Thanks

[Guest guest]

Hello Ian,

Thank you for your response. Any help that I can get is appreciated. The main reason I did this site was for my friends and family to read. All my family are from Ireland and this will make it easy for them.

I really do hope that I am a long way off from a transplant, but according to my doctor that is not the case. I will know more on the 26th of this month.

I am so happy to hear that you have not had any symptoms for such a long time, may it continue.

Hope you are having a nice day

Thanks

Geraldine

To: Sent: Saturday, January 3, 2009 9:51:19 AMSubject: Re: Thanks

Geraldine,

Welcome to the group. I visited the caringbridge website you setup and am willing to copy any updates you post to the support group if you give me permission. I suspect you could be a little premature at setting up a site already. PSC can be a very slow moving disease. I was diagnosed in 1989 and nearly 20 years later still do not need a transplant or have many symptoms.

Ian (52) PSC 89

On 12/23/08, Geraldine & Newell <move2portland@ yahoo.com> wrote:

Hello Kathy & Tom,

I just joined the group a few days ago and I thank you both for the update everyday. Its a good feeling to hear good news. I was really praying that Tom would get home for Christmas, and sure he did.

I was diagnosed with PSC 3 years ago, and so far I have been feeling good. But my doctor says I am not good. I need to have an ERCP done and I have gallstones and my liver has deteriorated quite a bit over the last year.

He is now setting me up with the transplant doctors here in Portland Oregon and I am a little scared, and I have fear of the unknown, but following your updates has helped me.

Thanks again and have a great Christmas.

Geraldine

From: Ian Cribb <icribb (AT) gmail (DOT) com>To: <@ yahoogroups. com>Sent: Tuesday, December 23, 2008 8:20:47 PMSubject: Update from Kathy re: Tom - TUESDAY, DECEMBER 23, 2008 08:50 PM, CST

Great news! Tom got out of the hospital this evening! Yes, I'm as surprised as everyone else, but what a great Christmas gift. He was having a really bad day, and he hadn't seen any of the transplant team doctors in several days, so he called me in a frustrated state. I called the hospital and requested that one of the team doctors pay a visit. When he witnessed Tom's progress the doctor was not happy that Tom hadn't been released already. Larry was also released this afternoon. What a happy day! Now I just need to figure out how to keep Tom compliant with all the doctor's orders...he's really good about things like taking his medications, but not so good about drinking his Gatorade. I need to come up with some good threats!I need to run out to the store to pick up a few things we need at home as Tom recovers. I'm sure he'll post on this site tomorrow. In the meantime prayers of thanksgiving are definitely in order.Kathy

To send a message to Tom, Kathy and family goto;

http://www.caringbr idge.org/ visit/thomasbutl er

-- Ian Cribb P.Eng.