Re: Re: Vitamin D follow up question

[Guest guest]

I remember that during the summer I did a good three hours of outside activities being well tanned I was sure that I was getting enough vit d. My ND did a pretty comprehensive blood test and found that my vitamin d was half the norm range. I started taking a vit d supplement. I did not do a repeat test but as of yet I did not feel any change. ShaulPSC UCSent via BlackBerry by AT&TFrom: " " Date: Sun, 28 Dec 2008 19:40:20 -0000To: < >Subject: Re: Vitamin D follow up question Hi ee;It's recommended that patients with cholestatic liver diseases like primary biliary cirrhosis and primary sclerosing cholangitis do get checked for fat-soluble vitamin deficiencies such as vitamin D and A, and then take supplements to correct any deficiencies. But you have to be very careful not to over-dose. A good guide is this article:http://www.healthsystem.virginia.edu/internet/digestive-health/nutritionarticles/april2006.pdfBest regards,Dave (father of (23); PSC 07/03; UC 08/03)> >> > What is your vitamin D level? If normal, 400 units is the current> "typical"> >>

[Guest guest]

I remember that during the summer I did a good three hours of outside activities being well tanned I was sure that I was getting enough vit d. My ND did a pretty comprehensive blood test and found that my vitamin d was half the norm range. I started taking a vit d supplement. I did not do a repeat test but as of yet I did not feel any change. ShaulPSC UCSent via BlackBerry by AT&TFrom: " " Date: Sun, 28 Dec 2008 19:40:20 -0000To: < >Subject: Re: Vitamin D follow up question Hi ee;It's recommended that patients with cholestatic liver diseases like primary biliary cirrhosis and primary sclerosing cholangitis do get checked for fat-soluble vitamin deficiencies such as vitamin D and A, and then take supplements to correct any deficiencies. But you have to be very careful not to over-dose. A good guide is this article:http://www.healthsystem.virginia.edu/internet/digestive-health/nutritionarticles/april2006.pdfBest regards,Dave (father of (23); PSC 07/03; UC 08/03)> >> > What is your vitamin D level? If normal, 400 units is the current> "typical"> >>

[Guest guest]

I remember that during the summer I did a good three hours of outside activities being well tanned I was sure that I was getting enough vit d. My ND did a pretty comprehensive blood test and found that my vitamin d was half the norm range. I started taking a vit d supplement. I did not do a repeat test but as of yet I did not feel any change. ShaulPSC UCSent via BlackBerry by AT&TFrom: " " Date: Sun, 28 Dec 2008 19:40:20 -0000To: < >Subject: Re: Vitamin D follow up question Hi ee;It's recommended that patients with cholestatic liver diseases like primary biliary cirrhosis and primary sclerosing cholangitis do get checked for fat-soluble vitamin deficiencies such as vitamin D and A, and then take supplements to correct any deficiencies. But you have to be very careful not to over-dose. A good guide is this article:http://www.healthsystem.virginia.edu/internet/digestive-health/nutritionarticles/april2006.pdfBest regards,Dave (father of (23); PSC 07/03; UC 08/03)> >> > What is your vitamin D level? If normal, 400 units is the current> "typical"> >>

[Guest guest]

CholangitisSuprt@... wrote:

>

> >I remember that during the summer I did a good three hours of outside

> >activities being well tanned I was sure that I was getting enough vit

> d.

>

That sounds sort of similar to my experience. I'd been outside a lot

and had actually been taking about 2000 IU of vit D daily, but I still

tested very low. They put me on 50,000 IU once a week for a while, and

that got me back to normal. Now I take 3,000 to 4,000 IU a day, and

tested in the normal range with that dosage. Of course you should get

tested before taking that high of doses, but some people (like me) do

need them.

athan

[Guest guest]

CholangitisSuprt@... wrote:

>

> >I remember that during the summer I did a good three hours of outside

> >activities being well tanned I was sure that I was getting enough vit

> d.

>

That sounds sort of similar to my experience. I'd been outside a lot

and had actually been taking about 2000 IU of vit D daily, but I still

tested very low. They put me on 50,000 IU once a week for a while, and

that got me back to normal. Now I take 3,000 to 4,000 IU a day, and

tested in the normal range with that dosage. Of course you should get

tested before taking that high of doses, but some people (like me) do

need them.

athan

[Guest guest]

CholangitisSuprt@... wrote:

>

> >I remember that during the summer I did a good three hours of outside

> >activities being well tanned I was sure that I was getting enough vit

> d.

>

That sounds sort of similar to my experience. I'd been outside a lot

and had actually been taking about 2000 IU of vit D daily, but I still

tested very low. They put me on 50,000 IU once a week for a while, and

that got me back to normal. Now I take 3,000 to 4,000 IU a day, and

tested in the normal range with that dosage. Of course you should get

tested before taking that high of doses, but some people (like me) do

need them.

athan

[Guest guest]

I better get tested soon againShaulPSC UCSent via BlackBerry by AT&TFrom: athan Date: Sun, 28 Dec 2008 20:17:22 -0500To: < >Subject: Re: Re: Vitamin D follow up question CholangitisSuprt (AT) aol (DOT) com wrote: > > >I remember that during the summer I did a good three hours of outside > >activities being well tanned I was sure that I was getting enough vit > d. > That sounds sort of similar to my experience. I'd been outside a lot and had actually been taking about 2000 IU of vit D daily, but I still tested very low. They put me on 50,000 IU once a week for a while, and that got me back to normal. Now I take 3,000 to 4,000 IU a day, and tested in the normal range with that dosage. Of course you should get tested before taking that high of doses, but some people (like me) do need them. athan

[Guest guest]

I better get tested soon againShaulPSC UCSent via BlackBerry by AT&TFrom: athan Date: Sun, 28 Dec 2008 20:17:22 -0500To: < >Subject: Re: Re: Vitamin D follow up question CholangitisSuprt (AT) aol (DOT) com wrote: > > >I remember that during the summer I did a good three hours of outside > >activities being well tanned I was sure that I was getting enough vit > d. > That sounds sort of similar to my experience. I'd been outside a lot and had actually been taking about 2000 IU of vit D daily, but I still tested very low. They put me on 50,000 IU once a week for a while, and that got me back to normal. Now I take 3,000 to 4,000 IU a day, and tested in the normal range with that dosage. Of course you should get tested before taking that high of doses, but some people (like me) do need them. athan

[Guest guest]

I better get tested soon againShaulPSC UCSent via BlackBerry by AT&TFrom: athan Date: Sun, 28 Dec 2008 20:17:22 -0500To: < >Subject: Re: Re: Vitamin D follow up question CholangitisSuprt (AT) aol (DOT) com wrote: > > >I remember that during the summer I did a good three hours of outside > >activities being well tanned I was sure that I was getting enough vit > d. > That sounds sort of similar to my experience. I'd been outside a lot and had actually been taking about 2000 IU of vit D daily, but I still tested very low. They put me on 50,000 IU once a week for a while, and that got me back to normal. Now I take 3,000 to 4,000 IU a day, and tested in the normal range with that dosage. Of course you should get tested before taking that high of doses, but some people (like me) do need them. athan

[Guest guest]

ee

Around seven years ago, I asked my hepatologist about testing for vitamin D. At that time he quickly responded with a not necessary and dismissed the contention. Last year I was diagnosed with osteopenia. Therefore test and take supplementation before they want to prescribe fosamax.

Phil

PSC 93

To: Sent: Sunday, December 28, 2008 11:40:20 AMSubject: Re: Vitamin D follow up question

Hi ee;

It's recommended that patients with cholestatic liver diseases like primary biliary cirrhosis and primary sclerosing cholangitis do get checked for fat-soluble vitamin deficiencies such as vitamin D and A, and then take supplements to correct any deficiencies. But you have to be very careful not to over-dose. A good guide is this article:

http://www.healthsy stem.virginia. edu/internet/ digestive- health/nutrition articles/ april2006. pdf

Best regards,

Dave

(father of (23); PSC 07/03; UC 08/03)

> >> > What is your vitamin D level? If normal, 400 units is the current> "typical"> >>

[Guest guest]

They just have to requedt vitamin d levels. If I remember correctly that is what is said on my script. Sent via BlackBerry by AT&TFrom: "jswdi" Date: Mon, 29 Dec 2008 17:52:39 -0000To: < >Subject: Re: Vitamin D follow up question The Vitamin discussion is interesting as my PSC was relatively stable for almost 4 years but flared in conjunction with our 30th anniversary to Maui. Sue and I when to a tanning place as well as being out doors a lot and were as dark as I had been in college. We kept the tan going through this past June. I am not saying there was any correlation but it is interesting to me that my Liver Numbers jumped and did not really come down and am now beginning evaluation for a TX. What is the specific blood test for Vitamin D? My Health Provider tends to do the absolute minimum Blood work – in fact, it wasn't until I was in the hospital with a scary shade of Yellow that they finally did Liver Tests after having UC for 7 years. At that time my ALK was 760. > > > > >I remember that during the summer I did a good three hours of outside > > >activities being well tanned I was sure that I was getting enough vit > > d. > > > > > > > That sounds sort of similar to my experience. I'd been outside a lot > and had actually been taking about 2000 IU of vit D daily, but I still > tested very low. They put me on 50,000 IU once a week for a while, and > that got me back to normal. Now I take 3,000 to 4,000 IU a day, and > tested in the normal range with that dosage. Of course you should get > tested before taking that high of doses, but some people (like me) do > need them. > > athan >