Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 I was diagnosed with PSC 7 years ago and have been a member of this group ever since; however I haven't posted anything in many years since I've been fortunate to have been very healthy and have put PSC " on the back burner " . I haven't experienced any of the most common symptoms (bad itching, etc). But since I was diagnosed (at age 30), I have experienced night sweats 1-2 nights per year. The past couple months, all of a sudden I've been experiencing many nights with night sweats (about 20% of the nights). I called my hepatologist, and the nurse said this probably wasn't due to the PSC (probably hormonal or something), but I should come in for a checkup anyway since I haven't seen him in a while (I have an appointment in February). I'm currently 37 so I would think hormonal night sweats should be a while away - I also talked with my 50 year old sister and she's never experienced night sweats. I don't have the itching or other normal PSC symptoms. I was wondering if many PSC'ers experience night sweats as a result of PSC. It seems getting so many night sweats isn't normal and it would be good to figure out what's behind them, PSC or something else. I'm healthy otherwise (eat healthy & exercise every day). Thanks for any feedback!! -Beth Scharmer from Milwaukee, WI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 I disagree (with your nurse’s comment). I frequently experienced night sweats until my CBD was dilated and stented. I’m fairly certain it wasn’t hormonal J. They stopped after dilatation and stenting and haven’t returned (7 years now). I do agree you should go in for a checkup. BTW, the fact that your sister hasn’t experienced them just means she’s lucky! My wife’s sister can say the same thing, but she can’t L Arne UC 1977, PSC 2000 Alive and well in Minnesota From: [mailto: ] On Behalf Of escharmer@... …But since I was diagnosed (at age 30), I have experienced night sweats 1-2 nights per year. The past couple months, all of a sudden I've been experiencing many nights with night sweats (about 20% of the nights). I called my hepatologist, and the nurse said this probably wasn't due to the PSC (probably hormonal or something), but I should come in for a checkup anyway since I haven't seen him in a while (I have an appointment in February). I'm currently 37 so I would think hormonal night sweats should be a while away - I also talked with my 50 year old sister and she's never experienced night sweats… Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 I disagree (with your nurse’s comment). I frequently experienced night sweats until my CBD was dilated and stented. I’m fairly certain it wasn’t hormonal J. They stopped after dilatation and stenting and haven’t returned (7 years now). I do agree you should go in for a checkup. BTW, the fact that your sister hasn’t experienced them just means she’s lucky! My wife’s sister can say the same thing, but she can’t L Arne UC 1977, PSC 2000 Alive and well in Minnesota From: [mailto: ] On Behalf Of escharmer@... …But since I was diagnosed (at age 30), I have experienced night sweats 1-2 nights per year. The past couple months, all of a sudden I've been experiencing many nights with night sweats (about 20% of the nights). I called my hepatologist, and the nurse said this probably wasn't due to the PSC (probably hormonal or something), but I should come in for a checkup anyway since I haven't seen him in a while (I have an appointment in February). I'm currently 37 so I would think hormonal night sweats should be a while away - I also talked with my 50 year old sister and she's never experienced night sweats… Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Beth, They are currentlt trying to figure this one out for me, but it appears that I have become hypoglycemic and they think it's related to the PSC. They are telling me that PSC can affect your Pancreas and can cause problems with glycogen release. WHen I am having trouble with sweating at night they believe my sugar levels are low. I actually got told all of this last week. Tests have confirmed the hypoglycemia and some other metabolic problems so now I have to make some significant diet changes. The doctors HOPE that making these changes will help to eliminate the night sweats, mood swings, tiredness, and some of my itching. One of the other metabolic issues is that my kidneys are no longer appropriately processessing some of the waste products from the foods I eat. The diet that the endocrinologist has placed my on is called a Low Oxalate Diet and I am to eat 6 times daily following this diet and a diabetic diet. I am still figuring this all out since my insurance won't let me see a dietician. Maybe your night sweats are food related. Dawn > > I was diagnosed with PSC 7 years ago and have been a member of this > group ever since; however I haven't posted anything in many years > since I've been fortunate to have been very healthy and have put PSC > " on the back burner " . > > I haven't experienced any of the most common symptoms (bad itching, > etc). But since I was diagnosed (at age 30), I have experienced night > sweats 1-2 nights per year. The past couple months, all of a sudden > I've been experiencing many nights with night sweats (about 20% of the > nights). I called my hepatologist, and the nurse said this probably > wasn't due to the PSC (probably hormonal or something), but I should > come in for a checkup anyway since I haven't seen him in a while (I > have an appointment in February). I'm currently 37 so I would think > hormonal night sweats should be a while away - I also talked with my > 50 year old sister and she's never experienced night sweats. I don't > have the itching or other normal PSC symptoms. > > I was wondering if many PSC'ers experience night sweats as a result of > PSC. It seems getting so many night sweats isn't normal and it would > be good to figure out what's behind them, PSC or something else. I'm > healthy otherwise (eat healthy & exercise every day). > > Thanks for any feedback!! > > -Beth Scharmer from Milwaukee, WI > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 You may not want to hear this, but when I got night sweats, it turned out I was diagnosed with autoimmune hepatitis, on top of the PSC. I take immunosuppresents for the the AIH, which keeps that in control (imuran and prednisone).Marie To: From: escharmer@...Date: Tue, 30 Dec 2008 04:01:22 +0000Subject: Night Sweats I was diagnosed with PSC 7 years ago and have been a member of this group ever since; however I haven't posted anything in many years since I've been fortunate to have been very healthy and have put PSC "on the back burner". I haven't experienced any of the most common symptoms (bad itching, etc). But since I was diagnosed (at age 30), I have experienced night sweats 1-2 nights per year. The past couple months, all of a sudden I've been experiencing many nights with night sweats (about 20% of the nights). I called my hepatologist, and the nurse said this probably wasn't due to the PSC (probably hormonal or something), but I should come in for a checkup anyway since I haven't seen him in a while (I have an appointment in February). I'm currently 37 so I would think hormonal night sweats should be a while away - I also talked with my 50 year old sister and she's never experienced night sweats. I don't have the itching or other normal PSC symptoms. I was wondering if many PSC'ers experience night sweats as a result of PSC. It seems getting so many night sweats isn't normal and it would be good to figure out what's behind them, PSC or something else. I'm healthy otherwise (eat healthy & exercise every day). Thanks for any feedback!! -Beth Scharmer from Milwaukee, WI Life on your PC is safer, easier, and more enjoyable with Windows Vista®. See how Quote Link to comment Share on other sites More sharing options...
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