and it may possibly do > harm. Since Dr. Lindor's announcement, many PSCers have lowered their > dosages.Search the PSC archives for more info.) > > Regardless, I'd love to find an energy booster for Fred. He tried > Provigil for his ADHD years ago, with no success in helping him focus. > This was prior to him having the PSC diagnosis.I may suggest he try it > again, since someone else on the board mentioned it for energy. Fred > uses any little energy he does have playing Sudoku. I got him a Sudoku a > Day 2009 Calendar for Christmas, and he's well into April. I expect > Christmas, for him, will be here in a month or two. > > > Wife of Fred, PSC, 03/04, UC, 03/06, SUDOKU Black Belt, 01/09 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 , If the IV GLUTATHIONE does not work out, a low energy activity is facebook. See how many PSC contacts you can make (I've got 83 so far). Ian Thank you Marna - will definitely check into that! Need to do it soon, as I don't think the 2010 Soduko Calendar will be out for awhile and Fred needs energy to try other activities! -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
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