Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 Enid, Hi! I'm sorry to hear you've been having such a rough time since you returned home to New Mexico. It seems to be one of life's unfair ironies that we're never at our sickest in front of the doctors! You asked about hot flashes. Back when I was first diagnosed with PSC, I would have extreme hot flashes where I'd be fine one second and then literally drenched the next to the point where even my shirt was soaked through and I found myself needing to take extra clothes with me wherever I went (I was 29/30 at the time). I also would start occasionally shaking uncontrollably. I'm not sure if that's what you mean by chills or not. In any case, my teeth would chatter, my whole body would shake, etc. I informed the doctors what was going on and they played with my medications and different dosages and eventually the flashes did stop (although I do still have occasional problems with the shaking). Have you checked to see if hot flashes are a side effect of any of your medications? Anyhow, nowadays, my chills are different. It almost feels as though I've got ice water running through my body and can't get warm even when under blankets/in a warm bath/shower, etc. In any case, I thought I'd let you know that you're not alone out there. I'm so glad you found us and I hope you get some relief from your symptoms soon! Sandi in VA Quote Link to comment Share on other sites More sharing options...
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