Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 In 1991, I itched for two weeks before consulting a doctor. In four more weeks, several blood tests later, and with the help of the Mayo Clinic, they decided I had sclerosing cholangitis. They never called it " primary. " I took Questran for the itching and Actigall. I was on the Actigall for 8 1/2 years with great success, except for the arthritis pain. In 1999, I put myself on an all-natural diet (it was my version of the anti-candida diet) and, six weeks later, I stopped taking antihistamines and the Actigall with no further problems until about a year ago. For about a year, my liver enzymes have started going up. My doctors have been watching it and wanted me to go back on Actigall. I've been resisting. This summer, I woke up one morning with bone-rattling chills and fever with no appetite and that went on for six weeks, on and off, and was never diagnosed. My PCP referred me to a gastroenterologist and, since my fevers stopped on their own, I decided to get that colonoscopy they've been wanting me to get for a few years. Those results were upsetting: mild colitis, diverticulosis, and mild gastritis. They said Crohn's could not be ruled out. More recently, I started itching after everything I ate and finally went to see an allergist. After over 150 scratch skin tests, I found out I'm allergic to many foods and everything on the list of inhalable allergens. I'm getting the allergy shots and, most recently, just went back on the Actigall following my latest elevated liver function test. What bothers me is that the liver biopsy in 1991 was " nondiagnostic " and the Mayo Clinic stated that " it could be sclerosing cholangitis or a drug reaction. " The other option was never pursued. I still wonder if I have it or not. Is it possible for me to have this disease and not take any medication for 8 1/2 years and then for it just to show up again? A doctor told me that it does not just go away. Can liver enzymes get elevated from bad allergies? Or are the allergies caused by liver problems? This is long, I know, but I need to talk to someone who might know. I don't want to be labeled with a disease that I don't have, either! So, what do you think? Sincerely, Quote Link to comment Share on other sites More sharing options...
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