Guest guest Posted January 12, 2009 Report Share Posted January 12, 2009 Well after spending 3 days lying on the couch with a fever around 102 that just wouldn't go below 100, I took my super stubborn husband to the ER today. He had just finished some antibiotics for bronchitis. They did a urine test, a chest xray and a bunch of blood work. The good news is, the xray and urine test were both fine. The bad news, his bilirubin was 14! That's the highest it's ever been. I knew it had to be off the charts. He was the most horrid shade of yellow I have ever seen. The whites of his eyes are even yellow. And his urine looks like apple cider. They've got him on 2 pretty potent antibiotics and will do an ERCP tomorrow. He's not in any pain other than a head ache which I suspect is from the high fever and being so dehydrated. His appetite was good and until his fever started spiking he was in pretty good spirits. Unless the we get the really bad weather they're predicting tomorrow, I plan on heading down there after I drop our daughter off at school. He's used to me staying with him but usually he goes to our local hospital where he works. From now on he will be going to the hospital where he will eventually have his transplant. We both feel much better about his care there just for the fact that they have a whole slew of hepatologists who are familiar with psc. At our local hospital, WE have to explain to the medical staff what it is. I hope he's better soon and is able to come home in a few days. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2009 Report Share Posted January 13, 2009 >The bad news, his bilirubin was 14! >That's the highest it's ever been. I knew it had to be off the charts. He was the most horrid >shade of yellow I have ever seen. The whites of his eyes are even yellow. And his urine looks >like apple cider Actually for me the apple cider color urine is one of my 1st signs. If I notice it happening at home I start chugging as much water as I can, even it I end up in the bathroom peeing a lot. I am hoping that I can avert it going much further. And once my bilirubin hits about 3.0 you can actually see the yellow in the whites of my eyes pretty well. My GI always looks at me and says "nice shade of yellow in your eyes. Good luck and you are in my thoughts and prayers, Beth B Thornton,CO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2009 Report Share Posted January 13, 2009 >The bad news, his bilirubin was 14! >That's the highest it's ever been. I knew it had to be off the charts. He was the most horrid >shade of yellow I have ever seen. The whites of his eyes are even yellow. And his urine looks >like apple cider Actually for me the apple cider color urine is one of my 1st signs. If I notice it happening at home I start chugging as much water as I can, even it I end up in the bathroom peeing a lot. I am hoping that I can avert it going much further. And once my bilirubin hits about 3.0 you can actually see the yellow in the whites of my eyes pretty well. My GI always looks at me and says "nice shade of yellow in your eyes. Good luck and you are in my thoughts and prayers, Beth B Thornton,CO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2009 Report Share Posted January 13, 2009 >The bad news, his bilirubin was 14! >That's the highest it's ever been. I knew it had to be off the charts. He was the most horrid >shade of yellow I have ever seen. The whites of his eyes are even yellow. And his urine looks >like apple cider Actually for me the apple cider color urine is one of my 1st signs. If I notice it happening at home I start chugging as much water as I can, even it I end up in the bathroom peeing a lot. I am hoping that I can avert it going much further. And once my bilirubin hits about 3.0 you can actually see the yellow in the whites of my eyes pretty well. My GI always looks at me and says "nice shade of yellow in your eyes. Good luck and you are in my thoughts and prayers, Beth B Thornton,CO Quote Link to comment Share on other sites More sharing options...
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