RE: Newly diagnosed with questions

[Guest guest]

I have read both scenarios; however, on

the Mayo Clinic web site it says “If the disease progresses to severe scarring of the liver,

causing liver failure, patients may need a liver transplant.”

Joe

PSC & UC –

1990; Liver Transplant - 2007

From:

[mailto: ] On

Behalf Of Sandi Pearlman

Alison,

Hi! You're welcome! I hope somebody else chimes in soon to back me up, but I

feel pretty positive I was told that not all PSCers need a transplant.

[Guest guest]

I hope to live long enough that I will need a liver transplant or better yet til I am too old to get one. Diagnosed 20 years ago when I was 33. ;o)Ian (52) PSC 89

Hi! I saw this statement in an earlier post:

> If you read a lot on the Internet, you know that liver transplant is something that will happen. >

I'm not 100% sure that's accurate. Somebody correct me if I'm wrong, but not all PSC patients end up needing liver transplants, right? I think I was told that, while most PSC patients will require a liver transplant at some point, it is not necessarily a given in all cases. Anybody else heard the same thing?

Sandi in VA

-- Ian Cribb P.Eng.