Lynn

[Guest guest]

Lynn,

I am allergic to Plaquenil, and can't take it as it causes a rash, have you checked with your doctor to see if this might be the case with you?

I never know untill I try to take a new medicine if I am going to be able to untill I get the rash, then it's always a struggle to get it under control again.

C.

Re: Lynn

> Hi and Thanks for the welcome. I haven't been here long either but > it does seem like a nice place with very nice people. The Plaquenil > didn't help with my rash at all. That's one of the reasons they > started me on the creams. The last thing I used was a cream called > Desowen. It did help the rash some but my faces started thinning and > you could see purple lines all through my face. Now they said this > is permanent and would not go away. I have been trying some make ups > to see if I can cover it with that....but no luck so far.> Lynn> > > > Hi Lynn, My name is Dee and I just joined yesterday. I have spent > > several hours on here already. It looks like this is a wonderful > > place for support. I have been having the lesions on my arms and > back > > for years. I am just now getting them on my face. I am hoping that > > they won't get to bad because my doctor won't let me use the > cream. > > Does the Plaquinil control the rash well for you. I seem to have > them > > pretty bad on my back. The ones on my arms don't seem to be as bad > > but they seem to be getting worse other places. I am on max dose > and > > not sure where else to go. Welcome.They won't allow me the creams either. I do know that there is a purple colored concealer out there, and I am sorry I don't know who makes it that my sister in law used for her rosacea that worked very well. If you can find some that might work well under your regular makeup. At this point I just use a regular concealer when I do wear makeup. "The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies

[Guest guest]

Lynn,

I am allergic to Plaquenil, and can't take it as it causes a rash, have you checked with your doctor to see if this might be the case with you?

I never know untill I try to take a new medicine if I am going to be able to untill I get the rash, then it's always a struggle to get it under control again.

C.

Re: Lynn

> Hi and Thanks for the welcome. I haven't been here long either but > it does seem like a nice place with very nice people. The Plaquenil > didn't help with my rash at all. That's one of the reasons they > started me on the creams. The last thing I used was a cream called > Desowen. It did help the rash some but my faces started thinning and > you could see purple lines all through my face. Now they said this > is permanent and would not go away. I have been trying some make ups > to see if I can cover it with that....but no luck so far.> Lynn> > > > Hi Lynn, My name is Dee and I just joined yesterday. I have spent > > several hours on here already. It looks like this is a wonderful > > place for support. I have been having the lesions on my arms and > back > > for years. I am just now getting them on my face. I am hoping that > > they won't get to bad because my doctor won't let me use the > cream. > > Does the Plaquinil control the rash well for you. I seem to have > them > > pretty bad on my back. The ones on my arms don't seem to be as bad > > but they seem to be getting worse other places. I am on max dose > and > > not sure where else to go. Welcome.They won't allow me the creams either. I do know that there is a purple colored concealer out there, and I am sorry I don't know who makes it that my sister in law used for her rosacea that worked very well. If you can find some that might work well under your regular makeup. At this point I just use a regular concealer when I do wear makeup. "The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies

[Guest guest]

>Do you think you could conclude that if a person shows signs of

>hyperthyroidism on dosages less than 3 grains, that is prima facie

>evidence that the person has something else wrong with them, such

>as adrenal insufficiency, anemia, or nutritional imbalances?

Hi Lynn. Lynn, I have personally observed this very prima facie,

first site evidence all the time since this site started 2 1/2 years

ago...namely that when most anyone has had hyper-like symptoms under

3 grains, it is definitely and USUALLY pointing to other issues,

such as low Ferritin or adrenal insufficiency.

Also, from my own experience.......when I had gotten up to 2 grains,

I thought I had reached my optimal dose. My energy level was

profoundly different than before, as was my hair softer, oilier on

the roots, less low-grade depression...on and on. Yet......I also

had heard that the minimum dose was 3 grains and higher before the

TSH and labs came into existance. SO........I pushed the limit. I

raised my dose 1/4 grain at a time, holding each dose. When I got up

to 3 grains, VOILA! No hyper and even MORE benefits...the most

obvious that I could EAT more without gaining so much weight as

before. I am now holding at 3 1/4 grains....and will be

experimenting with 3 1/2 grains again eventually.

And when you mention a potential " anti-thyroid factor that kills off

the T3 prematurely " ---to me, that sounds like a person who isn't

getting enough T3 in the first place.....

Janie