Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 I just started to get my support group email in single post form. I think i will have an easier time tracking the posts and finding out who is who. I found if i designate a seperate folder and utilize " Message Rules " in the Outlook Express, then I am not barraged by incoming emails into my main inbox. I think if y'all want to do the same, you may find and easier time replying to specific emails instead of deleteing who digests at one fatal click! Anyways, speaking for myself, I appreciate all the help and support I can get gather and am not just saying this. Helping one another doesn't necessarily mean one must affix a gold seal whenever I make the effort. I do not need this. Just pray that the help is helpful in some way, shape or form. My thanks is in the giving and being here and alive to do just that! Always, cloud I have gone on and tried to help people with disability ect. But same as you got no replies, do you think that they are clickish or what do you think Reggie?? I sometimes think that I am wasting my time too. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 In a message dated 08/29/2002 9:56:57 AM US Eastern Standard Time, jaybirdmumford3@... writes: > I guess you feel only blacks can get sickle cell anemia - therefore, in your > philosophy, only blacks can help out, not whites, Asians, or Indians, > unless they (Whites, Asians or Indians) find something should be done, > because the disease is " More off-setting to their lifestyles. " > VERY good point.... Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 I was not speaking in present tense but is in past tense a truth and what i read and not as a belief. Thank you! And this was written by a male rheumatologist. I will see if i can back track so I can give you the information verbatim. But in any case, did not say it was something to believe in or not to believe in. Not like the Easter Bunny or the Tooth Fairy for gosh sakes, lighten up a bit! You gonna give yourself a worry wart! Always, cloud I would absolutely not agree with that - its a sexist attitude, to think that. I, as a man, who is a NORM, am doing anything and everything to help my girlfriend, who has this syndrome/disease. and it is not because it is a 'WOMAN's " disease. I have recieved help from several individuals when I put up a post - I may not have input to help, but I feel if I did, it would be readily accepte or at least considered. Also, I did not know that disease discrimitates. I guess you feel only blacks can get sickle cell anemia - therefore, in your philosophy, only blacks can help out, not whites, Asians, or Indians, unless they (Whites, Asians or Indians) find something should be done, because the disease is " More off-setting to their lifestyles. " The assertion that funding and reasearch for CFS/FM is limited or denied because it is " by Majority a woman's disease " is pure hogwash and demeaning to the medical profession, which is struggling to understand the disease, men in general and women altogether. And that is pure fact. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 I have to agree with Cloud on the bit about it being " a woman's disease, therefore it lacked the funding and support necessary to research it. And this is pure fact. " Throughout medical history, anything that primarily affects women seems to sit on the backburner of research longer than something that affects mostly men. Most " women's diseases " initially go through a long period of many women being told " it's all in your head " until someone is aggressive and determined enough to push their doctor to really look. ~Jen I would absolutely not agree with that - its a sexist attitude, to think that. I, as a man, who is a NORM, am doing anything and everything to help my girlfriend, who has this syndrome/disease. and it is not because it is a 'WOMAN's " disease. I have recieved help from several individuals when I put up a post - I may not have input to help, but I feel if I did, it would be readily accepte or at least considered. Also, I did not know that disease discrimitates. I guess you feel only blacks can get sickle cell anemia - therefore, in your philosophy, only blacks can help out, not whites, Asians, or Indians, unless they (Whites, Asians or Indians) find something should be done, because the disease is " More off-setting to their lifestyles. " The assertion that funding and reasearch for CFS/FM is limited or denied because it is " by Majority a woman's disease " is pure hogwash and demeaning to the medical profession, which is struggling to understand the disease, men in general and women altogether. And that is pure fact. " cloud " pjasper@...> wrote: >Hello Reggie, > >I am sitting here and probably going to offset the balance of the world by saying this, but to the contrary, do you realize one of the reasons why there is no cure for this illness as of this time. > >Partly due to the fact that it is, by MAJORITY, a woman's disease, therefore it lacked the funding and support necessary to research it. And this is pure fact. > >So in a desire for a man to fix something, man must often have something to be fixed more offsetting to his life and style to the mere existance or happening of that which is broken. > >Wouldn't you agree with this? > >Always, >cloud > > > Hi, > > Since I joined this group I noticed that I'm rare being a man with > CFS/Fibro who happens to be a member. It also appears so far that the > tenor of the group is geared more towards women, almost as if CFS and > Fibro discriminates along gender lines and your sharings are limited > to one another on that basis. > > It was my deep desire when I joined to try helping others if I could, > make new acquaintances, create a new support network, and be a part > of something positive with regard to this condition. > > I try to respond to messages from members who ask for help, or seem > deeply distressed. I have intense experience in the medical field and > have tried to share relevant information with respect to scientific > research and new findings, disability, and social issues. On rare > occasion someone seems interested, but for the most part I feel as > though my attempts to be of help are not wanted in the group. > > I'll be honest that I'm sometimes surprised by what people talk about > here in light of the difficulties living with a debilitating illness > like this can have on anyone with it. OK, now I know you guys will be > mad as hell with me but here it goes .... as a man, I've heard over & > over that women want to vent but don't necessarily want things fixed. > Is it possible that we are conditioned to think so differntly based > on gender? Men see problems and look for solutions, and women only > want to talk about the problems ? (generalization ok?). > > Is it that men and women are better off in support groups segregated > based on sex? I'm confused so far with the way things go in this > group, but I do feel as if there is a difference in receptivity. > > Be well, > Reggie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 I believe this conversation has taken a wrong turn somewhere. I believe if we all work together and try hard to determine the cause, cure, etc. we can do it with our faith. But I hate to sign on and see these types of conversation. We're here as a support group aren't we???? a Faye --- jaybirdmumford3@... wrote: > I would absolutely not agree with that - its a > sexist attitude, to think that. > > I, as a man, who is a NORM, am doing anything and > everything to help my girlfriend, who has this > syndrome/disease. and it is not because it is a > 'WOMAN's " disease. > > I have recieved help from several individuals when I > put up a post - I may not have input to help, but I > feel if I did, it would be readily accepte or at > least considered. > > Also, I did not know that disease discrimitates. > > I guess you feel only blacks can get sickle cell > anemia - therefore, in your philosophy, only blacks > can help out, not whites, Asians, or Indians, unless > they (Whites, Asians or Indians) find something > should be done, because the disease is " More > off-setting to their lifestyles. " > > The assertion that funding and reasearch for CFS/FM > is limited or denied because it is " by Majority a > woman's disease " is pure hogwash and demeaning to > the medical profession, which is struggling to > understand the disease, men in general and women > altogether. > > And that is pure fact. > > > " cloud " pjasper@...> wrote: > > >Hello Reggie, > > > >I am sitting here and probably going to offset the > balance of the world by saying this, but to the > contrary, do you realize one of the reasons why > there is no cure for this illness as of this time. > > > >Partly due to the fact that it is, by MAJORITY, a > woman's disease, therefore it lacked the funding and > support necessary to research it. And this is pure > fact. > > > >So in a desire for a man to fix something, man must > often have something to be fixed more offsetting to > his life and style to the mere existance or > happening of that which is broken. > > > >Wouldn't you agree with this? > > > >Always, > >cloud > > > > > > Hi, > > > > Since I joined this group I noticed that I'm rare > being a man with > > CFS/Fibro who happens to be a member. It also > appears so far that the > > tenor of the group is geared more towards women, > almost as if CFS and > > Fibro discriminates along gender lines and your > sharings are limited > > to one another on that basis. > > > > It was my deep desire when I joined to try > helping others if I could, > > make new acquaintances, create a new support > network, and be a part > > of something positive with regard to this > condition. > > > > I try to respond to messages from members who ask > for help, or seem > > deeply distressed. I have intense experience in > the medical field and > > have tried to share relevant information with > respect to scientific > > research and new findings, disability, and social > issues. On rare > > occasion someone seems interested, but for the > most part I feel as > > though my attempts to be of help are not wanted > in the group. > > > > I'll be honest that I'm sometimes surprised by > what people talk about > > here in light of the difficulties living with a > debilitating illness > > like this can have on anyone with it. OK, now I > know you guys will be > > mad as hell with me but here it goes .... as a > man, I've heard over & > > over that women want to vent but don't > necessarily want things fixed. > > Is it possible that we are conditioned to think > so differntly based > > on gender? Men see problems and look for > solutions, and women only > > want to talk about the problems ? (generalization > ok?). > > > > Is it that men and women are better off in > support groups segregated > > based on sex? I'm confused so far with the way > things go in this > > group, but I do feel as if there is a difference > in receptivity. > > > > Be well, > > Reggie > > > > > > > > > > > >[Non-text portions of this message have been > removed] > > > > > > > __________________________________________________________________ > Your favorite stores, helpful shopping tools and > great gift ideas. Experience the convenience of > buying online with Shop@Netscape! > http://shopnow.netscape.com/ > > Get your own FREE, personal Netscape Mail account > today at http://webmail.netscape.com/ > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 I believe this conversation has taken a wrong turn somewhere. I believe if we all work together and try hard to determine the cause, cure, etc. we can do it with our faith. But I hate to sign on and see these types of conversation. We're here as a support group aren't we???? a Faye --- jaybirdmumford3@... wrote: > I would absolutely not agree with that - its a > sexist attitude, to think that. > > I, as a man, who is a NORM, am doing anything and > everything to help my girlfriend, who has this > syndrome/disease. and it is not because it is a > 'WOMAN's " disease. > > I have recieved help from several individuals when I > put up a post - I may not have input to help, but I > feel if I did, it would be readily accepte or at > least considered. > > Also, I did not know that disease discrimitates. > > I guess you feel only blacks can get sickle cell > anemia - therefore, in your philosophy, only blacks > can help out, not whites, Asians, or Indians, unless > they (Whites, Asians or Indians) find something > should be done, because the disease is " More > off-setting to their lifestyles. " > > The assertion that funding and reasearch for CFS/FM > is limited or denied because it is " by Majority a > woman's disease " is pure hogwash and demeaning to > the medical profession, which is struggling to > understand the disease, men in general and women > altogether. > > And that is pure fact. > > > " cloud " pjasper@...> wrote: > > >Hello Reggie, > > > >I am sitting here and probably going to offset the > balance of the world by saying this, but to the > contrary, do you realize one of the reasons why > there is no cure for this illness as of this time. > > > >Partly due to the fact that it is, by MAJORITY, a > woman's disease, therefore it lacked the funding and > support necessary to research it. And this is pure > fact. > > > >So in a desire for a man to fix something, man must > often have something to be fixed more offsetting to > his life and style to the mere existance or > happening of that which is broken. > > > >Wouldn't you agree with this? > > > >Always, > >cloud > > > > > > Hi, > > > > Since I joined this group I noticed that I'm rare > being a man with > > CFS/Fibro who happens to be a member. It also > appears so far that the > > tenor of the group is geared more towards women, > almost as if CFS and > > Fibro discriminates along gender lines and your > sharings are limited > > to one another on that basis. > > > > It was my deep desire when I joined to try > helping others if I could, > > make new acquaintances, create a new support > network, and be a part > > of something positive with regard to this > condition. > > > > I try to respond to messages from members who ask > for help, or seem > > deeply distressed. I have intense experience in > the medical field and > > have tried to share relevant information with > respect to scientific > > research and new findings, disability, and social > issues. On rare > > occasion someone seems interested, but for the > most part I feel as > > though my attempts to be of help are not wanted > in the group. > > > > I'll be honest that I'm sometimes surprised by > what people talk about > > here in light of the difficulties living with a > debilitating illness > > like this can have on anyone with it. OK, now I > know you guys will be > > mad as hell with me but here it goes .... as a > man, I've heard over & > > over that women want to vent but don't > necessarily want things fixed. > > Is it possible that we are conditioned to think > so differntly based > > on gender? Men see problems and look for > solutions, and women only > > want to talk about the problems ? (generalization > ok?). > > > > Is it that men and women are better off in > support groups segregated > > based on sex? I'm confused so far with the way > things go in this > > group, but I do feel as if there is a difference > in receptivity. > > > > Be well, > > Reggie > > > > > > > > > > > >[Non-text portions of this message have been > removed] > > > > > > > __________________________________________________________________ > Your favorite stores, helpful shopping tools and > great gift ideas. Experience the convenience of > buying online with Shop@Netscape! > http://shopnow.netscape.com/ > > Get your own FREE, personal Netscape Mail account > today at http://webmail.netscape.com/ > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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