Guest guest Posted February 23, 2009 Report Share Posted February 23, 2009 Given my experience I recommend seeing a gastroenterologist or hepatologist who is knowledgeable about PSC. To really see what’s happening with PSC, either an MRCP or an ERCP has to be done. Joe PSC & UC – 1990; Liver Transplant - 2007 From: [mailto: ] On Behalf Of skomula Sent: Monday, February 23, 2009 12:14 PM To: Subject: annual tests Hello, My husband is due for his annual blood work next month but I see on here that there are test he doesnt get and should he be. He is just seeing a family dr. The tests he gets are ALT, Alk, AST and bilirubin which she says are slightly high but hasn't changed since 2007, should he have other tests or are these enough to keep track of the psc. He hasn't had any issues with illness or anything yet just fatigue which he has had for over 10 years. All the other tests are normal except for cholesterol. He is having his annual colonoscopy as well and is suppose to go in twice a year for blood work but he is tough to get to the doctor. Also can you live without ever having any episodes or illnesses of psc or will it eventually happen. thanks skomula MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 Hi! I see that some other people have already answered some of your questions, but I thought I'd chime in, too. I would agree with the others that you really need to find a doctor knowledgeable in PSC, preferably a hepatologist or a gastroenterologist if a hep isn't available. Family doctors just aren't trained to deal with the issues PSC brings forward. As far as testing goes, it sounds to me like perhaps his bloodwork should be taken more frequently, but I'm not a doctor and don't truly know the answer to that. It seems though that he should be regularly checked for his liver levels, vitamin levels, calcium intake, etc. It's great that he's getting an annual colonoscopy, but there may be other things that are important too and only a doctor trained in PSC can really tell you for sure. You also asked about whether or not somebody could go through life with PSC and never experience any symptoms. I don't really know the answer to your question. PSC (as I'm sure you know) is so incredibly different for all of us. I'd love to think that's possible though! Best of luck on everything! Sandi in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 Hi! I see that some other people have already answered some of your questions, but I thought I'd chime in, too. I would agree with the others that you really need to find a doctor knowledgeable in PSC, preferably a hepatologist or a gastroenterologist if a hep isn't available. Family doctors just aren't trained to deal with the issues PSC brings forward. As far as testing goes, it sounds to me like perhaps his bloodwork should be taken more frequently, but I'm not a doctor and don't truly know the answer to that. It seems though that he should be regularly checked for his liver levels, vitamin levels, calcium intake, etc. It's great that he's getting an annual colonoscopy, but there may be other things that are important too and only a doctor trained in PSC can really tell you for sure. You also asked about whether or not somebody could go through life with PSC and never experience any symptoms. I don't really know the answer to your question. PSC (as I'm sure you know) is so incredibly different for all of us. I'd love to think that's possible though! Best of luck on everything! Sandi in VA Quote Link to comment Share on other sites More sharing options...
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