Welcome ee

[Guest guest]

Glad you found us ee!

My name is Cheryl. I have had lupus since

a teen and raised 2 kids with it. I didn’t know why I was sick all the

time. I didn’t get a dx until in my 40’s. I used to be on the

hated Prednisone too. I was always taught NEVER GO OFF OF IT COLD TURKEY. They

make you taper off of it slowly. The other thing a good Dr. will do is start

with something lighter first. I am glad you are going to see a Rheumy. Can

you go to another and get a second opinion?

Please don’t every be embarrassed

about crying in a Dr.’s office!! Most of us have done it! I am a big

crybaby myself.Some of those creeps won’t take you

seriously unless you get mean or cry. Isn’t that right lupies?

Welcome to our group, feel comfortable to

whine, crab, scream, ask questions, tell jokes, or just say hi! We understand

because share a common problem that no one else can understand in full.

From: ee

Sent: Saturday, July 31, 2004

12:03 AM

To: LUPIES

Subject: Just thought I'd

say hello!

Hi everyone--

Thank you so much for letting me into your

group. I appreciate the

chance to talk with you as I know that many of you

are experiencing

some of the same things I am or already have

experienced them.

I'm 25 years old, married, with two little boys

(almost 3 and 19

months). I work part time nights as a sleep

lab technician. I have

been diagnosed with Lupus (SLE) by my general

practitioner but he is

a bit timid in treating me and seems to only know

one word when it

comes to treatment -- Prednisone. medication.

This doctor told me to go home, go off the prednisone,

get sicker, and come back.

That's when I started crying in his

office (how embarrassing huh).

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