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I was diagnosed with PSC 7 years ago and have been a member of this

group ever since; however I haven't posted anything in many years

since I've been fortunate to have been very healthy and have put PSC

" on the back burner " .

I haven't experienced any of the most common symptoms (bad itching,

etc). But since I was diagnosed (at age 30), I have experienced night

sweats 1-2 nights per year. The past couple months, all of a sudden

I've been experiencing many nights with night sweats (about 20% of the

nights). I called my hepatologist, and the nurse said this probably

wasn't due to the PSC (probably hormonal or something), but I should

come in for a checkup anyway since I haven't seen him in a while (I

have an appointment in February). I'm currently 37 so I would think

hormonal night sweats should be a while away - I also talked with my

50 year old sister and she's never experienced night sweats. I don't

have the itching or other normal PSC symptoms.

I was wondering if many PSC'ers experience night sweats as a result of

PSC. It seems getting so many night sweats isn't normal and it would

be good to figure out what's behind them, PSC or something else. I'm

healthy otherwise (eat healthy & exercise every day).

Thanks for any feedback!!

-Beth Scharmer from Milwaukee, WI

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I disagree (with your nurse’s comment). I frequently

experienced night sweats until my CBD was dilated and stented. I’m

fairly certain it wasn’t hormonal J. They stopped after dilatation

and stenting and haven’t returned (7 years now). I do agree you

should go in for a checkup.

BTW, the fact that your sister hasn’t experienced them

just means she’s lucky! My wife’s sister can say the same

thing, but she can’t L

Arne

UC 1977, PSC 2000

Alive and well in Minnesota

From:

[mailto: ] On Behalf

Of escharmer@...

…But

since I was diagnosed (at age 30), I have experienced night

sweats 1-2 nights per year. The past couple months, all of a sudden

I've been experiencing many nights with night sweats (about 20% of the

nights). I called my hepatologist, and the nurse said this probably

wasn't due to the PSC (probably hormonal or something), but I should

come in for a checkup anyway since I haven't seen him in a while (I

have an appointment in February). I'm currently 37 so I would think

hormonal night sweats should be a while away - I also talked with my

50 year old sister and she's never experienced night sweats…

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I disagree (with your nurse’s comment). I frequently

experienced night sweats until my CBD was dilated and stented. I’m

fairly certain it wasn’t hormonal J. They stopped after dilatation

and stenting and haven’t returned (7 years now). I do agree you

should go in for a checkup.

BTW, the fact that your sister hasn’t experienced them

just means she’s lucky! My wife’s sister can say the same

thing, but she can’t L

Arne

UC 1977, PSC 2000

Alive and well in Minnesota

From:

[mailto: ] On Behalf

Of escharmer@...

…But

since I was diagnosed (at age 30), I have experienced night

sweats 1-2 nights per year. The past couple months, all of a sudden

I've been experiencing many nights with night sweats (about 20% of the

nights). I called my hepatologist, and the nurse said this probably

wasn't due to the PSC (probably hormonal or something), but I should

come in for a checkup anyway since I haven't seen him in a while (I

have an appointment in February). I'm currently 37 so I would think

hormonal night sweats should be a while away - I also talked with my

50 year old sister and she's never experienced night sweats…

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Beth,

They are currentlt trying to figure this one out for me, but it

appears that I have become hypoglycemic and they think it's related

to the PSC. They are telling me that PSC can affect your Pancreas

and can cause problems with glycogen release. WHen I am having

trouble with sweating at night they believe my sugar levels are low.

I actually got told all of this last week. Tests have confirmed the

hypoglycemia and some other metabolic problems so now I have to make

some significant diet changes. The doctors HOPE that making these

changes will help to eliminate the night sweats, mood swings,

tiredness, and some of my itching. One of the other metabolic issues

is that my kidneys are no longer appropriately processessing some of

the waste products from the foods I eat. The diet that the

endocrinologist has placed my on is called a Low Oxalate Diet and I

am to eat 6 times daily following this diet and a diabetic diet. I

am still figuring this all out since my insurance won't let me see a

dietician. Maybe your night sweats are food related.

Dawn

>

> I was diagnosed with PSC 7 years ago and have been a member of this

> group ever since; however I haven't posted anything in many years

> since I've been fortunate to have been very healthy and have put PSC

> " on the back burner " .

>

> I haven't experienced any of the most common symptoms (bad itching,

> etc). But since I was diagnosed (at age 30), I have experienced

night

> sweats 1-2 nights per year. The past couple months, all of a sudden

> I've been experiencing many nights with night sweats (about 20% of

the

> nights). I called my hepatologist, and the nurse said this probably

> wasn't due to the PSC (probably hormonal or something), but I should

> come in for a checkup anyway since I haven't seen him in a while (I

> have an appointment in February). I'm currently 37 so I would think

> hormonal night sweats should be a while away - I also talked with my

> 50 year old sister and she's never experienced night sweats. I

don't

> have the itching or other normal PSC symptoms.

>

> I was wondering if many PSC'ers experience night sweats as a result

of

> PSC. It seems getting so many night sweats isn't normal and it

would

> be good to figure out what's behind them, PSC or something else.

I'm

> healthy otherwise (eat healthy & exercise every day).

>

> Thanks for any feedback!!

>

> -Beth Scharmer from Milwaukee, WI

>

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You may not want to hear this, but when I got night sweats, it turned out I was diagnosed with autoimmune hepatitis, on top of the PSC. I take immunosuppresents for the the AIH, which keeps that in control (imuran and prednisone).Marie

To: From: escharmer@...Date: Tue, 30 Dec 2008 04:01:22 +0000Subject: Night Sweats

I was diagnosed with PSC 7 years ago and have been a member of this

group ever since; however I haven't posted anything in many years

since I've been fortunate to have been very healthy and have put PSC

"on the back burner".

I haven't experienced any of the most common symptoms (bad itching,

etc). But since I was diagnosed (at age 30), I have experienced night

sweats 1-2 nights per year. The past couple months, all of a sudden

I've been experiencing many nights with night sweats (about 20% of the

nights). I called my hepatologist, and the nurse said this probably

wasn't due to the PSC (probably hormonal or something), but I should

come in for a checkup anyway since I haven't seen him in a while (I

have an appointment in February). I'm currently 37 so I would think

hormonal night sweats should be a while away - I also talked with my

50 year old sister and she's never experienced night sweats. I don't

have the itching or other normal PSC symptoms.

I was wondering if many PSC'ers experience night sweats as a result of

PSC. It seems getting so many night sweats isn't normal and it would

be good to figure out what's behind them, PSC or something else. I'm

healthy otherwise (eat healthy & exercise every day).

Thanks for any feedback!!

-Beth Scharmer from Milwaukee, WI

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