Guest guest Posted February 22, 2009 Report Share Posted February 22, 2009 I've read all of the symptoms, risks, etc online but one thing I can't find is what is considered high? And what is dangerously high? My husband was readmitted to the hospital on Friday night, for the third time this year. He's had a fever since last Tuesday. Anyway, his nurse mentioned last night that his ammonia level was a little high. She said it was somewhere in the 100's (she gave a specific number but I don't remember it). That, to me, is one of the scariest symptoms of this horrible disease. There are only a few minor tests that he still needs in order to be put on the transplant list. They are going to try to do them while he's in the hospital so they can get him listed. He needs to be listed NOW! He's getting sicker every day but still trying to do the things he's always been able to do. He says he HAS to go to work. He's afraid of losing his job and his insurance, which of course, especially under the circumstances, would be tragic. But honestly I don't see that happening. His boss and everyone in his department have been wonderful and very caring. His boss has even been to the hospital a few times to see him. He gets really scared sometimes and has recently started talking about dying. How can I comfort him when honestly I'm scared to? The reality is, he's at a very good transplant center with a relatively short waiting list so chances are pretty good he'll get a new liver and be better than ever. But we all know that people DO die from this awful disease. Right now he's no where near critical but it does seem like he just keeps getting sicker and sicker. The really weird thing is, we just saw his hep in December and then his levels were so good, they said transplant wasn't even an option at this point and he just wanted to watch him. A month later he was hospitalized with a bile duct infection and it's been down hill ever since. How can things change so drastically in ONE month? I wish no one had to suffer from this illness or watch their loved ones suffer from it. I wish you and your loved ones good health! Quote Link to comment Share on other sites More sharing options...
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