RE: Remission with PSC and cirrhosis?

[Guest guest]

Others

may (and probably will) disagree…….but,

yes I do believe a person can go into remission (the disease is still there

though). We had one group member named

Phil, who was in the hospital more times than out. He had a horrible 2 years,

his wife was beside herself with worry.

It all just stopped! He has been

free of problems for probably (at the very least) 3 or 4 years. No infections, working full time and traveling to China all the time for the new business he started.

I received this reply from Dr Lindor at Mayo in August 2004 - “Some patients may remain stable for

some time but the disease has not disappeared.

There is not much written about this, it is not surprising that you have

not found much info about this. No

studies that I am aware of and no good way to predict for an individual,

although the Mayo risk score might be used.”

My own son was in

Stage 4 End Stage for 7 years.

Have a GREAT Christmas

Dana, go, enjoy yourself and leave your cares behind!

Barb in Texas - Together in the Fight

- Whatever it Takes!

Son Ken (34) UC 91 PSC 99, LTX 6/21 & 6/30 2007

@ Baylor/Dallas

-----Original Message-----

I mentioned this to my doctor in the form of a question (is it

possible to be in remission?) and she said simply, yes.

I'm so curious about this.

Has anyone out there ever had a remission in ELD with

PSC? What can you tell me about it? Could this last

for years?