Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 All of the things you said I relate with. Right now, burning in the soles of my feet is a major problem. I was ruled out for ms as I had the MRI, ..reason for that was I was having RLS and muscle coordination problems, and weakness so bad I had to sit in the middle of the hall because I couldn't take another step. My doc did find me anemic and I take iron when I get RLS now. It seems to help. I think there is a very direct correlation with autoimmune diseases and FM. I think they just need to find the link. > After a lot of research, I have found that the > symptoms of CFS/Fibro are eerily similar to those of > Multiple Sclerosis. Has anyone else noticed this? My > symptoms worsen as I get older and I seem to get newer > ones. The newer ones are increasing fatigue, over-all > body weakness, burning soles of the feet, and > uncontrollable muscle twitches. I also have RLS every > night which is something I had never had before. I > should probably get an MRI but have severe > claustrophobia and don't want one. Anyway, call me in > denial but IF I have indeed developed MS, I don't want > to know. My life is enough of a mess, I can't handle > the news emotionally. Can anyone on the list relate > to this? > I am 51 years old, a single mom, on SSI, and have had > CFS all my life and Fibromyalgia for the last ten > years. I am getting progressively worse and my HMO > primary care physician doesn't know what to do for me. > I am thinking of going to see a Rheumatologist if I > can find a way to travel 70 miles to the UCLA Medical > Center. I live out in the middle of the California > desert and have no friends, family, or resources here. > Perhaps Social Services may offer something but I > have yet to look into it. > Anyway, any feedback would be greatly appreciated. > Healing Hugs, > Lynne > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 All of the things you said I relate with. Right now, burning in the soles of my feet is a major problem. I was ruled out for ms as I had the MRI, ..reason for that was I was having RLS and muscle coordination problems, and weakness so bad I had to sit in the middle of the hall because I couldn't take another step. My doc did find me anemic and I take iron when I get RLS now. It seems to help. I think there is a very direct correlation with autoimmune diseases and FM. I think they just need to find the link. > After a lot of research, I have found that the > symptoms of CFS/Fibro are eerily similar to those of > Multiple Sclerosis. Has anyone else noticed this? My > symptoms worsen as I get older and I seem to get newer > ones. The newer ones are increasing fatigue, over-all > body weakness, burning soles of the feet, and > uncontrollable muscle twitches. I also have RLS every > night which is something I had never had before. I > should probably get an MRI but have severe > claustrophobia and don't want one. Anyway, call me in > denial but IF I have indeed developed MS, I don't want > to know. My life is enough of a mess, I can't handle > the news emotionally. Can anyone on the list relate > to this? > I am 51 years old, a single mom, on SSI, and have had > CFS all my life and Fibromyalgia for the last ten > years. I am getting progressively worse and my HMO > primary care physician doesn't know what to do for me. > I am thinking of going to see a Rheumatologist if I > can find a way to travel 70 miles to the UCLA Medical > Center. I live out in the middle of the California > desert and have no friends, family, or resources here. > Perhaps Social Services may offer something but I > have yet to look into it. > Anyway, any feedback would be greatly appreciated. > Healing Hugs, > Lynne > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 All of the things you said I relate with. Right now, burning in the soles of my feet is a major problem. I was ruled out for ms as I had the MRI, ..reason for that was I was having RLS and muscle coordination problems, and weakness so bad I had to sit in the middle of the hall because I couldn't take another step. My doc did find me anemic and I take iron when I get RLS now. It seems to help. I think there is a very direct correlation with autoimmune diseases and FM. I think they just need to find the link. > After a lot of research, I have found that the > symptoms of CFS/Fibro are eerily similar to those of > Multiple Sclerosis. Has anyone else noticed this? My > symptoms worsen as I get older and I seem to get newer > ones. The newer ones are increasing fatigue, over-all > body weakness, burning soles of the feet, and > uncontrollable muscle twitches. I also have RLS every > night which is something I had never had before. I > should probably get an MRI but have severe > claustrophobia and don't want one. Anyway, call me in > denial but IF I have indeed developed MS, I don't want > to know. My life is enough of a mess, I can't handle > the news emotionally. Can anyone on the list relate > to this? > I am 51 years old, a single mom, on SSI, and have had > CFS all my life and Fibromyalgia for the last ten > years. I am getting progressively worse and my HMO > primary care physician doesn't know what to do for me. > I am thinking of going to see a Rheumatologist if I > can find a way to travel 70 miles to the UCLA Medical > Center. I live out in the middle of the California > desert and have no friends, family, or resources here. > Perhaps Social Services may offer something but I > have yet to look into it. > Anyway, any feedback would be greatly appreciated. > Healing Hugs, > Lynne > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 They do have open MRI's these days, anyhow, here in Arkansas. I found the social isolation of living in the Imperial Desert CA to be devastating. I taught college out there 3 years (and never found a fulltime college job after that). When I quit, the chairperson of my group told me that when they hired in, they told people that most teachers could not take it that long. I know there are more people living there now but in that heat, how can you get out to socialize? I also had hepatitus out there and was the defining event that let me know I had Fibro although we didn't know its name in those days. It made it hard for me to look for work although I think I could have handled college teaching and Fibro for many years. Yes, I have progressively went downhill from there and have stayed in a marriage I don't want because I have to have financial, social, and physical care I can't get otherwise. I went ahead and had another baby at 40 because I needed something to give meaning to life and that child, now at Stanford, surely did that. What an angel she is, although that was the defining event (her birth) that let me know Fibro was here to stay and to completely control my life. I wound up home schooling her because she was so bright, so much fun to be with, and because I just couldn't get her off to school in the morning and handle all the things that public school brought. Margaret (Marty) Byers , Ph.D., Writer, Retired Social Psychologist HTTP://members.aol.com/historyresearchHTTP://members.aol.com/historyrese\ arch socpsychology@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 They do have open MRI's these days, anyhow, here in Arkansas. I found the social isolation of living in the Imperial Desert CA to be devastating. I taught college out there 3 years (and never found a fulltime college job after that). When I quit, the chairperson of my group told me that when they hired in, they told people that most teachers could not take it that long. I know there are more people living there now but in that heat, how can you get out to socialize? I also had hepatitus out there and was the defining event that let me know I had Fibro although we didn't know its name in those days. It made it hard for me to look for work although I think I could have handled college teaching and Fibro for many years. Yes, I have progressively went downhill from there and have stayed in a marriage I don't want because I have to have financial, social, and physical care I can't get otherwise. I went ahead and had another baby at 40 because I needed something to give meaning to life and that child, now at Stanford, surely did that. What an angel she is, although that was the defining event (her birth) that let me know Fibro was here to stay and to completely control my life. I wound up home schooling her because she was so bright, so much fun to be with, and because I just couldn't get her off to school in the morning and handle all the things that public school brought. Margaret (Marty) Byers , Ph.D., Writer, Retired Social Psychologist HTTP://members.aol.com/historyresearchHTTP://members.aol.com/historyrese\ arch socpsychology@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 They do have open MRI's these days, anyhow, here in Arkansas. I found the social isolation of living in the Imperial Desert CA to be devastating. I taught college out there 3 years (and never found a fulltime college job after that). When I quit, the chairperson of my group told me that when they hired in, they told people that most teachers could not take it that long. I know there are more people living there now but in that heat, how can you get out to socialize? I also had hepatitus out there and was the defining event that let me know I had Fibro although we didn't know its name in those days. It made it hard for me to look for work although I think I could have handled college teaching and Fibro for many years. Yes, I have progressively went downhill from there and have stayed in a marriage I don't want because I have to have financial, social, and physical care I can't get otherwise. I went ahead and had another baby at 40 because I needed something to give meaning to life and that child, now at Stanford, surely did that. What an angel she is, although that was the defining event (her birth) that let me know Fibro was here to stay and to completely control my life. I wound up home schooling her because she was so bright, so much fun to be with, and because I just couldn't get her off to school in the morning and handle all the things that public school brought. Margaret (Marty) Byers , Ph.D., Writer, Retired Social Psychologist HTTP://members.aol.com/historyresearchHTTP://members.aol.com/historyrese\ arch socpsychology@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 I had an uncle on my mom side that had MS and died from it and also a nephew who was diagnosed with it a year ago. So it can be possible I get it. The burning feet I get that I didn't know that that was a symstom to Fibro/CFS, I just thought it something else--weird!! You are not alone when it comes to being scard to get MS that has been in mind alot, even before I got this dianose. Some days I still woner!! I understand that fear and denial!! Shirley CFS/Fibro vs MS After a lot of research, I have found that the symptoms of CFS/Fibro are eerily similar to those of Multiple Sclerosis. Has anyone else noticed this? My symptoms worsen as I get older and I seem to get newer ones. The newer ones are increasing fatigue, over-all body weakness, burning soles of the feet, and uncontrollable muscle twitches. I also have RLS every night which is something I had never had before. I should probably get an MRI but have severe claustrophobia and don't want one. Anyway, call me in denial but IF I have indeed developed MS, I don't want to know. My life is enough of a mess, I can't handle the news emotionally. Can anyone on the list relate to this? I am 51 years old, a single mom, on SSI, and have had CFS all my life and Fibromyalgia for the last ten years. I am getting progressively worse and my HMO primary care physician doesn't know what to do for me. I am thinking of going to see a Rheumatologist if I can find a way to travel 70 miles to the UCLA Medical Center. I live out in the middle of the California desert and have no friends, family, or resources here. Perhaps Social Services may offer something but I have yet to look into it. Anyway, any feedback would be greatly appreciated. Healing Hugs, Lynne __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Lynne wrote: > > After a lot of research, I have found that the > symptoms of CFS/Fibro are eerily similar to those of > Multiple Sclerosis. Has anyone else noticed this? Yup, in fact we had a small thread on this the other month. I'm kicking myself, there was a terrific book I had recommended on MS that was made up of a group of internet friends and their emails about it. Reading it was a lot like reading this group. I wish I had kept the title permanent written somewhere because it was a *Great* book. Maybe someone else remembers it or you can look it up in the archives. It was by Lynne or Judith Somebody or other I think. > I > should probably get an MRI but have severe > claustrophobia and don't want one. Anyway, call me in > denial but IF I have indeed developed MS, I don't want > to know. My life is enough of a mess, I can't handle > the news emotionally. Can anyone on the list relate > to this? I'm claustrophobia as far as an MRI is concerned, but they gave me 2 mg of Xanax when I went to have one done to see if I had MS. I won't dread another one if they give the Xanax to me again. I didn't know a *thing* about it. I went to sleep and woke up in the small room no where near the MRI. I use to feel like you did about not being told I had XYZ, then suddenly one day it dawned on me. What difference did it make if they did so? I was *already* living and dealing with the symptoms, so what difference did a name make? At least with a name, I could tell people something they might understand instead of a bunch of symptoms. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Lynne wrote: > > After a lot of research, I have found that the > symptoms of CFS/Fibro are eerily similar to those of > Multiple Sclerosis. Has anyone else noticed this? Yup, in fact we had a small thread on this the other month. I'm kicking myself, there was a terrific book I had recommended on MS that was made up of a group of internet friends and their emails about it. Reading it was a lot like reading this group. I wish I had kept the title permanent written somewhere because it was a *Great* book. Maybe someone else remembers it or you can look it up in the archives. It was by Lynne or Judith Somebody or other I think. > I > should probably get an MRI but have severe > claustrophobia and don't want one. Anyway, call me in > denial but IF I have indeed developed MS, I don't want > to know. My life is enough of a mess, I can't handle > the news emotionally. Can anyone on the list relate > to this? I'm claustrophobia as far as an MRI is concerned, but they gave me 2 mg of Xanax when I went to have one done to see if I had MS. I won't dread another one if they give the Xanax to me again. I didn't know a *thing* about it. I went to sleep and woke up in the small room no where near the MRI. I use to feel like you did about not being told I had XYZ, then suddenly one day it dawned on me. What difference did it make if they did so? I was *already* living and dealing with the symptoms, so what difference did a name make? At least with a name, I could tell people something they might understand instead of a bunch of symptoms. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Lynne wrote: > > After a lot of research, I have found that the > symptoms of CFS/Fibro are eerily similar to those of > Multiple Sclerosis. Has anyone else noticed this? Yup, in fact we had a small thread on this the other month. I'm kicking myself, there was a terrific book I had recommended on MS that was made up of a group of internet friends and their emails about it. Reading it was a lot like reading this group. I wish I had kept the title permanent written somewhere because it was a *Great* book. Maybe someone else remembers it or you can look it up in the archives. It was by Lynne or Judith Somebody or other I think. > I > should probably get an MRI but have severe > claustrophobia and don't want one. Anyway, call me in > denial but IF I have indeed developed MS, I don't want > to know. My life is enough of a mess, I can't handle > the news emotionally. Can anyone on the list relate > to this? I'm claustrophobia as far as an MRI is concerned, but they gave me 2 mg of Xanax when I went to have one done to see if I had MS. I won't dread another one if they give the Xanax to me again. I didn't know a *thing* about it. I went to sleep and woke up in the small room no where near the MRI. I use to feel like you did about not being told I had XYZ, then suddenly one day it dawned on me. What difference did it make if they did so? I was *already* living and dealing with the symptoms, so what difference did a name make? At least with a name, I could tell people something they might understand instead of a bunch of symptoms. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Is that how they tell the difference, with an MRI? Mandy Howell Mystique Scents www.mystiquescents.com -- Re: CFS/Fibro vs MS Lynne wrote: > > After a lot of research, I have found that the > symptoms of CFS/Fibro are eerily similar to those of > Multiple Sclerosis. Has anyone else noticed this? Yup, in fact we had a small thread on this the other month. I'm kicking myself, there was a terrific book I had recommended on MS that was made up of a group of internet friends and their emails about it. Reading it was a lot like reading this group. I wish I had kept the title permanent written somewhere because it was a *Great* book. Maybe someone else remembers it or you can look it up in the archives. It was by Lynne or Judith Somebody or other I think. > I > should probably get an MRI but have severe > claustrophobia and don't want one. Anyway, call me in > denial but IF I have indeed developed MS, I don't want > to know. My life is enough of a mess, I can't handle > the news emotionally. Can anyone on the list relate > to this? I'm claustrophobia as far as an MRI is concerned, but they gave me 2 mg of Xanax when I went to have one done to see if I had MS. I won't dread another one if they give the Xanax to me again. I didn't know a *thing* about it. I went to sleep and woke up in the small room no where near the MRI. I use to feel like you did about not being told I had XYZ, then suddenly one day it dawned on me. What difference did it make if they did so? I was *already* living and dealing with the symptoms, so what difference did a name make? At least with a name, I could tell people something they might understand instead of a bunch of symptoms. Darcy SEND POST TO: fibromyalgia-cfs HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html LIST OWNER: " Missy " Parrot004@...> UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Is that how they tell the difference, with an MRI? Mandy Howell Mystique Scents www.mystiquescents.com -- Re: CFS/Fibro vs MS Lynne wrote: > > After a lot of research, I have found that the > symptoms of CFS/Fibro are eerily similar to those of > Multiple Sclerosis. Has anyone else noticed this? Yup, in fact we had a small thread on this the other month. I'm kicking myself, there was a terrific book I had recommended on MS that was made up of a group of internet friends and their emails about it. Reading it was a lot like reading this group. I wish I had kept the title permanent written somewhere because it was a *Great* book. Maybe someone else remembers it or you can look it up in the archives. It was by Lynne or Judith Somebody or other I think. > I > should probably get an MRI but have severe > claustrophobia and don't want one. Anyway, call me in > denial but IF I have indeed developed MS, I don't want > to know. My life is enough of a mess, I can't handle > the news emotionally. Can anyone on the list relate > to this? I'm claustrophobia as far as an MRI is concerned, but they gave me 2 mg of Xanax when I went to have one done to see if I had MS. I won't dread another one if they give the Xanax to me again. I didn't know a *thing* about it. I went to sleep and woke up in the small room no where near the MRI. I use to feel like you did about not being told I had XYZ, then suddenly one day it dawned on me. What difference did it make if they did so? I was *already* living and dealing with the symptoms, so what difference did a name make? At least with a name, I could tell people something they might understand instead of a bunch of symptoms. Darcy SEND POST TO: fibromyalgia-cfs HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html LIST OWNER: " Missy " Parrot004@...> UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Is that how they tell the difference, with an MRI? Mandy Howell Mystique Scents www.mystiquescents.com -- Re: CFS/Fibro vs MS Lynne wrote: > > After a lot of research, I have found that the > symptoms of CFS/Fibro are eerily similar to those of > Multiple Sclerosis. Has anyone else noticed this? Yup, in fact we had a small thread on this the other month. I'm kicking myself, there was a terrific book I had recommended on MS that was made up of a group of internet friends and their emails about it. Reading it was a lot like reading this group. I wish I had kept the title permanent written somewhere because it was a *Great* book. Maybe someone else remembers it or you can look it up in the archives. It was by Lynne or Judith Somebody or other I think. > I > should probably get an MRI but have severe > claustrophobia and don't want one. Anyway, call me in > denial but IF I have indeed developed MS, I don't want > to know. My life is enough of a mess, I can't handle > the news emotionally. Can anyone on the list relate > to this? I'm claustrophobia as far as an MRI is concerned, but they gave me 2 mg of Xanax when I went to have one done to see if I had MS. I won't dread another one if they give the Xanax to me again. I didn't know a *thing* about it. I went to sleep and woke up in the small room no where near the MRI. I use to feel like you did about not being told I had XYZ, then suddenly one day it dawned on me. What difference did it make if they did so? I was *already* living and dealing with the symptoms, so what difference did a name make? At least with a name, I could tell people something they might understand instead of a bunch of symptoms. Darcy SEND POST TO: fibromyalgia-cfs HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html LIST OWNER: " Missy " Parrot004@...> UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Mandy wrote: > > Is that how they tell the difference, with an MRI? An MRI is one of the tools they can use to help spot MS. If you have MS, you should have white lesions on your brain, so they will do a MRI of your brain to see if they are there. Unfortunately, like everything else in life, it's not perfect. Some people with MS have no brain lesions, just lesions on your spine (my doctor didn't ask for a spine MRI), sometimes if you're just starting to develop symptoms, your lesions might not be visible, and sometimes people make mistakes when they read the MRI. Generally, if they think they see some, they'll give you a contrasting dye to help things show up better. For the vast majority of people though, if you don't have the lesions on the brain, you don't have MS. If your doctor feels like your symptoms could be MS, they'll usually do an MRI. If they feel your symptoms aren't MS like, they won't. Fibro is a disease of exclusion meaning they rule everything else out and if you also have the tender points, you have fibro. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Mandy wrote: > > Is that how they tell the difference, with an MRI? An MRI is one of the tools they can use to help spot MS. If you have MS, you should have white lesions on your brain, so they will do a MRI of your brain to see if they are there. Unfortunately, like everything else in life, it's not perfect. Some people with MS have no brain lesions, just lesions on your spine (my doctor didn't ask for a spine MRI), sometimes if you're just starting to develop symptoms, your lesions might not be visible, and sometimes people make mistakes when they read the MRI. Generally, if they think they see some, they'll give you a contrasting dye to help things show up better. For the vast majority of people though, if you don't have the lesions on the brain, you don't have MS. If your doctor feels like your symptoms could be MS, they'll usually do an MRI. If they feel your symptoms aren't MS like, they won't. Fibro is a disease of exclusion meaning they rule everything else out and if you also have the tender points, you have fibro. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Dear Lynne, Yes, I noticed that right off the bat! Since my fibro started after severe neck injury and spinal cord trauma, I have worried about MS far more than what I've got " going " now!! And, I don't want to know that just yet, too!! I'm orginally from Yucca Valley, and I'm looking into " moving home " again (I've been living in Okla since '91 & every year the weather changes are harder and harder on me!). ~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Dear Lynne, Yes, I noticed that right off the bat! Since my fibro started after severe neck injury and spinal cord trauma, I have worried about MS far more than what I've got " going " now!! And, I don't want to know that just yet, too!! I'm orginally from Yucca Valley, and I'm looking into " moving home " again (I've been living in Okla since '91 & every year the weather changes are harder and harder on me!). ~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Dear Lynne, Yes, I noticed that right off the bat! Since my fibro started after severe neck injury and spinal cord trauma, I have worried about MS far more than what I've got " going " now!! And, I don't want to know that just yet, too!! I'm orginally from Yucca Valley, and I'm looking into " moving home " again (I've been living in Okla since '91 & every year the weather changes are harder and harder on me!). ~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Socpsychology@... wrote: > > They do have open MRI's these days, anyhow, here in Arkansas. They have them here in NC too, but my neurologist said she didn't want to use one because they aren't quite as good for fine details as a closed one. She said she would hate to over look lesions if an open one didn't pick them up. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Hi Lynne, I was reading your email about MS, I have started having some muscle weakness, it started last week, I thought it could be from eating candy,too much sugar, I hope it is not MS, I'm 54 and I don't want to do anything anymore, I don't feel like it. You said you had RLS every night, what that? I don't want to get in one of those MRI, I had my knee in one, I don't think I want my whole body in it. I do hope you have a good day. Audie CFS/Fibro vs MS After a lot of research, I have found that the symptoms of CFS/Fibro are eerily similar to those of Multiple Sclerosis. Has anyone else noticed this? My symptoms worsen as I get older and I seem to get newer ones. The newer ones are increasing fatigue, over-all body weakness, burning soles of the feet, and uncontrollable muscle twitches. I also have RLS every night which is something I had never had before. I should probably get an MRI but have severe claustrophobia and don't want one. Anyway, call me in denial but IF I have indeed developed MS, I don't want to know. My life is enough of a mess, I can't handle the news emotionally. Can anyone on the list relate to this? I am 51 years old, a single mom, on SSI, and have had CFS all my life and Fibromyalgia for the last ten years. I am getting progressively worse and my HMO primary care physician doesn't know what to do for me. I am thinking of going to see a Rheumatologist if I can find a way to travel 70 miles to the UCLA Medical Center. I live out in the middle of the California desert and have no friends, family, or resources here. Perhaps Social Services may offer something but I have yet to look into it. Anyway, any feedback would be greatly appreciated. Healing Hugs, Lynne __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Hi Lynne, I was reading your email about MS, I have started having some muscle weakness, it started last week, I thought it could be from eating candy,too much sugar, I hope it is not MS, I'm 54 and I don't want to do anything anymore, I don't feel like it. You said you had RLS every night, what that? I don't want to get in one of those MRI, I had my knee in one, I don't think I want my whole body in it. I do hope you have a good day. Audie CFS/Fibro vs MS After a lot of research, I have found that the symptoms of CFS/Fibro are eerily similar to those of Multiple Sclerosis. Has anyone else noticed this? My symptoms worsen as I get older and I seem to get newer ones. The newer ones are increasing fatigue, over-all body weakness, burning soles of the feet, and uncontrollable muscle twitches. I also have RLS every night which is something I had never had before. I should probably get an MRI but have severe claustrophobia and don't want one. Anyway, call me in denial but IF I have indeed developed MS, I don't want to know. My life is enough of a mess, I can't handle the news emotionally. Can anyone on the list relate to this? I am 51 years old, a single mom, on SSI, and have had CFS all my life and Fibromyalgia for the last ten years. I am getting progressively worse and my HMO primary care physician doesn't know what to do for me. I am thinking of going to see a Rheumatologist if I can find a way to travel 70 miles to the UCLA Medical Center. I live out in the middle of the California desert and have no friends, family, or resources here. Perhaps Social Services may offer something but I have yet to look into it. Anyway, any feedback would be greatly appreciated. Healing Hugs, Lynne __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2002 Report Share Posted June 8, 2002 Mandy Howell writes, > Is that how they tell the difference, with an MRI? A MRI and having a spinal tap. My sister has it and in her day you just went with the symptoms but now there are the ways mentioned. A friend of mine was diagnosed about a year ago. Hers was found with the spinal tap. She is now on SSD and takes the shots that seem to help both her and my sister. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2002 Report Share Posted June 8, 2002 Mandy Howell writes, > Is that how they tell the difference, with an MRI? A MRI and having a spinal tap. My sister has it and in her day you just went with the symptoms but now there are the ways mentioned. A friend of mine was diagnosed about a year ago. Hers was found with the spinal tap. She is now on SSD and takes the shots that seem to help both her and my sister. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2002 Report Share Posted June 8, 2002 Mandy Howell writes, > Is that how they tell the difference, with an MRI? A MRI and having a spinal tap. My sister has it and in her day you just went with the symptoms but now there are the ways mentioned. A friend of mine was diagnosed about a year ago. Hers was found with the spinal tap. She is now on SSD and takes the shots that seem to help both her and my sister. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.