Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 Hi, Wesley has had PSC since he was 1 years old ( very rare ). Ulcerative Colitis at the same time. I read that the MMP-3 gene etc etc etc reasearch links this to a susceptibility to PSC. Now Wesley has Adolescent Scoliosis which can be caused by the same MMP-3 gene problem which causes inflammation in the bones ( just like the liver )and causes degenerative bone disease which in turn causes scoliosis. I am taking him to s Hopkins ASAP! Just wondered who else in this group may have both diseases ??? MARNA and WESLEY ( almost 14....13 years of PSC ...third stage or worse) Quote Link to comment Share on other sites More sharing options...
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