Re: 13 year old daughter newly diagnosed

[Guest guest]

Dora,

Welcome to the group. There are several mothers of young children in the group and several members from down under (of course from your prospective, your right side up and all us in the northern hemisphere are upside down) Medical advances continue to be made and I expect they will find a cure within your daughters long life.

Ian (52) PSC 89

Hello everyone, finally I have somewhere where I can ask questionsinstead of either getting no information from doctors or beingpatronised when I do!My 13 year old daughter has been diagnosed with PSC with perhaps an

overlap of AIH. She has been put on 500mg daily of Urso which broughtdown her levels considerably in the first month but have been slowlyrising again. The Urso has now been doubled to 1000mg and she weighs40.5 kg.

My main question here is does anyone know of a PSC specialist inMelbourne, Australia?I want to have a second opinion independantly from the children'shospital.Thanking everyone in advanceDora

-- Ian Cribb P.Eng.