Guest guest Posted December 21, 2008 Report Share Posted December 21, 2008 Hello Everybody, My son Wesley has had PSC/UC since age 1. He has been fatigued all his life and never knew anything different so never complained. I could see the huge difference when I had my second son two years later. Wesley was stage 3 two years ago. He needs biopsies right now. We just started giving IV Glutahione in September. After one dose he said he felt like Superman. It increased his appetite. His liver functions went to almost normal and they stay at the 500-700's because he does not take Ursodiol. I gave him two IV's a week for 6 weeks. It is supposed to wear off after about four months. I just ordered 400 dollars worth ( 24 doses ). But he says his energy level has never dropped out. IT HAS MADE SUCH A DRASTIC DIFFERENCE IN HIS ENERGY that he will take it the rest of his life ! Pre and post transplant. I think everyone should try it. It is helping Aids patients, ALS, Parkinsons, Autistic, Liver, poisoned, Chronic Fatigue Syndrome, etc. www.glutathioneexperts.com http://www.chronicfatiguetreatments.com/wordpress/treatments/methylati on-cycle-block-theory-chronic-fatigue-syndrome/ http://www.phoenix-cfs.org/GSHMethylDeplTheoryJuly07.htm Marna and Wesley > > I am curious how some of you do with fatique. The last biopsy I had > put me at stage 1 PSC, but that was 2 years ago and I may have > progressed since then. I am noticing more and more significantly > that I am more fatiqued now than I was even 2 years ago. At the > current time, i'm trying to determine if it is diet and excercise > related because both my diet and excersice routines have suffered - > but a couple weeks in to " getting on track " I haven't really noticed > an improvement. > > I can still work a full 8 hour day and play with my daughter for > awhile when I get home, but feel like my arms and legs are " heavy " > and I really just want to relax. This did not used to be the case > for me as I used to be quite a bit more active. > > When did some of you really start to experience fatique? Was there a > specific point in the progression of PSC that you noticed it? Was > that at stage 4/cirrhosis or was it before that? Could you tell > without doubt that your fatique was caused by PSC? > > Thank you for any feedback here! > > Rick > Quote Link to comment Share on other sites More sharing options...
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