Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 Ian, thanks for all your interest and involvement in the PSC group. I am on facebook and would like to be included in the group. Hope you are having a great day. Geraldine Newell To: < >Sent: Sunday, March 22, 2009 5:40:47 PMSubject: PSC & Facebook PROFILE PHOTOS I want to encourage the members of this support group to get a facebook account and get to know some of the other members better. I now have 126 members of the support group has FB friends and I feel I know them better. For any new member (or any member at all) the attached picture is a collection of members that gave me permission to pass their names about this group and are willing to accept friendships from other members of the support group. If anyone wants to be added (or removed) from the list please let me know. Ian (52) PSC 89 ---------- Forwarded message ----------From: Ian Cribb <icribb (AT) gmail (DOT) com>Date: Feb 8, 2009 8:56 PMSubject: Fwd: PSC & Facebook PROFILE PHOTOS Jan 18,2009To: <@ yahoogroups. com> The last couple of weeks have been slow for me on the facebook side of things. I have only added 3 PSCers and are now up to 104 PSCers in my friendship list. If any of you PSCers want to join facebook its free and a great way to get to know other PSCers better. The people on the attached list have given me permission to pass their names about to other members of the support group and are willing to accept your friendship. Ian (52) PSC 89 ---------- Forwarded message ----------From: Ian Cribb <icribb (AT) gmail (DOT) com>Date: Jan 27, 2009 8:22 PMSubject: Re: PSC & Facebook PROFILE PHOTOS Jan 18,2009To: <@ yahoogroups. com> I've identified 118 members of this group that have Facebook profiles, 101 of which are within my "friendship list". In the attached picture are picture are 42 profile photos of people who have given me permission to pass their names around to other PSCers. There are other members of this support group that have facebook accounts but use a different email account for that and so I haven't been able to search you out. If you wish to be able to associate a face with a post feel free to request friendship from any of the people on the list. This is not a closed group (it is open to any PSCer), You can request friendship from any of these people without getting onto this list or being my even being on my friendship list. You can seek me out using my email address and view my friends all of the people on this list can be found within my friendship list. Ian (52) PSC 89 Ian I've identified 108 members of this group that have Facebook profiles, 87 of which are within my "friendship list". In the attached picture are picture are 35 profile photos of people who have given me permission to pass their names around to other PSCers. There are other members of this support group that have facebook accounts but use a different email account for that and so I haven't been able to search you out. If you wish to be able to associate a face with a post feel free to request friendship from any of the people on the list. Ian I've identified 94 members of this group that have Facebook profiles, 75 of which are within my "friendship list". In the attached picture are picture are about 30 profile photos of people who have given me permission to pass their names around to other PSCers. There are other members of this support group that have facebook accounts but use a different email account for that and so I haven't been able to search you out. If you wish to be able to associate a face with a post feel free to request friendship from any of the people on the list. Ian-- Ian Cribb P.Eng. (60... -- Ian Cribb P.Eng. (6... -- Ian Cribb P.Eng. -- Ian Cribb P.Eng.cell: Enefen - Reviewer/Designerwww.enefen.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 Hi, all! I just wanted to clear up some confusion that seems to have sprung up and that I'm getting quite a few questions on. What Ian is writing about and asking people to join is not an official PSC Facebook group. He's simply asking others to " friend " him and other PSCers who contribute on this board. It's a great idea and a fun way to get to know others, but it is not a group, per se. We do however have some official Facebook Groups. For any and all of you who are Post-Transplant, there is a Post-Transplant PSC Group. If you type in " PSC Liver Transplant Support Group " in the search box on Facebook, you'll be taken right to the post-transplant group and if you type in " PSC Partners Seeking a Cure, " it'll take you right to our 20s/30s (and around there!) Facebook Group. Does that make sense to everyone? So, while you're all logging on to " friend " Ian (and hopefully me, too!), make sure you check out what's going on in the world of PSC Support Groups on Facebook! Hope you all are having great days! Sandi in VA/Rochester > > > I've identified 94 members of this group that have > Facebook profiles, 75 of which are within my > " friendship list " . In the attached picture > are picture are about 30 profile photos of people who have > given me permission to pass their names around to other > PSCers. There are other members of this support group > that have facebook accounts but use a different email > account for that and so I haven't been able to search > you out. If you wish to be able to associate a face > with a post feel free to request friendship from any of the > people on the list. > > Ian > > > > -- > Ian Cribb P.Eng. > (60... > > > > -- > Ian Cribb P.Eng. > (6... > > > > -- > Ian Cribb P.Eng. > > > > -- > Ian Cribb P.Eng. > cell: > Enefen - Reviewer/Designer > www.enefen.com > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 Hi, all! I just wanted to clear up some confusion that seems to have sprung up and that I'm getting quite a few questions on. What Ian is writing about and asking people to join is not an official PSC Facebook group. He's simply asking others to " friend " him and other PSCers who contribute on this board. It's a great idea and a fun way to get to know others, but it is not a group, per se. We do however have some official Facebook Groups. For any and all of you who are Post-Transplant, there is a Post-Transplant PSC Group. If you type in " PSC Liver Transplant Support Group " in the search box on Facebook, you'll be taken right to the post-transplant group and if you type in " PSC Partners Seeking a Cure, " it'll take you right to our 20s/30s (and around there!) Facebook Group. Does that make sense to everyone? So, while you're all logging on to " friend " Ian (and hopefully me, too!), make sure you check out what's going on in the world of PSC Support Groups on Facebook! Hope you all are having great days! Sandi in VA/Rochester > > > I've identified 94 members of this group that have > Facebook profiles, 75 of which are within my > " friendship list " . In the attached picture > are picture are about 30 profile photos of people who have > given me permission to pass their names around to other > PSCers. There are other members of this support group > that have facebook accounts but use a different email > account for that and so I haven't been able to search > you out. If you wish to be able to associate a face > with a post feel free to request friendship from any of the > people on the list. > > Ian > > > > -- > Ian Cribb P.Eng. > (60... > > > > -- > Ian Cribb P.Eng. > (6... > > > > -- > Ian Cribb P.Eng. > > > > -- > Ian Cribb P.Eng. > cell: > Enefen - Reviewer/Designer > www.enefen.com > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 Hi, all! I just wanted to clear up some confusion that seems to have sprung up and that I'm getting quite a few questions on. What Ian is writing about and asking people to join is not an official PSC Facebook group. He's simply asking others to " friend " him and other PSCers who contribute on this board. It's a great idea and a fun way to get to know others, but it is not a group, per se. We do however have some official Facebook Groups. For any and all of you who are Post-Transplant, there is a Post-Transplant PSC Group. If you type in " PSC Liver Transplant Support Group " in the search box on Facebook, you'll be taken right to the post-transplant group and if you type in " PSC Partners Seeking a Cure, " it'll take you right to our 20s/30s (and around there!) Facebook Group. Does that make sense to everyone? So, while you're all logging on to " friend " Ian (and hopefully me, too!), make sure you check out what's going on in the world of PSC Support Groups on Facebook! Hope you all are having great days! Sandi in VA/Rochester > > > I've identified 94 members of this group that have > Facebook profiles, 75 of which are within my > " friendship list " . In the attached picture > are picture are about 30 profile photos of people who have > given me permission to pass their names around to other > PSCers. There are other members of this support group > that have facebook accounts but use a different email > account for that and so I haven't been able to search > you out. If you wish to be able to associate a face > with a post feel free to request friendship from any of the > people on the list. > > Ian > > > > -- > Ian Cribb P.Eng. > (60... > > > > -- > Ian Cribb P.Eng. > (6... > > > > -- > Ian Cribb P.Eng. > > > > -- > Ian Cribb P.Eng. > cell: > Enefen - Reviewer/Designer > www.enefen.com > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 On Facebook you can search my email address (icribb@gmail) the same email at is attached to all my posts to the support group. Sandi has used a different email address for facebook so try searching by her name (Sandi Pearlman). It gives two options, one only has three friends and no profile picture, the one with lots of friends (nearly 200) is her! Or if you are my friend you can find her in my friendship list (they are alphabitical by last name). or search (leigh@...) and you will find her. Ian Hi, all! :)I just wanted to clear up some confusion that seems to have sprung up and that I'm getting quite a few questions on. What Ian is writing about and asking people to join is not an official PSC Facebook group. He's simply asking others to " friend " him and other PSCers who contribute on this board. It's a great idea and a fun way to get to know others, but it is not a group, per se. We do however have some official Facebook Groups. For any and all of you who are Post-Transplant, there is a Post-Transplant PSC Group. If you type in " PSC Liver Transplant Support Group " in the search box on Facebook, you'll be taken right to the post-transplant group and if you type in " PSC Partners Seeking a Cure, " it'll take you right to our 20s/30s (and around there!) Facebook Group. Does that make sense to everyone?So, while you're all logging on to " friend " Ian (and hopefully me, too!), make sure you check out what's going on in the world of PSC Support Groups on Facebook! Hope you all are having great days!Sandi in VA/Rochester > > > I've identified 94 members of this group that have> Facebook profiles, 75 of which are within my> " friendship list " . In the attached picture> are picture are about 30 profile photos of people who have > given me permission to pass their names around to other> PSCers. There are other members of this support group> that have facebook accounts but use a different email> account for that and so I haven't been able to search > you out. If you wish to be able to associate a face> with a post feel free to request friendship from any of the> people on the list.> > Ian> > > > -- > Ian Cribb P.Eng. > (60... > > > > -- > Ian Cribb P.Eng.> (6... > > > > -- > Ian Cribb P.Eng.> (604) 862-7247 > > > -- > Ian Cribb P.Eng. > cell: (604) 862-7247 > Enefen - Reviewer/Designer> www.enefen.com> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > -- Ian Cribb P.Eng.cell: (6...Enefen - Reviewer/Designerwww.enefen.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 On Facebook you can search my email address (icribb@gmail) the same email at is attached to all my posts to the support group. Sandi has used a different email address for facebook so try searching by her name (Sandi Pearlman). It gives two options, one only has three friends and no profile picture, the one with lots of friends (nearly 200) is her! Or if you are my friend you can find her in my friendship list (they are alphabitical by last name). or search (leigh@...) and you will find her. Ian Hi, all! :)I just wanted to clear up some confusion that seems to have sprung up and that I'm getting quite a few questions on. What Ian is writing about and asking people to join is not an official PSC Facebook group. He's simply asking others to " friend " him and other PSCers who contribute on this board. It's a great idea and a fun way to get to know others, but it is not a group, per se. We do however have some official Facebook Groups. For any and all of you who are Post-Transplant, there is a Post-Transplant PSC Group. If you type in " PSC Liver Transplant Support Group " in the search box on Facebook, you'll be taken right to the post-transplant group and if you type in " PSC Partners Seeking a Cure, " it'll take you right to our 20s/30s (and around there!) Facebook Group. Does that make sense to everyone?So, while you're all logging on to " friend " Ian (and hopefully me, too!), make sure you check out what's going on in the world of PSC Support Groups on Facebook! Hope you all are having great days!Sandi in VA/Rochester > > > I've identified 94 members of this group that have> Facebook profiles, 75 of which are within my> " friendship list " . In the attached picture> are picture are about 30 profile photos of people who have > given me permission to pass their names around to other> PSCers. There are other members of this support group> that have facebook accounts but use a different email> account for that and so I haven't been able to search > you out. If you wish to be able to associate a face> with a post feel free to request friendship from any of the> people on the list.> > Ian> > > > -- > Ian Cribb P.Eng. > (60... > > > > -- > Ian Cribb P.Eng.> (6... > > > > -- > Ian Cribb P.Eng.> (604) 862-7247 > > > -- > Ian Cribb P.Eng. > cell: (604) 862-7247 > Enefen - Reviewer/Designer> www.enefen.com> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > -- Ian Cribb P.Eng.cell: (6...Enefen - Reviewer/Designerwww.enefen.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 He only adds ppl who ask to be added carolyn. Each person has given permission. :-)AmiSent from my BlackBerry Smartphone provided by AlltelFrom: "Carolyn B." Date: Mon, 23 Mar 2009 05:58:45 -0000To: < >Subject: Re: Facebook > > On Facebook you can search my email address *(*icribb@gmail) the same email > at is attached to all my posts to the support group. Sandi has used a > different email address for facebook so try searching by her name (Sandi > Pearlman). It gives two options, one only has three friends and no profile > picture, the one with lots of friends (nearly 200) is her! Or if you are my > friend you can find her in my friendship list (they are alphabitical by last > name). or search (leigh@...) and you will find her. ===================== Ian, You might keep in mind that not everyone wants all their info plastered about the internet!! I am on facebook (silly me! I didn't realize the PSC Group there was for the 20-30 group and here I am at 50) but under a different name. I like to know just exactly where my info is going and maintain at least a modicum of control over it. For example, I would definitely not join your friend list for the sole reason that you make it clear to the 1,000+ people who see THIS group, exactly how to access your friend list on Facebook. I'm not trying to hide anything, I'm just a bit leery of who sees what about me! Call it fuddy-dud caution, if you like! On Facebook I have put a few PSC folks on my friend list, but it's not my primary focus on that group and sometimes the medical issues are nice to ignore for awhile! I tend to use FaceBook for renewing contact with old friends whom I've not seen for 20 or 30 or even 40 years. Just my two cents. Regards, Carolyn B. in SC Quote Link to comment Share on other sites More sharing options...
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