Re: Medic Alert Help Needed

[Guest guest]

Debbie, I can't help you about Medic Alert in US but what I do(as well as having a medic alert bracelet) is to write out a list of all the medications you are on and also list medical history ie when you have have major illness, operations and injuries. I keep a list on my computer which I keep updated and also a written list in my handbag/purse or whatever. Its important to keep in on you at all times.

Hope that helps,

Barbara (UK)

[Guest guest]

I wear a Medic Alert Braclet, listing my medication allergeries and

significant allergies. It states see medication card also. I keep a

current list of medications on my computer os that I can easily keep

it updated. My boyfriend has a copy, there is one in my wallet, one

in the consol of my car, one with my advanced directives and living

will, and one with each of my clinical directors at the agencies I

contract with. So far I have never needed it; however, I want to be

safe. There is no way I could get everything on the bracelet so this

was the best I could come up with.

Dawn

>

> Last week I visited my local emergency room with pain and a low-

grade

> fever. My white blood count was elevated, but pain was my greatest

> problem. Now that the pain meds and cipro have done their magic,

I'm

> realizing that I need to make some preparations.

> I couldn't remember all of the medications I take or their doses,

and

> even if I could, the hospital had no record of such drugs (like

urso)

> in their computer. Nobody in the hospital had heard of PSC. I was

in

> one of Seattle's best hospitals, and left pretty frustrated (my

> hepatologist recently left the University Transplant Center and

went

> into private practice; I followed him).

> In order to protect myself and prevent further such experiences,

what

> would you suggest I do? I've been looking into setting up a Medic

> Alert account. Have any of you done that with success? If so,

what

> would you recommend I have written on the bracelet? I have an

allergy

> in addition to my stage 2 PSC. Are there other or better emergency

> alert systems anyone can recommend?

>

> Debbie in Seattle

>

[Guest guest]

I carry a copy of a brief medical history, my doctors' names and

contact numbers, my meds. and my allergies . I always hand it to the

ED doctor and ask them to read it and THEN ask questions. The first

part of my history is a very short paragraph about ME as a person.

I'm a person first and a patient second. I was in the ED of a local

hospital this summer -- not PSC related -- and the doctor read my

paperwork and actually asked me if I was a member of the DAR -- he had

actually read what I had written about my family history. Most

doctors appreciate my paperwork because it is always current and I

never forget to mention a med. while under the stress of a hospital visit.

Penny

> would you suggest I do? I've been looking into setting up a Medic

> Alert account. Have any of you done that with success? If so, what

> would you recommend I have written on the bracelet? I have an allergy

> in addition to my stage 2 PSC. Are there other or better emergency

> alert systems anyone can recommend?

>

> Debbie in Seattle

>

[Guest guest]

I carry a copy of a brief medical history, my doctors' names and

contact numbers, my meds. and my allergies . I always hand it to the

ED doctor and ask them to read it and THEN ask questions. The first

part of my history is a very short paragraph about ME as a person.

I'm a person first and a patient second. I was in the ED of a local

hospital this summer -- not PSC related -- and the doctor read my

paperwork and actually asked me if I was a member of the DAR -- he had

actually read what I had written about my family history. Most

doctors appreciate my paperwork because it is always current and I

never forget to mention a med. while under the stress of a hospital visit.

Penny

> would you suggest I do? I've been looking into setting up a Medic

> Alert account. Have any of you done that with success? If so, what

> would you recommend I have written on the bracelet? I have an allergy

> in addition to my stage 2 PSC. Are there other or better emergency

> alert systems anyone can recommend?

>

> Debbie in Seattle

>

[Guest guest]

I carry a copy of a brief medical history, my doctors' names and

contact numbers, my meds. and my allergies . I always hand it to the

ED doctor and ask them to read it and THEN ask questions. The first

part of my history is a very short paragraph about ME as a person.

I'm a person first and a patient second. I was in the ED of a local

hospital this summer -- not PSC related -- and the doctor read my

paperwork and actually asked me if I was a member of the DAR -- he had

actually read what I had written about my family history. Most

doctors appreciate my paperwork because it is always current and I

never forget to mention a med. while under the stress of a hospital visit.

Penny

> would you suggest I do? I've been looking into setting up a Medic

> Alert account. Have any of you done that with success? If so, what

> would you recommend I have written on the bracelet? I have an allergy

> in addition to my stage 2 PSC. Are there other or better emergency

> alert systems anyone can recommend?

>

> Debbie in Seattle

>

[Guest guest]

Hi Debbie.

I haven;t taken the time to read through all your replies yet so I

hope I'm not repeating someone here. What I am going to do is get a

medic alert bracelet that says, 'primary sclerosing cholangitis,

cholangicarcinoma, liver transplant candidate. See small red i.d.

holder for medical information'

I then have a small red keychain i.d. holder and in it I have: all of

my doctor's cards with emergency and paging contact numbers on them,

all of my insurance cards, and a small thumb drive with my a quick

version of my medical records and all of my current medications. I

have alerted everyone listed in my cell phone as 'ICE' numbers about

this small red i.d. holder that I keep with me at ALL times.

My Dad is a doc (a PCP) and likes this idea, and it's worked for me

so far--there's just no way we can fit everything we need to have on

one of those Bracelets!

Best, Genevieve

UC 1983, J-Pouch 1999, PSC 12/07, CCA 10/08

>

> Last week I visited my local emergency room with pain and a low-

grade

> fever. My white blood count was elevated, but pain was my greatest

> problem. Now that the pain meds and cipro have done their magic,

I'm

> realizing that I need to make some preparations.

> I couldn't remember all of the medications I take or their doses,

and

> even if I could, the hospital had no record of such drugs (like

urso)

> in their computer. Nobody in the hospital had heard of PSC. I was

in

> one of Seattle's best hospitals, and left pretty frustrated (my

> hepatologist recently left the University Transplant Center and

went

> into private practice; I followed him).

> In order to protect myself and prevent further such experiences,

what

> would you suggest I do? I've been looking into setting up a Medic

> Alert account. Have any of you done that with success? If so,

what

> would you recommend I have written on the bracelet? I have an

allergy

> in addition to my stage 2 PSC. Are there other or better emergency

> alert systems anyone can recommend?

>

> Debbie in Seattle

>

[Guest guest]

Hi Debbie.

I haven;t taken the time to read through all your replies yet so I

hope I'm not repeating someone here. What I am going to do is get a

medic alert bracelet that says, 'primary sclerosing cholangitis,

cholangicarcinoma, liver transplant candidate. See small red i.d.

holder for medical information'

I then have a small red keychain i.d. holder and in it I have: all of

my doctor's cards with emergency and paging contact numbers on them,

all of my insurance cards, and a small thumb drive with my a quick

version of my medical records and all of my current medications. I

have alerted everyone listed in my cell phone as 'ICE' numbers about

this small red i.d. holder that I keep with me at ALL times.

My Dad is a doc (a PCP) and likes this idea, and it's worked for me

so far--there's just no way we can fit everything we need to have on

one of those Bracelets!

Best, Genevieve

UC 1983, J-Pouch 1999, PSC 12/07, CCA 10/08

>

> Last week I visited my local emergency room with pain and a low-

grade

> fever. My white blood count was elevated, but pain was my greatest

> problem. Now that the pain meds and cipro have done their magic,

I'm

> realizing that I need to make some preparations.

> I couldn't remember all of the medications I take or their doses,

and

> even if I could, the hospital had no record of such drugs (like

urso)

> in their computer. Nobody in the hospital had heard of PSC. I was

in

> one of Seattle's best hospitals, and left pretty frustrated (my

> hepatologist recently left the University Transplant Center and

went

> into private practice; I followed him).

> In order to protect myself and prevent further such experiences,

what

> would you suggest I do? I've been looking into setting up a Medic

> Alert account. Have any of you done that with success? If so,

what

> would you recommend I have written on the bracelet? I have an

allergy

> in addition to my stage 2 PSC. Are there other or better emergency

> alert systems anyone can recommend?

>

> Debbie in Seattle

>

[Guest guest]

Hi Debbie.

I haven;t taken the time to read through all your replies yet so I

hope I'm not repeating someone here. What I am going to do is get a

medic alert bracelet that says, 'primary sclerosing cholangitis,

cholangicarcinoma, liver transplant candidate. See small red i.d.

holder for medical information'

I then have a small red keychain i.d. holder and in it I have: all of

my doctor's cards with emergency and paging contact numbers on them,

all of my insurance cards, and a small thumb drive with my a quick

version of my medical records and all of my current medications. I

have alerted everyone listed in my cell phone as 'ICE' numbers about

this small red i.d. holder that I keep with me at ALL times.

My Dad is a doc (a PCP) and likes this idea, and it's worked for me

so far--there's just no way we can fit everything we need to have on

one of those Bracelets!

Best, Genevieve

UC 1983, J-Pouch 1999, PSC 12/07, CCA 10/08

>

> Last week I visited my local emergency room with pain and a low-

grade

> fever. My white blood count was elevated, but pain was my greatest

> problem. Now that the pain meds and cipro have done their magic,

I'm

> realizing that I need to make some preparations.

> I couldn't remember all of the medications I take or their doses,

and

> even if I could, the hospital had no record of such drugs (like

urso)

> in their computer. Nobody in the hospital had heard of PSC. I was

in

> one of Seattle's best hospitals, and left pretty frustrated (my

> hepatologist recently left the University Transplant Center and

went

> into private practice; I followed him).

> In order to protect myself and prevent further such experiences,

what

> would you suggest I do? I've been looking into setting up a Medic

> Alert account. Have any of you done that with success? If so,

what

> would you recommend I have written on the bracelet? I have an

allergy

> in addition to my stage 2 PSC. Are there other or better emergency

> alert systems anyone can recommend?

>

> Debbie in Seattle

>

[Guest guest]

Debbie,

I actually do have a medic alert bracelet, I also keep copies on my

commputer of my medications/vaccinations and also my

hospitalizations. The list on my computer are okay if I know that I

am going to the hospital like a cholangitis attack admit or an

outpatient procedure such as an ERCP.

For me I am not a liver transplant case, and hope not to get anywhere

near the transplant list yet. I was just diagnsosised this last

spring.

For me my worry is that if I am in an accident or end up going to the

ED unconscious without my husband or daughter around. Even though

neither one of them could remember my history or meds, and if they

are freaked out they would probably forget about the lists on the

computer. So for me it is just as a help in an emergentcy.

Another big worry for me is that I have an internal S-pouch since my

colon was removed in 1982/1983 due to UC. which is how I wound up

with PSC now. I do not want anyone going near my pouch that does not

understand what it is about. Or my PSC.

Also when I got my first bracelet they sent me a sticker that I was

able to put in the back window of my car that states that I am a

Medic Alert member and an 800 number they can call. Even on the

bracelet it gives the 800 number and your ID number for medic alert.

Good luck,

Beth B

>

> Last week I visited my local emergency room with pain and a low-

grade

> fever. My white blood count was elevated, but pain was my greatest

> problem. Now that the pain meds and cipro have done their magic,

I'm

> realizing that I need to make some preparations.

> I couldn't remember all of the medications I take or their doses,

and

> even if I could, the hospital had no record of such drugs (like

urso)

> in their computer. Nobody in the hospital had heard of PSC.

>

[Guest guest]

Debbie,

I actually do have a medic alert bracelet, I also keep copies on my

commputer of my medications/vaccinations and also my

hospitalizations. The list on my computer are okay if I know that I

am going to the hospital like a cholangitis attack admit or an

outpatient procedure such as an ERCP.

For me I am not a liver transplant case, and hope not to get anywhere

near the transplant list yet. I was just diagnsosised this last

spring.

For me my worry is that if I am in an accident or end up going to the

ED unconscious without my husband or daughter around. Even though

neither one of them could remember my history or meds, and if they

are freaked out they would probably forget about the lists on the

computer. So for me it is just as a help in an emergentcy.

Another big worry for me is that I have an internal S-pouch since my

colon was removed in 1982/1983 due to UC. which is how I wound up

with PSC now. I do not want anyone going near my pouch that does not

understand what it is about. Or my PSC.

Also when I got my first bracelet they sent me a sticker that I was

able to put in the back window of my car that states that I am a

Medic Alert member and an 800 number they can call. Even on the

bracelet it gives the 800 number and your ID number for medic alert.

Good luck,

Beth B

>

> Last week I visited my local emergency room with pain and a low-

grade

> fever. My white blood count was elevated, but pain was my greatest

> problem. Now that the pain meds and cipro have done their magic,

I'm

> realizing that I need to make some preparations.

> I couldn't remember all of the medications I take or their doses,

and

> even if I could, the hospital had no record of such drugs (like

urso)

> in their computer. Nobody in the hospital had heard of PSC.

>

[Guest guest]

Debbie,

I actually do have a medic alert bracelet, I also keep copies on my

commputer of my medications/vaccinations and also my

hospitalizations. The list on my computer are okay if I know that I

am going to the hospital like a cholangitis attack admit or an

outpatient procedure such as an ERCP.

For me I am not a liver transplant case, and hope not to get anywhere

near the transplant list yet. I was just diagnsosised this last

spring.

For me my worry is that if I am in an accident or end up going to the

ED unconscious without my husband or daughter around. Even though

neither one of them could remember my history or meds, and if they

are freaked out they would probably forget about the lists on the

computer. So for me it is just as a help in an emergentcy.

Another big worry for me is that I have an internal S-pouch since my

colon was removed in 1982/1983 due to UC. which is how I wound up

with PSC now. I do not want anyone going near my pouch that does not

understand what it is about. Or my PSC.

Also when I got my first bracelet they sent me a sticker that I was

able to put in the back window of my car that states that I am a

Medic Alert member and an 800 number they can call. Even on the

bracelet it gives the 800 number and your ID number for medic alert.

Good luck,

Beth B

>

> Last week I visited my local emergency room with pain and a low-

grade

> fever. My white blood count was elevated, but pain was my greatest

> problem. Now that the pain meds and cipro have done their magic,

I'm

> realizing that I need to make some preparations.

> I couldn't remember all of the medications I take or their doses,

and

> even if I could, the hospital had no record of such drugs (like

urso)

> in their computer. Nobody in the hospital had heard of PSC.

>