Re: Leg pain Reply to leg pain

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Hi Ruth, 1-13-09I read your post and you sound like you have exactly the same symptoms that I had in my legs. I suffered for a long time withoutany relief and

finally my doctor prescribed requip 5mg. I take as needed when I feel the leg cramps or uneasiness seems to comeupon me at all times of the day or evening and then I cannot sleep.It really works wonders for me and the doctor says that their is alotof room to go up in dosage. I have not had to take but one dosewhen I become symptomatic. I am very grateful because now I cansleep. They just came out with a generic for the requip so if you areinterested just let me know. I have not had any ill side afects either.I hope this information will be of some help to you. Take

Care, Bonnie sSubject: Leg painTo: Date: Monday, January 12, 2009, 10:53 PM

Hi everyone, I posted for a while a few months ago when I was first

diagnosed, but recently I've gotten incredibly busy with work and the

kids and so have been keeping up by reading the email posts. You've

all been in my thoughts!

Lately I've had terrible pain in my legs. It's especially bad at

night when I'm trying to fall asleep or when I'm otherwise not moving

(like driving). I don't think it's "restless leg syndrom" because it

doesn't feel itchy, though moving my legs or massaging them does seem

to make it better. It feels more like my legs are sore as if I've

been exercising (which I haven't!).

I had this kind of thing twice in the past - once about eight years

ago, when I was first diagnosed with UC and was also having liver

problems (enzymes off the charts), though I wasn't diagnosed with PSC

at the time. I think it went away once they gave me all the meds for

the UC - like prednisone, Imuran, Pentasa, Cypro (they really loaded

me up then). The second time I had it was recently when I started

taking Asacol (I was only on Imuran at the time, now I'm on both). It

was a side effect that eventually went away. The thing is that I've

been on Asacol for about 7 months now and actually I ran out so I

haven't been taking it for a couple of days, which is exactly when

it's gotten worse. I probably have been doing a little more walking

than usual in the last few days (taking stairs and such in an effort

to be healthy), but nothing extreme.

Do you all have experience with this kind of pain? Is it a sign of

some kind of vitamin deficiency or UC inflamation or can it be PSC-

related? Is it a separate issue? Could it be restless leg after all?

I'm so disturbed because I can't sleep!

Thanks,

Ruth