Guest guest Posted January 24, 2002 Report Share Posted January 24, 2002 , I have been using Cetaphils Facial Moisturizer with SPF15... it's not greasy feeling at all, and is about the only thing that doesn't give me rashy look. It's about $10.00 in most stores. a New member > My name is Fogle. I'am 33 years old. I have suffered from > rosacea for about 16 years now. I really never had a problem with > this disease until the last few years. I have had 2 pulse-dye laser > treatments in the last few years. I can say for $700.00 a treatment > really not worth it. It took me about a month 1/2 to finally clear. > But the rosacea comes back. I was able to control my rosacea for > about 3 months after that. In Dec,01 I moved to a new house and ever > since I have been here my rosace has gotten out of control. I don't > know if it was a change in the water or just that this house is alot > dustier. I have made an appiontment for photoderm here in Columbus, > Ohio where I live. I hope it works for me. I'm tired of being a > prisoner. Does anybody know something that works for the little dry > patches that comes with this disease? My face has gotten a real dry > and tight fellin to it. Can anybody recommend a good moisterizer? I > would really appreciate it. > > Thank You, > > > > > > -- > Please read the list highlights before posting to the whole group (http://rosacea.ii.net/toc.html). Your post will be delayed if you don't give a meaningful subject or trim your reply text. You must change the subject when replying to a digest ! > > See http://www.drnase.com for info on his recently published book. > > To leave the list send an email to rosacea-support-unsubscribe > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2002 Report Share Posted January 24, 2002 , I have been using Cetaphils Facial Moisturizer with SPF15... it's not greasy feeling at all, and is about the only thing that doesn't give me rashy look. It's about $10.00 in most stores. a New member > My name is Fogle. I'am 33 years old. I have suffered from > rosacea for about 16 years now. I really never had a problem with > this disease until the last few years. I have had 2 pulse-dye laser > treatments in the last few years. I can say for $700.00 a treatment > really not worth it. It took me about a month 1/2 to finally clear. > But the rosacea comes back. I was able to control my rosacea for > about 3 months after that. In Dec,01 I moved to a new house and ever > since I have been here my rosace has gotten out of control. I don't > know if it was a change in the water or just that this house is alot > dustier. I have made an appiontment for photoderm here in Columbus, > Ohio where I live. I hope it works for me. I'm tired of being a > prisoner. Does anybody know something that works for the little dry > patches that comes with this disease? My face has gotten a real dry > and tight fellin to it. Can anybody recommend a good moisterizer? I > would really appreciate it. > > Thank You, > > > > > > -- > Please read the list highlights before posting to the whole group (http://rosacea.ii.net/toc.html). Your post will be delayed if you don't give a meaningful subject or trim your reply text. You must change the subject when replying to a digest ! > > See http://www.drnase.com for info on his recently published book. > > To leave the list send an email to rosacea-support-unsubscribe > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2002 Report Share Posted January 24, 2002 , I have been using Cetaphils Facial Moisturizer with SPF15... it's not greasy feeling at all, and is about the only thing that doesn't give me rashy look. It's about $10.00 in most stores. a New member > My name is Fogle. I'am 33 years old. I have suffered from > rosacea for about 16 years now. I really never had a problem with > this disease until the last few years. I have had 2 pulse-dye laser > treatments in the last few years. I can say for $700.00 a treatment > really not worth it. It took me about a month 1/2 to finally clear. > But the rosacea comes back. I was able to control my rosacea for > about 3 months after that. In Dec,01 I moved to a new house and ever > since I have been here my rosace has gotten out of control. I don't > know if it was a change in the water or just that this house is alot > dustier. I have made an appiontment for photoderm here in Columbus, > Ohio where I live. I hope it works for me. I'm tired of being a > prisoner. Does anybody know something that works for the little dry > patches that comes with this disease? My face has gotten a real dry > and tight fellin to it. Can anybody recommend a good moisterizer? I > would really appreciate it. > > Thank You, > > > > > > -- > Please read the list highlights before posting to the whole group (http://rosacea.ii.net/toc.html). Your post will be delayed if you don't give a meaningful subject or trim your reply text. You must change the subject when replying to a digest ! > > See http://www.drnase.com for info on his recently published book. > > To leave the list send an email to rosacea-support-unsubscribe > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 In a message dated 1/24/02 9:43:46 PM Mountain Standard Time bf> ogle writes: > Does anybody know something that works for the little dry > patches that comes with this disease? My face has gotten a real dry > and tight fellin to it. Can anybody recommend a good moisterizer? , you might try Sy's Vita-Oil which you can order from her website. Or, I have also had great success with pure jojoba oil which you can get from most GNC stores or other health stores. Just make sure it is pure with no additives! HTH, Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 In a message dated 1/24/02 9:43:46 PM Mountain Standard Time bf> ogle writes: > Does anybody know something that works for the little dry > patches that comes with this disease? My face has gotten a real dry > and tight fellin to it. Can anybody recommend a good moisterizer? , you might try Sy's Vita-Oil which you can order from her website. Or, I have also had great success with pure jojoba oil which you can get from most GNC stores or other health stores. Just make sure it is pure with no additives! HTH, Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 In a message dated 1/24/02 9:43:46 PM Mountain Standard Time bf> ogle writes: > Does anybody know something that works for the little dry > patches that comes with this disease? My face has gotten a real dry > and tight fellin to it. Can anybody recommend a good moisterizer? , you might try Sy's Vita-Oil which you can order from her website. Or, I have also had great success with pure jojoba oil which you can get from most GNC stores or other health stores. Just make sure it is pure with no additives! HTH, Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2002 Report Share Posted May 16, 2002 Rox - I lost 30 pounds on prozac but effexor had the fewest side effects. Have'nt found anything for the insomia - tried everything. Finally going to a sleep study to see what is the cause. I think that is a big problem with our pain. Stop and visit www.emergingcourageous.com stories/poetry of everyday courage - that's us!!! Peace and God Bless. MP --- rox6602000 rox660@...> wrote: > The good news is that I have just been diagnosed > with Fibromyalgia. > Finally, a name for my pain. It's not in my head!! > My husband, > family and co-workers can believe me now - it's > real. Yippee! I > can't wait to begin reading some of the posts. I'm > sure I will be > able to relate to many many things. Just wanted to > say hi and hope > this support group helps me and that I can also > contribute. My Dr. > wants to put me on anti-depressants (been there - > gained 40 pounds). > Also I have terrible insomnia. I would be > interested to hear if > anyone else is medicating on anti-depressants and > which ones have the > least weight gain and side effects for you. If I > must take them > again, I am thinking about going back on Celexa > (have tried Zoloft, > Paxil and Effexor). Rox. > > ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2002 Report Share Posted May 16, 2002 Rox - I lost 30 pounds on prozac but effexor had the fewest side effects. Have'nt found anything for the insomia - tried everything. Finally going to a sleep study to see what is the cause. I think that is a big problem with our pain. Stop and visit www.emergingcourageous.com stories/poetry of everyday courage - that's us!!! Peace and God Bless. MP --- rox6602000 rox660@...> wrote: > The good news is that I have just been diagnosed > with Fibromyalgia. > Finally, a name for my pain. It's not in my head!! > My husband, > family and co-workers can believe me now - it's > real. Yippee! I > can't wait to begin reading some of the posts. I'm > sure I will be > able to relate to many many things. Just wanted to > say hi and hope > this support group helps me and that I can also > contribute. My Dr. > wants to put me on anti-depressants (been there - > gained 40 pounds). > Also I have terrible insomnia. I would be > interested to hear if > anyone else is medicating on anti-depressants and > which ones have the > least weight gain and side effects for you. If I > must take them > again, I am thinking about going back on Celexa > (have tried Zoloft, > Paxil and Effexor). Rox. > > ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2002 Report Share Posted May 16, 2002 Rox - I lost 30 pounds on prozac but effexor had the fewest side effects. Have'nt found anything for the insomia - tried everything. Finally going to a sleep study to see what is the cause. I think that is a big problem with our pain. Stop and visit www.emergingcourageous.com stories/poetry of everyday courage - that's us!!! Peace and God Bless. MP --- rox6602000 rox660@...> wrote: > The good news is that I have just been diagnosed > with Fibromyalgia. > Finally, a name for my pain. It's not in my head!! > My husband, > family and co-workers can believe me now - it's > real. Yippee! I > can't wait to begin reading some of the posts. I'm > sure I will be > able to relate to many many things. Just wanted to > say hi and hope > this support group helps me and that I can also > contribute. My Dr. > wants to put me on anti-depressants (been there - > gained 40 pounds). > Also I have terrible insomnia. I would be > interested to hear if > anyone else is medicating on anti-depressants and > which ones have the > least weight gain and side effects for you. If I > must take them > again, I am thinking about going back on Celexa > (have tried Zoloft, > Paxil and Effexor). Rox. > > ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2002 Report Share Posted June 8, 2002 Jim~ Welcome to the group! This group is full of understanding, compassion but lets not forget humor! Feel free to ask questions because someone useally knows the answer and also if you are having a bad day feel free to let it out. Welcome!!! ~ --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 Hello, I've been reading this list with much interest, and have found some excellent suggestions and advice. I wanted to mention that I recently found a makeup line called Colortration, and really like the way it covers redness and flaws. It's quite thick, but can be thinned with moisturizer. It's available at colortration.com (no, I have no interest in the company!). Has anyone else used it? Also, I found a dimethicone lotion called Proteque on the web. I was wondering about trying it. Lynne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 Hello, I've been reading this list with much interest, and have found some excellent suggestions and advice. I wanted to mention that I recently found a makeup line called Colortration, and really like the way it covers redness and flaws. It's quite thick, but can be thinned with moisturizer. It's available at colortration.com (no, I have no interest in the company!). Has anyone else used it? Also, I found a dimethicone lotion called Proteque on the web. I was wondering about trying it. Lynne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 Hello, I've been reading this list with much interest, and have found some excellent suggestions and advice. I wanted to mention that I recently found a makeup line called Colortration, and really like the way it covers redness and flaws. It's quite thick, but can be thinned with moisturizer. It's available at colortration.com (no, I have no interest in the company!). Has anyone else used it? Also, I found a dimethicone lotion called Proteque on the web. I was wondering about trying it. Lynne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 In a message dated 08/28/2002 5:36:09 PM US Eastern Standard Time, coloradochaser@... writes: > how to explain to my family > what is wrong where they will understand it without sounding like I am > whinning all the time. Tammy, First of all welcome to the group and I hope you enjoy it here...These peeps are a great group of peeps ;o) The way I explain Fibro to the people that doesn't understand it or never heard of it is like this...: " Ya know how when you get the flu and your body aches from the fever and all the yuckiness.....well thats how I feel all the time only it never goes away " ....I however don't get sick or have the poo's, but I do have the fatigue and the fever and DEFFINATELY THE ACHEY'S Thats how I explain it...we all have our own way.....I hope you find things helpful here...God bless you...having 4 boys alone should deserve an award or something...lol Hugzz Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 In a message dated 08/28/2002 5:36:09 PM US Eastern Standard Time, coloradochaser@... writes: > how to explain to my family > what is wrong where they will understand it without sounding like I am > whinning all the time. Tammy, First of all welcome to the group and I hope you enjoy it here...These peeps are a great group of peeps ;o) The way I explain Fibro to the people that doesn't understand it or never heard of it is like this...: " Ya know how when you get the flu and your body aches from the fever and all the yuckiness.....well thats how I feel all the time only it never goes away " ....I however don't get sick or have the poo's, but I do have the fatigue and the fever and DEFFINATELY THE ACHEY'S Thats how I explain it...we all have our own way.....I hope you find things helpful here...God bless you...having 4 boys alone should deserve an award or something...lol Hugzz Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Hi Christy, welcome to the list! I am sure you'll find a penpal for Wyatt here. My daughter is five and although she loves to write letters to her friend she's not the right one for your son :-)). She only speaks german and yet has no clue what CF is. Hope you like it on the list and we'll get to know your family better. Where are you from? Peace Torsten, dad of Fiona 5wcf > Hi, > My name is Christy and I have a 7 year old boy, Wyatt with CF and a > 2 1/2 year old boy, Hunter w/out CF. I'm on browsing at websites and > came across this so here I am...Wyatt and I are trying to find him a > pen pal or more so he can chat w/ other kids w/ CF preferably closer > in age to him. Do you have any links or suggestions? > Thanks, Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Hi Christy, welcome to the list! I am sure you'll find a penpal for Wyatt here. My daughter is five and although she loves to write letters to her friend she's not the right one for your son :-)). She only speaks german and yet has no clue what CF is. Hope you like it on the list and we'll get to know your family better. Where are you from? Peace Torsten, dad of Fiona 5wcf > Hi, > My name is Christy and I have a 7 year old boy, Wyatt with CF and a > 2 1/2 year old boy, Hunter w/out CF. I'm on browsing at websites and > came across this so here I am...Wyatt and I are trying to find him a > pen pal or more so he can chat w/ other kids w/ CF preferably closer > in age to him. Do you have any links or suggestions? > Thanks, Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Hi Christy, welcome to the list! I am sure you'll find a penpal for Wyatt here. My daughter is five and although she loves to write letters to her friend she's not the right one for your son :-)). She only speaks german and yet has no clue what CF is. Hope you like it on the list and we'll get to know your family better. Where are you from? Peace Torsten, dad of Fiona 5wcf > Hi, > My name is Christy and I have a 7 year old boy, Wyatt with CF and a > 2 1/2 year old boy, Hunter w/out CF. I'm on browsing at websites and > came across this so here I am...Wyatt and I are trying to find him a > pen pal or more so he can chat w/ other kids w/ CF preferably closer > in age to him. Do you have any links or suggestions? > Thanks, Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Hi Christy, Welcome to CF parents. I am on this list since 2 years & it has become the most important recourse for me on CF. I hope you & Wyatt would love to stay on this list Warm Regards SHRIKANT Father of Sharada 5 yowcf Abu Dhabi, United Arab Emirates New member Hi, My name is Christy and I have a 7 year old boy, Wyatt with CF and a 2 1/2 year old boy, Hunter w/out CF. I'm on browsing at websites and came across this so here I am...Wyatt and I are trying to find him a pen pal or more so he can chat w/ other kids w/ CF preferably closer in age to him. Do you have any links or suggestions? Thanks, Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Hi Christy, Welcome to CF parents. I am on this list since 2 years & it has become the most important recourse for me on CF. I hope you & Wyatt would love to stay on this list Warm Regards SHRIKANT Father of Sharada 5 yowcf Abu Dhabi, United Arab Emirates New member Hi, My name is Christy and I have a 7 year old boy, Wyatt with CF and a 2 1/2 year old boy, Hunter w/out CF. I'm on browsing at websites and came across this so here I am...Wyatt and I are trying to find him a pen pal or more so he can chat w/ other kids w/ CF preferably closer in age to him. Do you have any links or suggestions? Thanks, Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Hi Christy, Welcome to CF parents. I am on this list since 2 years & it has become the most important recourse for me on CF. I hope you & Wyatt would love to stay on this list Warm Regards SHRIKANT Father of Sharada 5 yowcf Abu Dhabi, United Arab Emirates New member Hi, My name is Christy and I have a 7 year old boy, Wyatt with CF and a 2 1/2 year old boy, Hunter w/out CF. I'm on browsing at websites and came across this so here I am...Wyatt and I are trying to find him a pen pal or more so he can chat w/ other kids w/ CF preferably closer in age to him. Do you have any links or suggestions? Thanks, Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 What a great idea! I hope that Wyatt finds a penpal. My Granddaughter is only 10 months old, so she's a little young. I will have to remember this idea for later though. Good luck to Wyatt, Gale > Hi, > My name is Christy and I have a 7 year old boy, Wyatt with CF and a > 2 1/2 year old boy, Hunter w/out CF. I'm on browsing at websites and > came across this so here I am...Wyatt and I are trying to find him a > pen pal or more so he can chat w/ other kids w/ CF preferably closer > in age to him. Do you have any links or suggestions? > Thanks, Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 What a great idea! I hope that Wyatt finds a penpal. My Granddaughter is only 10 months old, so she's a little young. I will have to remember this idea for later though. Good luck to Wyatt, Gale > Hi, > My name is Christy and I have a 7 year old boy, Wyatt with CF and a > 2 1/2 year old boy, Hunter w/out CF. I'm on browsing at websites and > came across this so here I am...Wyatt and I are trying to find him a > pen pal or more so he can chat w/ other kids w/ CF preferably closer > in age to him. Do you have any links or suggestions? > Thanks, Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 > > Hi, > > My name is Christy and I have a 7 year old boy, Wyatt with CF and > a > > 2 1/2 year old boy, Hunter w/out CF. I'm on browsing at websites > and > > came across this so here I am...Wyatt and I are trying to find him > a > > pen pal or more so he can chat w/ other kids w/ CF preferably > closer > > in age to him. Do you have any links or suggestions? > > Thanks, Ch Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2002 Report Share Posted December 7, 2002 , I'm sorry you've been diagnosed with this disease, but you found the right place to get information and people who understand what you are going through. Many of us have people and doctors who automatically believe you have to be an alcoholic to have this disease. I have a pancreas divisum (divided ducts) that caused repeated cases of acute pancreatitis which led to chronic pancreatitis. I've had a few doctors who thought I drank alcohol. I was sixteen with my first case and I lucked out in getting a doctor who didn't automatically think I was a drunk. Unfortunately, he didn't have a clue in why I had it and said it was a virus and a one time thing. Four years later I had another case, then another one every year after that (though a couple of times I had more than one case in a year). Then I had surgery to correct the ducts, hoping that that would cure the problem. It gave me 5 years of no acute pancreatitis, but it started up again because it was already chronic. When I had three cases within three months, they sent me to a specialist who diagnosed it as chronic. He put me on enzymes and that seems to stop the pain every time I ate. (This was in 1997). I still continued to have one case a year and in January of 2000, after the attack was over, the pain did not go away. The enzymes no longer stopped the pain and I was in pain all the time, so the doctors prescribed me on Vicodin. I started having too thin blood (I'm on blood thinners for a blood clotting disorder) after taking the Vicodin for a while, so I had my doctor switch me to another pain med and then to get me into the pain clinic, which has been wonderful. I now have doctors who understand my disease and treat the pain with narcotics because I can't go on antiinflamatories due to the blood thinners. Unfortunatley, the side effects from the meds have started to affect my job and I will probably go out on disability in January if this continues. Sorry to just dump that on you, but once I started, it just kinda came out. Have your doctors put you on enzymes to take with each meal? they help a lot in digestion and can sometimes cut down the pain. I would also check out this website. it has the best information on pancreaititis, both acute and chronic. http://hopkins-gi.org/ Do a search on chronic and acute pancreatitis and read away. Kimber -- Kimber Vallejo, CA hominid2@... Southwest and California Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
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