Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 I do get the sweats, and I mean real heavy, dripping, non stop water works. The only difference is 1) my sweats are not just at night, it could start at any time, and it could last between 5 minutes and a few hours, 2) I only sweat on my left side. It is the strangest, and most annoying thing. My left and right side are very different as far as neurological stuff. Good Luck & Be Well, Mike R. ACM1/SM 1cm+ Laminectomy c1-c5 & placement of shunt '87 Laminectomy c5-c7 & replacement of shunt in '88 Attempted shunt cleaning and revision due to return of all symptoms+ then some. surgery had to be stopped due to swelling near the brain stem '95 Ten days later they decompressed my Chiari '95 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 I do get the sweats, and I mean real heavy, dripping, non stop water works. The only difference is 1) my sweats are not just at night, it could start at any time, and it could last between 5 minutes and a few hours, 2) I only sweat on my left side. It is the strangest, and most annoying thing. My left and right side are very different as far as neurological stuff. Good Luck & Be Well, Mike R. ACM1/SM 1cm+ Laminectomy c1-c5 & placement of shunt '87 Laminectomy c5-c7 & replacement of shunt in '88 Attempted shunt cleaning and revision due to return of all symptoms+ then some. surgery had to be stopped due to swelling near the brain stem '95 Ten days later they decompressed my Chiari '95 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 I was diagnosed with PSC 7 years ago and have been a member of this group ever since; however I haven't posted anything in many years since I've been fortunate to have been very healthy and have put PSC " on the back burner " . I haven't experienced any of the most common symptoms (bad itching, etc). But since I was diagnosed (at age 30), I have experienced night sweats 1-2 nights per year. The past couple months, all of a sudden I've been experiencing many nights with night sweats (about 20% of the nights). I called my hepatologist, and the nurse said this probably wasn't due to the PSC (probably hormonal or something), but I should come in for a checkup anyway since I haven't seen him in a while (I have an appointment in February). I'm currently 37 so I would think hormonal night sweats should be a while away - I also talked with my 50 year old sister and she's never experienced night sweats. I don't have the itching or other normal PSC symptoms. I was wondering if many PSC'ers experience night sweats as a result of PSC. It seems getting so many night sweats isn't normal and it would be good to figure out what's behind them, PSC or something else. I'm healthy otherwise (eat healthy & exercise every day). Thanks for any feedback!! -Beth Scharmer from Milwaukee, WI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Beth, Hi! As I think Chaim mentioned, there are several of us who suffer from night sweats. You may be able to find some more info on the archives of this site if you wanted to. In any case, I'm only 33 and I've had to deal with them so I'm guessing there's a good shot it's PSC related and not hormones! p.s. When I mentioned them to my hepatologist, she wasn't at all surprised to hear I'd been having them and seemed to regard it as somewhat normal given my PSC, other medical status, etc. Hope this helps! Sandi in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Beth, Hi! As I think Chaim mentioned, there are several of us who suffer from night sweats. You may be able to find some more info on the archives of this site if you wanted to. In any case, I'm only 33 and I've had to deal with them so I'm guessing there's a good shot it's PSC related and not hormones! p.s. When I mentioned them to my hepatologist, she wasn't at all surprised to hear I'd been having them and seemed to regard it as somewhat normal given my PSC, other medical status, etc. Hope this helps! Sandi in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Beth, Hi! As I think Chaim mentioned, there are several of us who suffer from night sweats. You may be able to find some more info on the archives of this site if you wanted to. In any case, I'm only 33 and I've had to deal with them so I'm guessing there's a good shot it's PSC related and not hormones! p.s. When I mentioned them to my hepatologist, she wasn't at all surprised to hear I'd been having them and seemed to regard it as somewhat normal given my PSC, other medical status, etc. Hope this helps! Sandi in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Beth, They are currentlt trying to figure this one out for me, but it appears that I have become hypoglycemic and they think it's related to the PSC. They are telling me that PSC can affect your Pancreas and can cause problems with glycogen release. WHen I am having trouble with sweating at night they believe my sugar levels are low. I actually got told all of this last week. Tests have confirmed the hypoglycemia and some other metabolic problems so now I have to make some significant diet changes. The doctors HOPE that making these changes will help to eliminate the night sweats, mood swings, tiredness, and some of my itching. One of the other metabolic issues is that my kidneys are no longer appropriately processessing some of the waste products from the foods I eat. The diet that the endocrinologist has placed my on is called a Low Oxalate Diet and I am to eat 6 times daily following this diet and a diabetic diet. I am still figuring this all out since my insurance won't let me see a dietician. Maybe your night sweats are food related. Dawn > > I was diagnosed with PSC 7 years ago and have been a member of this > group ever since; however I haven't posted anything in many years > since I've been fortunate to have been very healthy and have put PSC > " on the back burner " . > > I haven't experienced any of the most common symptoms (bad itching, > etc). But since I was diagnosed (at age 30), I have experienced night > sweats 1-2 nights per year. The past couple months, all of a sudden > I've been experiencing many nights with night sweats (about 20% of the > nights). I called my hepatologist, and the nurse said this probably > wasn't due to the PSC (probably hormonal or something), but I should > come in for a checkup anyway since I haven't seen him in a while (I > have an appointment in February). I'm currently 37 so I would think > hormonal night sweats should be a while away - I also talked with my > 50 year old sister and she's never experienced night sweats. I don't > have the itching or other normal PSC symptoms. > > I was wondering if many PSC'ers experience night sweats as a result of > PSC. It seems getting so many night sweats isn't normal and it would > be good to figure out what's behind them, PSC or something else. I'm > healthy otherwise (eat healthy & exercise every day). > > Thanks for any feedback!! > > -Beth Scharmer from Milwaukee, WI > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Beth and ChaimI too suffered from night sweats. I used to wake up a few times a night and change my clothes. After a million tests I was diagnosed with Sometype of Hyperplasia. Maybe lymphotic hyperasia. I saw a hemotologist who explained to me that it had something to do with the activity of the white blood cells. I hope that you feel better quicklyShaulPSC UCSent via BlackBerry by AT&TFrom: "escharmer@..." Date: Tue, 30 Dec 2008 04:01:22 -0000To: < >Subject: Night Sweats I was diagnosed with PSC 7 years ago and have been a member of this group ever since; however I haven't posted anything in many years since I've been fortunate to have been very healthy and have put PSC " on the back burner " . I haven't experienced any of the most common symptoms (bad itching, etc). But since I was diagnosed (at age 30), I have experienced night sweats 1-2 nights per year. The past couple months, all of a sudden I've been experiencing many nights with night sweats (about 20% of the nights). I called my hepatologist, and the nurse said this probably wasn't due to the PSC (probably hormonal or something), but I should come in for a checkup anyway since I haven't seen him in a while (I have an appointment in February). I'm currently 37 so I would think hormonal night sweats should be a while away - I also talked with my 50 year old sister and she's never experienced night sweats. I don't have the itching or other normal PSC symptoms. I was wondering if many PSC'ers experience night sweats as a result of PSC. It seems getting so many night sweats isn't normal and it would be good to figure out what's behind them, PSC or something else. I'm healthy otherwise (eat healthy & exercise every day). Thanks for any feedback!! -Beth Scharmer from Milwaukee, WI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Beth and ChaimI too suffered from night sweats. I used to wake up a few times a night and change my clothes. After a million tests I was diagnosed with Sometype of Hyperplasia. Maybe lymphotic hyperasia. I saw a hemotologist who explained to me that it had something to do with the activity of the white blood cells. I hope that you feel better quicklyShaulPSC UCSent via BlackBerry by AT&TFrom: "escharmer@..." Date: Tue, 30 Dec 2008 04:01:22 -0000To: < >Subject: Night Sweats I was diagnosed with PSC 7 years ago and have been a member of this group ever since; however I haven't posted anything in many years since I've been fortunate to have been very healthy and have put PSC " on the back burner " . I haven't experienced any of the most common symptoms (bad itching, etc). But since I was diagnosed (at age 30), I have experienced night sweats 1-2 nights per year. The past couple months, all of a sudden I've been experiencing many nights with night sweats (about 20% of the nights). I called my hepatologist, and the nurse said this probably wasn't due to the PSC (probably hormonal or something), but I should come in for a checkup anyway since I haven't seen him in a while (I have an appointment in February). I'm currently 37 so I would think hormonal night sweats should be a while away - I also talked with my 50 year old sister and she's never experienced night sweats. I don't have the itching or other normal PSC symptoms. I was wondering if many PSC'ers experience night sweats as a result of PSC. It seems getting so many night sweats isn't normal and it would be good to figure out what's behind them, PSC or something else. I'm healthy otherwise (eat healthy & exercise every day). Thanks for any feedback!! -Beth Scharmer from Milwaukee, WI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Dawn, Your post really hit the target with me. I had hypoglycemia for years and some night sweats. I was diagnosed with PSC in 1990. The hypoglycemia has went away after my transplant. Joe To: Sent: Tuesday, December 30, 2008 7:07:16 AMSubject: Re: Night Sweats Beth,They are currentlt trying to figure this one out for me, but it appears that I have become hypoglycemic and they think it's related to the PSC. They are telling me that PSC can affect your Pancreas and can cause problems with glycogen release. WHen I am having trouble with sweating at night they believe my sugar levels are low. I actually got told all of this last week. Tests have confirmed the hypoglycemia and some other metabolic problems so now I have to make some significant diet changes. The doctors HOPE that making these changes will help to eliminate the night sweats, mood swings, tiredness, and some of my itching. One of the other metabolic issues is that my kidneys are no longer appropriately processessing some of the waste products from the foods I eat. The diet that the endocrinologist has placed my on is called a Low Oxalate Diet and I am to eat 6 times daily following this diet and a diabetic diet. I am still figuring this all out since my insurance won't let me see a dietician. Maybe your night sweats are food related. Dawn >> I was diagnosed with PSC 7 years ago and have been a member of this> group ever since; however I haven't posted anything in many years> since I've been fortunate to have been very healthy and have put PSC> "on the back burner". > > I haven't experienced any of the most common symptoms (bad itching,> etc). But since I was diagnosed (at age 30), I have experienced night> sweats 1-2 nights per year. The past couple months, all of a sudden> I've been experiencing many nights with night sweats (about 20% of the> nights). I called my hepatologist, and the nurse said this probably> wasn't due to the PSC (probably hormonal or something), but I should> come in for a checkup anyway since I haven't seen him in a while (I> have an appointment in February). I'm currently 37 so I would think> hormonal night sweats should be a while away - I also talked with my> 50 year old sister and she's never experienced night sweats. I don't> have the itching or other normal PSC symptoms.> > I was wondering if many PSC'ers experience night sweats as a result of> PSC. It seems getting so many night sweats isn't normal and it would> be good to figure out what's behind them, PSC or something else. I'm> healthy otherwise (eat healthy & exercise every day).> > Thanks for any feedback!!> > -Beth Scharmer from Milwaukee, WI> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 You may not want to hear this, but when I got night sweats, it turned out I was diagnosed with autoimmune hepatitis, on top of the PSC. I take immunosuppresents for the the AIH, which keeps that in control (imuran and prednisone).Marie To: From: escharmer@...Date: Tue, 30 Dec 2008 04:01:22 +0000Subject: Night Sweats I was diagnosed with PSC 7 years ago and have been a member of this group ever since; however I haven't posted anything in many years since I've been fortunate to have been very healthy and have put PSC "on the back burner". I haven't experienced any of the most common symptoms (bad itching, etc). But since I was diagnosed (at age 30), I have experienced night sweats 1-2 nights per year. The past couple months, all of a sudden I've been experiencing many nights with night sweats (about 20% of the nights). I called my hepatologist, and the nurse said this probably wasn't due to the PSC (probably hormonal or something), but I should come in for a checkup anyway since I haven't seen him in a while (I have an appointment in February). I'm currently 37 so I would think hormonal night sweats should be a while away - I also talked with my 50 year old sister and she's never experienced night sweats. I don't have the itching or other normal PSC symptoms. I was wondering if many PSC'ers experience night sweats as a result of PSC. It seems getting so many night sweats isn't normal and it would be good to figure out what's behind them, PSC or something else. I'm healthy otherwise (eat healthy & exercise every day). Thanks for any feedback!! -Beth Scharmer from Milwaukee, WI Life on your PC is safer, easier, and more enjoyable with Windows Vista®. See how Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 You may not want to hear this, but when I got night sweats, it turned out I was diagnosed with autoimmune hepatitis, on top of the PSC. I take immunosuppresents for the the AIH, which keeps that in control (imuran and prednisone).Marie To: From: escharmer@...Date: Tue, 30 Dec 2008 04:01:22 +0000Subject: Night Sweats I was diagnosed with PSC 7 years ago and have been a member of this group ever since; however I haven't posted anything in many years since I've been fortunate to have been very healthy and have put PSC "on the back burner". I haven't experienced any of the most common symptoms (bad itching, etc). But since I was diagnosed (at age 30), I have experienced night sweats 1-2 nights per year. The past couple months, all of a sudden I've been experiencing many nights with night sweats (about 20% of the nights). I called my hepatologist, and the nurse said this probably wasn't due to the PSC (probably hormonal or something), but I should come in for a checkup anyway since I haven't seen him in a while (I have an appointment in February). I'm currently 37 so I would think hormonal night sweats should be a while away - I also talked with my 50 year old sister and she's never experienced night sweats. I don't have the itching or other normal PSC symptoms. I was wondering if many PSC'ers experience night sweats as a result of PSC. It seems getting so many night sweats isn't normal and it would be good to figure out what's behind them, PSC or something else. I'm healthy otherwise (eat healthy & exercise every day). Thanks for any feedback!! -Beth Scharmer from Milwaukee, WI Life on your PC is safer, easier, and more enjoyable with Windows Vista®. See how Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 I get night sweats and more so just before I have a cholangitits attack. There are alot of things that can course night sweats and some nothing to do with PSC but It could be a symptom of cholangitits and should be checked by your doctor as we all know how bad a cholangitits attack can be. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 I get night sweats and more so just before I have a cholangitits attack. There are alot of things that can course night sweats and some nothing to do with PSC but It could be a symptom of cholangitits and should be checked by your doctor as we all know how bad a cholangitits attack can be. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 Do the night sweats come with slight fever? I had fever sweats and some coughing. They ended up diagnoding me with lymphatic hyperasia. Sent via BlackBerry by AT&TFrom: "kelly-joy" Date: Wed, 31 Dec 2008 17:18:43 -0000To: < >Subject: Re: Night Sweats I get night sweats and more so just before I have a cholangitits attack. There are alot of things that can course night sweats and some nothing to do with PSC but It could be a symptom of cholangitits and should be checked by your doctor as we all know how bad a cholangitits attack can be. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 Do the night sweats come with slight fever? I had fever sweats and some coughing. They ended up diagnoding me with lymphatic hyperasia. Sent via BlackBerry by AT&TFrom: "kelly-joy" Date: Wed, 31 Dec 2008 17:18:43 -0000To: < >Subject: Re: Night Sweats I get night sweats and more so just before I have a cholangitits attack. There are alot of things that can course night sweats and some nothing to do with PSC but It could be a symptom of cholangitits and should be checked by your doctor as we all know how bad a cholangitits attack can be. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 Do the night sweats come with slight fever? I had fever sweats and some coughing. They ended up diagnoding me with lymphatic hyperasia. Sent via BlackBerry by AT&TFrom: "kelly-joy" Date: Wed, 31 Dec 2008 17:18:43 -0000To: < >Subject: Re: Night Sweats I get night sweats and more so just before I have a cholangitits attack. There are alot of things that can course night sweats and some nothing to do with PSC but It could be a symptom of cholangitits and should be checked by your doctor as we all know how bad a cholangitits attack can be. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 Typo Hyperasia = HyperplasiaSent via BlackBerry by AT&TFrom: CholangitisSuprt@...Date: Wed, 31 Dec 2008 20:31:32 +0000To: < >Subject: Re: Re: Night Sweats Do the night sweats come with slight fever? I had fever sweats and some coughing. They ended up diagnoding me with lymphatic hyperasia. Sent via BlackBerry by AT&TFrom: "kelly-joy" Date: Wed, 31 Dec 2008 17:18:43 -0000To: < >Subject: Re: Night Sweats I get night sweats and more so just before I have a cholangitits attack. There are alot of things that can course night sweats and some nothing to do with PSC but It could be a symptom of cholangitits and should be checked by your doctor as we all know how bad a cholangitits attack can be. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 Typo Hyperasia = HyperplasiaSent via BlackBerry by AT&TFrom: CholangitisSuprt@...Date: Wed, 31 Dec 2008 20:31:32 +0000To: < >Subject: Re: Re: Night Sweats Do the night sweats come with slight fever? I had fever sweats and some coughing. They ended up diagnoding me with lymphatic hyperasia. Sent via BlackBerry by AT&TFrom: "kelly-joy" Date: Wed, 31 Dec 2008 17:18:43 -0000To: < >Subject: Re: Night Sweats I get night sweats and more so just before I have a cholangitits attack. There are alot of things that can course night sweats and some nothing to do with PSC but It could be a symptom of cholangitits and should be checked by your doctor as we all know how bad a cholangitits attack can be. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 Typo Hyperasia = HyperplasiaSent via BlackBerry by AT&TFrom: CholangitisSuprt@...Date: Wed, 31 Dec 2008 20:31:32 +0000To: < >Subject: Re: Re: Night Sweats Do the night sweats come with slight fever? I had fever sweats and some coughing. They ended up diagnoding me with lymphatic hyperasia. Sent via BlackBerry by AT&TFrom: "kelly-joy" Date: Wed, 31 Dec 2008 17:18:43 -0000To: < >Subject: Re: Night Sweats I get night sweats and more so just before I have a cholangitits attack. There are alot of things that can course night sweats and some nothing to do with PSC but It could be a symptom of cholangitits and should be checked by your doctor as we all know how bad a cholangitits attack can be. Quote Link to comment Share on other sites More sharing options...
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