Re: Sunni

[Guest guest]

Hmmm did I just post something about you stressing your foot and toe? It sounds like your whole body should be stressed. I guess I am fortunate for the most part. My family seems understanding but still expect me to do some things. I guess because there is no dx. Anyway, most of the time if I just don't feel up to doing something, I don't! If someone doesn't like it, well too damn bad. I'm still working full time and by the end of the week I am too exhausted to even think.

barb

sunnione4 wrote: Thank you for this poem. I really needed it today. Several family members have turned against me because I cannot get well. They expect me to do for them like I try to do even while ill, but I am fighting pericarditis right now for the second time and simply can't. When I finally broke down and cried out of pain and depression that I had been holding in for months, one told me I was having a "pity party" and my own mother told me that I should "buck up" and that I don't have any problems.Sigh. I am now adding a tranquilizer to my nighttime bag of pills as I just don't care to think about it anymore. That is the hardest part for me. I gave them so much when I was well, and now, due to illness, I am worthless unless I can still do for them.Thanks for listening, fellow lupies. You can send me your bills for your psychiatric

services. I can't PAY them.. but you can send them.. lolSunny> LUPUS> What's it like to live with pain > Each and every day?> I eat right and take my meds > But it never goes away.> > Hipaches, headaches, heartaches,> Back and neck, hands and feet> Friends have a hard time accepting> As I'm always dressed so nice and neat.> > I used to be a "ball of fire"> Constantly on the go > They're tired of hearing my troubles now > Always a "tale of woe".> > People say "but you look fine"> (They haven't walked in my shoes)> Stating "Cheer up and count your blessings" > When I'm depressed and "sing the blues".> > No one knows what it's like> Til they've experienced a similar fate. > Will my lupus ever go into remission? > Guess

all I can do is pray and wait. > > I'm tired of worrying > And of not feeling my best > I'm anxious over money > And want to have more zest.> > I, who took such good care of so many> Have no one to care for me, > But I believe life is meant to be> Love and joy and tranquility.> > I have a love and appreciation of life> Because adversity came my way> It made me a stronger person> And I cherish each and every day.> ....Carolyn Laskey> > Deanna> > LUPUS Serenity Prayer> Lord, grant me the serenity to accept the things I cannot> change, the courage to change the things I can, and the> wisdom to hide the bodies of doctors I shot when they said,> You're perfectly healthy, it's all in your head"> > LUPUS Support Group...> http://groups.yahoo.com/group/LUPIES> > LUPIES Store...> http://www.cafepress.com/thelupies> > LUPIES Web Page...> http://www.geocities.com/rion_trainer/lupusgroup.html"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies __________________________________________________