Guest guest Posted January 12, 2009 Report Share Posted January 12, 2009 Hi everyone, I posted for a while a few months ago when I was first diagnosed, but recently I've gotten incredibly busy with work and the kids and so have been keeping up by reading the email posts. You've all been in my thoughts! Lately I've had terrible pain in my legs. It's especially bad at night when I'm trying to fall asleep or when I'm otherwise not moving (like driving). I don't think it's " restless leg syndrom " because it doesn't feel itchy, though moving my legs or massaging them does seem to make it better. It feels more like my legs are sore as if I've been exercising (which I haven't!). I had this kind of thing twice in the past - once about eight years ago, when I was first diagnosed with UC and was also having liver problems (enzymes off the charts), though I wasn't diagnosed with PSC at the time. I think it went away once they gave me all the meds for the UC - like prednisone, Imuran, Pentasa, Cypro (they really loaded me up then). The second time I had it was recently when I started taking Asacol (I was only on Imuran at the time, now I'm on both). It was a side effect that eventually went away. The thing is that I've been on Asacol for about 7 months now and actually I ran out so I haven't been taking it for a couple of days, which is exactly when it's gotten worse. I probably have been doing a little more walking than usual in the last few days (taking stairs and such in an effort to be healthy), but nothing extreme. Do you all have experience with this kind of pain? Is it a sign of some kind of vitamin deficiency or UC inflamation or can it be PSC- related? Is it a separate issue? Could it be restless leg after all? I'm so disturbed because I can't sleep! Thanks, Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2009 Report Share Posted January 13, 2009 > > > Hi Ruth, > > I get leg pains from time to time, even when not exercising. It's sometimes a prelude to something being wrong. I drink extra water, as it'll be worse if you're dehydrated. I also take pain medicine for it, especially at night, so I can sleep. I think it's PSC related, but it's not a " bad " symptom like jaundice of ascites. I don't think this means you're near liver failure. > > Marie > > > I've been having leg pains also. The pain is mainly in the upper thigh. My doctor did an MRI because I have stenosis and have problems before. I just got the report from the MRI and she says there is nothing there that would cause the pain. The leg pain gets worse as the day goes on. I walk each day and if I walk too long the next day the pain is worse. I don't know if its related to UC or PSC but so I 'm not sure what should do. Ellen > > > > > To: > From: rblatt@... > Date: Tue, 13 Jan 2009 06:53:24 +0000 > Subject: Leg pain > > > > > > > > > > > > > > > > > > > > > Hi everyone, I posted for a while a few months ago when I was first > > diagnosed, but recently I've gotten incredibly busy with work and the > > kids and so have been keeping up by reading the email posts. You've > > all been in my thoughts! > > > > Lately I've had terrible pain in my legs. It's especially bad at > > night when I'm trying to fall asleep or when I'm otherwise not moving > > (like driving). I don't think it's " restless leg syndrom " because it > > doesn't feel itchy, though moving my legs or massaging them does seem > > to make it better. It feels more like my legs are sore as if I've > > been exercising (which I haven't!). > > > > I had this kind of thing twice in the past - once about eight years > > ago, when I was first diagnosed with UC and was also having liver > > problems (enzymes off the charts), though I wasn't diagnosed with PSC > > at the time. I think it went away once they gave me all the meds for > > the UC - like prednisone, Imuran, Pentasa, Cypro (they really loaded > > me up then). The second time I had it was recently when I started > > taking Asacol (I was only on Imuran at the time, now I'm on both). It > > was a side effect that eventually went away. The thing is that I've > > been on Asacol for about 7 months now and actually I ran out so I > > haven't been taking it for a couple of days, which is exactly when > > it's gotten worse. I probably have been doing a little more walking > > than usual in the last few days (taking stairs and such in an effort > > to be healthy), but nothing extreme. > > > > Do you all have experience with this kind of pain? Is it a sign of > > some kind of vitamin deficiency or UC inflamation or can it be PSC- > > related? Is it a separate issue? Could it be restless leg after all? > > I'm so disturbed because I can't sleep! > > > > Thanks, > > Ruth > > > > > > > > > > > > > > > > > > > > _________________________________________________________________ > Windows Live™: Keep your life in sync. > http://windowslive.com/explore?ocid=TXT_TAGLM_WL_t1_allup_explore_012009 > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.