Re: Live donor question(Cheryl)

[Guest guest]

Cheryl,

Thanks you so much for sharing your experience and feelings toward live donor transplant. I have a lot to think about concerning this if and when the need would arise for my son. You have shared things I hadn't thought of before. I had not given thought to the donor's health being affected long term from transplant. Even though one knows it would be asking something great I hadn't let myself delve that far into the details, since Nick isn't "there" yet. Good information.

in Mo.

son, Nick(9) liver disease 1/09

Subject: Re: Live donor questionTo: Date: Tuesday, April 7, 2009, 6:23 PM

Lori,My doctor used to say, (with his brusk humor) "It's not like giving a kidney or something." The risk of complications for the donor is much higher than for say a kidney. I personally would not consider putting anyone of my family member's health at risk, nor would I want someone else to do it either. But, I also understand I shouldn't make such a decision alone. I might be willing to die rather than have someone donate a part of their liver, but my family might have very different feelings on that issue. All of my four older children have health issues which would preclude them from donating anyway. I've had some in laws offer if the need arises. I hope never to have to make that decision. Even people with kidney issues die waiting for transplants. I have a friend who's mother needed a kidney transplant. Her husband gave one of his kidneys to his mother-in-law. Even though he was in excellent health (you have to be for them to

accept an organ), his health has been adversely affectedby his sacrifice. My friend now has the same disease her mother had. She will need a new kidney in the future. She says she will not accept a live donor after seeing what her husband has gone through. It's a very complex decsion. Take care, Cheryl ID PSC/UC/RP/ undx kidney problem Live donor question> > Why don't everyone with PSC have a live donor before the

disease progresses or even if it has progressed? Why can some and not others have this procedure?> > Lori A. > > "Aggressively Pursuing Solutions To Your Real Estate Needs!"> > First Weber Group> Cell: > 1507 E. Sunset Drive> Waukesha, WI 53189> LoriUSA@ Yahoo.com> www.Lori.FirstWeber .com> > Click here> >

[Guest guest]

,

I neglected to say when my sister died of breast cancer metastisized to her

liver, I would have donated to her in a second as would any of my other sisters.

This was not possible because it had also metastisized to other parts of her

body. I have ambiguous feelings about it. If it was my child or any child, I

would do it in a heartbeat and be more open to the idea of someone else

donating. Originally, only babies and small children received live donor

transplants. There is not as much risk to the donor when they donate to a

child. They don't have to take so much of the liver. What I feel on behalf of

myself and what I feel on behalf of my children and not the same thing. We have

had people on this site son to dad donation, brother to brother, parent to

child, I can't even remember them all. I would guess that the process of

transplanting from a live donor to another will improve as does all tranplanting

procedures and post transplant protocol continues to do. Take care, Cheryl ID,

50, PSC/UC/RP/undx kidney problem

Re: Live donor question

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> Date: Tuesday, April 7, 2009, 6:23 PM

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> > " Aggressively Pursuing Solutions To Your Real Estate Needs! "

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> > First Weber Group

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> > 1507 E. Sunset Drive

> > Waukesha, WI  53189

> > LoriUSA@ Yahoo.com

> > www.Lori.FirstWeber .com

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> > Click here

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