Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 Your 2 stories are wonderful! I'm starting to notice these things, too. I can now wash my hair and not have a breakdown over the amount of loss. I can walk up the stairs and not have to sit at the top for my heart to stop racing. I can talk to my kids and actually be in touch with them. I can make it through a day with out crying. BUT -- what I am noticing is that I'm not letting myself *really* enjoy these things. I take note of them and write them on my symptoms spreadsheeet, but I guess I'm too scared to believe they're really going to last. I've had soooo many ups and downs the last few years -- where I'd feel better and then it would be gone. I think I'm just waiting for the other shoe to drop again. And even though I now know why I had those ups and downs in the past (adrenals), I just don't know how to let myself go and enjoy the improvements because if I have another setback, it would be too much of a disappointment. So I put a wall up to protect myself from the inevitable let down. But, what if this time, there isn't a letdown? What if it really stays? When do I let myself believe it? I guess I'm rambling, but does any of this make sense? Also, just last night, my husband was starting to reminisce about when we first got married. I told him right now it's too hard for me to do that (which kinda upset my husband). But if I look back at the good times, I realize that I'm still not quite back to my original self -- and that also, it makes me too sad because I realize how much I missed while being sick all these years. I look at how old my boys are and know how much I missed. I look at the years my husband and I spent fighting before we knew what was wrong and it all makes me so sad. So at this point, I prefer to just live in the moment, and not look back at either the good or bad times because I just can't deal with it yet. But, yet at the same time, I've put that wall up from *truly* enjoying the better times now! What a mess I am, huh? Maybe it's just that after fighting this for so long, it's hard to just plain live again. Sorry so long. Debbie > > But believe me, I am grateful for every single thing I can do. I am glad i can wash > the clothes and load the dishwasher. I couldn't do that a year or so ago. I > am grateful that I can sit on my porch and see the beauty around me out here in > the country. My world was full and gray a little over a year ago. I am > grateful that I can breathe deep for the first time in 15 years. I am grateful > that I am not too tired to pet my kitty and play with her. I am grateful that I > am not consumed with anxious thoughts any more. I am grateful that when my > husband kisses me, my lips have sensation again and that the kiss is so sweet. > I am grateful that my mind functions again. I am grateful that I can get thru > the day without a nap. I am grateful that I am once again a sweet person who > doesn't get irritable at every little thing. I am grateful that I have > energy to take a shower and enjoy it. > Quote Link to comment Share on other sites More sharing options...
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