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Hello everyone,

My name is Roni and have had Fibromyalgia, MPS for 11 years. I also

have spondylosis, herniated discs in neck and lumbar area, IBD, RSD,

depression, irritable bladder and extremely poor memory so I

probably forgot something. My mom lives with me and has dementia

which makes for an interesting combination.

I just had a big scare when I found a golfball sized lump in my

neck, surgeon was thinking it was Lymphoma. Instead it was a lymph

node full of infection and had that one and 3 others removed. He

felt it was related to all the chronic infections I get ie sinus

infect, laryngytis etc.

I have not been able to work for over 3 years and have not been

given disability as of yet. I am an RN who can't remember what I

did 5 minutes ago and they expect me to go back to work and care for

patients.

To keep my sanity, I do pet bird rescue. It gives me a reason to

get up in the morning.

I look forward to meeting everyone

Roni

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