Rosetta & ee

[Guest guest]

Hi Rosetta,

I didn’t know (or maybe remember)

that you are a pharmacist. WoW, that’s practically like having a Dr. in

the group. I highly respect pharmacists and often phone one before I phone the

Dr. I applaud

what you told ee

and wanted to write a similar letter but lack the credentials. You wrote a

great letter and ee,

please do what she says here. Write more often Rosetta, we need all the

education we can get.

From: Rosetta

Sent: Saturday, July 31, 2004

10:08 PM

To: LUPIES

Subject: Re: Just thought

I'd say hello!

Dear ee,

This doctor

is retiring,

and will not

be able to care for you. FIND SOMEONE ELSE!

As for

stopping the prednisone cold turkey so you can get sicker and

then see him

is the most ridiculous thing i have ever heard and does

not sound

responsible to me. I may not be a board certified medical

doctor but i

am a practising board certified pharmacist and i truly

believe you

should find another physician. How long were you on 80mg

of

prednisone? If you have been on it any longer than 2-3 weeks, you

should have

been tapered off. Plus there are some lab test that can

indicate if

you might have lupus which the doctor should have tried

first (each

person is different so sometimes not everyone shows

positive for

certain indicators)

" Come

back when you are sicker?! What the hell is that? Excuse my

language but

even though this is not happening to me i am quite

pissed

off. Trust me this is much cleaner language than what is

going

through my head (i grew up in NY so trust me i have an

extensive

vocabulary of colorful words). I suppose if you flare up

again and

wind up maybe wind up this time with full blown lupus

symptoms

such as kidney nephritis, pneumonia, fever, pericarditis,

etc. then he

can say " ahh, yes you do have lupus. " Plus if this

happen, you

are going to be right back on prednisone.

I can't see

how

" getting sicker " is suppose to help you...That is like

saying

" yes we know you have the symptoms chest pain, lets stop the

nitroglycerin

tablets and see how to treat you when you really are

experiencing

pain... " Since you are going to have to find another

rheumatogist

anyways, do it now.

Sincerely,

Rose