Happy re-birthday!

[Guest guest]

To Cinda! 02/11/06 (sorry, not sure of exact date)

From the archives of 2006:

On Behalf Of cinda

Sent: Thursday,

June 22, 2006 4:56 PM

Subject: Transplant

I wanted to give the group some positive news. I was

diagnosed with AIH in 96 (age 34), then PSC in 2001. I would come and go

checking the support group, went through the itching, fatigue, jaundice etc. I

found a lot of helpful people and information connected to this support group.

I got listed in Jan. 2005, and had a transplant in Nov., 2005. Unfortunately

the liver did not work out well - something about the deteriation during the

preservation time. The outflow veins strickened so I ended up with severe edema

where I had to get 3-7 litters drained a week out of my belly. I was lucky and had

a second transplant in Feb. 06. I ended up with a bile leak in my stomach due

to the area of connection had been reworked too many times (I had bile duct

surgery in 2001). Luckily the leak healed itself because due to my malnutrition

status the drs. were concerned about going back in and repairing the leak -

might cause other problems. After a month I was feeling great but had a slight rejection

episode which took two rounds of high IV steroid dose and revamped the anti rejection

drugs - prograff, cellcept, and prednisone. Now 4 months later, I am doing

great - playing golf and tennis again. Still have that steel ball feeling in my

stomach but can now eat about anything and feeling better than I have in a long

time - no itching, no jaundice and a lot less fatigue!!! I know going

through all this I always was looking for information and appreciated the

insight from many people on the support group. Feel free to email me - if

you have any questions. I can’t guarantee I can answer them but I can

relay whatever experience I had if it helps anyone get through whatever phase

they are in.

Cinda