Guest guest Posted February 10, 2009 Report Share Posted February 10, 2009 I just got back from the hospital and UW is putting me into the Mayo Protocol. Halleluja!I'm nervous about chemo and radiation therapy, but I feel like I have a new lease on life. My wife and I were crying in Dr. Musek's room today when he told us he didn't find any tumors on my MRCP and chest CT scan. So I have a positive FISH test but no signs of malignant tumors at this point. I am thrilled!!!Do any fellow group people out there have a moment to help me understand what I need to about the Mayo Protocol's chemo and radiation? Any suggestions? Any help at all would be wonderful.Thank you all so much for your reassurances this weekend.Blessings and prayers to you all,-leo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Congratulations Leo!!!! That's fabulous news. It's such a miracle they found it so early. My husband was diagnosed with CCA in May 2007, and went through the Mayo protocol at the University of Utah. He was transplanted in May of 2008 and is doing quite well. I kept a blog that is still online at bbfranson.blogspot.com if you're still looking for someone else's experience as a reference point. I highly recommend you start your own blog to keep family and friends up to date, and to have lasting proof that you lived through something so extraordinary. It also serves to give hope and comfort to those traveling this path behind you. Hopefully, with careful screening and awareness, there will be lots more traveling this path. There is a support group for CCA at cholangiocarcinoma.org, and you are welcome to contact and me at anytime. We are happy to answer any of your questions. God Bless, , wife of Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Congratulations Leo!!!! That's fabulous news. It's such a miracle they found it so early. My husband was diagnosed with CCA in May 2007, and went through the Mayo protocol at the University of Utah. He was transplanted in May of 2008 and is doing quite well. I kept a blog that is still online at bbfranson.blogspot.com if you're still looking for someone else's experience as a reference point. I highly recommend you start your own blog to keep family and friends up to date, and to have lasting proof that you lived through something so extraordinary. It also serves to give hope and comfort to those traveling this path behind you. Hopefully, with careful screening and awareness, there will be lots more traveling this path. There is a support group for CCA at cholangiocarcinoma.org, and you are welcome to contact and me at anytime. We are happy to answer any of your questions. God Bless, , wife of Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Congratulations Leo!!!! That's fabulous news. It's such a miracle they found it so early. My husband was diagnosed with CCA in May 2007, and went through the Mayo protocol at the University of Utah. He was transplanted in May of 2008 and is doing quite well. I kept a blog that is still online at bbfranson.blogspot.com if you're still looking for someone else's experience as a reference point. I highly recommend you start your own blog to keep family and friends up to date, and to have lasting proof that you lived through something so extraordinary. It also serves to give hope and comfort to those traveling this path behind you. Hopefully, with careful screening and awareness, there will be lots more traveling this path. There is a support group for CCA at cholangiocarcinoma.org, and you are welcome to contact and me at anytime. We are happy to answer any of your questions. God Bless, , wife of Quote Link to comment Share on other sites More sharing options...
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