Re: Reply to auroraskyward

August 20, 2004

I am blessed with a husband like yours also. He does most of the house

keeping (and my mother reminds me of that ALWAYS...calling me lazy

amonst other things). I tried working this year (the last time was in

June). I only lasted for a week though...I was so disappointed that I

was just too exhausted to continue. I would rather spend my " awake "

time with my family. Welcome to the group...you now have an extented

family and we are here 24/7.

Blessings,

In Cali

> I do have Lupus. I was diagnosed by my dermatologist after doing a

> biopsy after fighting rashes and lesions on my arms and back for

> years that no one could figure out what it was. I have to say that

> at this point I feel luckier than most. My ANA is still negative

> although my sed rate is always high. I am able to continue to work

> full time. I have a nursing job that allows me to do triage for a

> clinic. I am able to sit and work on the phone and computer all day.

> This is a great help when the fatigue and the joint pain are at its

> worst. I have a wonderful husband who has taken over all the things

> that I am just too tired to do anymore. Thank God for men like him. I

> have been looking for a place to go where I could talk with others

> who truely understand the feeling and the fear that go with this

> disease. I think I have found it. So far I have just been trying to

> read and figure out how to get around in here. Hope you all have

> patience with me while I learn.

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