information on Urso and Dr. Lindor

[Guest guest]

Hi everyone,

Can someone link me to some information on the high dose Urso issue at the Mayo clinic, I just went to see my doctor today and we discussed it and he would like me to forward some information to him to read ..................he wants to leave me on the Urso until he reads the issues that the Mayo has with it. Thanks

B.

PSC 1994

[Guest guest]

Shaul,

Not as far as I know. These hepatologists

were in consensus that the dose used by Dr. Lindor was apparently too high. There

was no way for Dr. Lindor to know this before he started the clinical trial,

but this is what these hepatologists think in retrospect.

Regards,

Chaim Boermeester

From: [mailto: ] On Behalf Of CholangitisSuprt@...

Sent: Wednesday, December 03, 2008

15:42

To:

Subject: Re:

information on Urso and Dr. Lindor

Chaim

Is there any concrete evidence?

Shaul

PSC UC

Sent via

BlackBerry by AT & T

From: Chaim

Boermeester

Date: Wed, 03 Dec 2008

11:06:14 +0200

To: < >

Subject: RE:

information on Urso and Dr. Lindor

,

I asked this question specifically to a forum of hepatologists at

the Israeli liver health foundation. They all were at the San Fransisco meeting

where Dr Lindor spoke about his research. The hepatologists in the forum think

that Dr. Lindor gave a too high (toxic) dose of Urso to his patients. They now

recommend a dose of up to 25mg/kg bodyweight.

Did you know that Urso stands for " bear " . The hepatologist

who answered me yesterday said that bears only have ursodeoxycholic acid as

bile acid (and not several bile acids like humans do), and that that’s

why it is called URSO.

Regards,

Chaim

From:

[mailto: ]

On Behalf Of B.

Sent: Wednesday, December 03, 2008

05:01

To:

Subject: information

on Urso and Dr. Lindor

Hi everyone,

Can someone link

me to some information on the high dose Urso issue at the Mayo clinic, I just

went to see my doctor today and we discussed it and he would like me to

forward some information to him to read ..................he wants to

leave me on the Urso until he reads the issues that the Mayo has with

it. Thanks

B.

PSC 1994

[Guest guest]

Shaul,

Not as far as I know. These hepatologists

were in consensus that the dose used by Dr. Lindor was apparently too high. There

was no way for Dr. Lindor to know this before he started the clinical trial,

but this is what these hepatologists think in retrospect.

Regards,

Chaim Boermeester

From: [mailto: ] On Behalf Of CholangitisSuprt@...

Sent: Wednesday, December 03, 2008

15:42

To:

Subject: Re:

information on Urso and Dr. Lindor

Chaim

Is there any concrete evidence?

Shaul

PSC UC

Sent via

BlackBerry by AT & T

From: Chaim

Boermeester

Date: Wed, 03 Dec 2008

11:06:14 +0200

To: < >

Subject: RE:

information on Urso and Dr. Lindor

,

I asked this question specifically to a forum of hepatologists at

the Israeli liver health foundation. They all were at the San Fransisco meeting

where Dr Lindor spoke about his research. The hepatologists in the forum think

that Dr. Lindor gave a too high (toxic) dose of Urso to his patients. They now

recommend a dose of up to 25mg/kg bodyweight.

Did you know that Urso stands for " bear " . The hepatologist

who answered me yesterday said that bears only have ursodeoxycholic acid as

bile acid (and not several bile acids like humans do), and that that’s

why it is called URSO.

Regards,

Chaim

From:

[mailto: ]

On Behalf Of B.

Sent: Wednesday, December 03, 2008

05:01

To:

Subject: information

on Urso and Dr. Lindor

Hi everyone,

Can someone link

me to some information on the high dose Urso issue at the Mayo clinic, I just

went to see my doctor today and we discussed it and he would like me to

forward some information to him to read ..................he wants to

leave me on the Urso until he reads the issues that the Mayo has with

it. Thanks

B.

PSC 1994

[Guest guest]

Shaul,

Not as far as I know. These hepatologists

were in consensus that the dose used by Dr. Lindor was apparently too high. There

was no way for Dr. Lindor to know this before he started the clinical trial,

but this is what these hepatologists think in retrospect.

Regards,

Chaim Boermeester

From: [mailto: ] On Behalf Of CholangitisSuprt@...

Sent: Wednesday, December 03, 2008

15:42

To:

Subject: Re:

information on Urso and Dr. Lindor

Chaim

Is there any concrete evidence?

Shaul

PSC UC

Sent via

BlackBerry by AT & T

From: Chaim

Boermeester

Date: Wed, 03 Dec 2008

11:06:14 +0200

To: < >

Subject: RE:

information on Urso and Dr. Lindor

,

I asked this question specifically to a forum of hepatologists at

the Israeli liver health foundation. They all were at the San Fransisco meeting

where Dr Lindor spoke about his research. The hepatologists in the forum think

that Dr. Lindor gave a too high (toxic) dose of Urso to his patients. They now

recommend a dose of up to 25mg/kg bodyweight.

Did you know that Urso stands for " bear " . The hepatologist

who answered me yesterday said that bears only have ursodeoxycholic acid as

bile acid (and not several bile acids like humans do), and that that’s

why it is called URSO.

Regards,

Chaim

From:

[mailto: ]

On Behalf Of B.

Sent: Wednesday, December 03, 2008

05:01

To:

Subject: information

on Urso and Dr. Lindor

Hi everyone,

Can someone link

me to some information on the high dose Urso issue at the Mayo clinic, I just

went to see my doctor today and we discussed it and he would like me to

forward some information to him to read ..................he wants to

leave me on the Urso until he reads the issues that the Mayo has with

it. Thanks

B.

PSC 1994