Re: Vitamin D follow up question

[Guest guest]

Thanks, no I have not been tested. I was thinking about 's info

on Vitamin D and Urso, and was thinking more in terms of what dose

would be recommended for the benefit described in his info, rather

than making up for a deficiency. I will mention testing to my doc though.

ee

>

> What is your vitamin D level? If normal, 400 units is the current

" typical "

>

[Guest guest]

Hi ee;

It's recommended that patients with cholestatic liver diseases like primary biliary cirrhosis and primary sclerosing cholangitis do get checked for fat-soluble vitamin deficiencies such as vitamin D and A, and then take supplements to correct any deficiencies. But you have to be very careful not to over-dose. A good guide is this article:

http://www.healthsystem.virginia.edu/internet/digestive-health/nutritionarticles/april2006.pdf

Best regards,

Dave

(father of (23); PSC 07/03; UC 08/03)

> >> > What is your vitamin D level? If normal, 400 units is the current> "typical"> >>

[Guest guest]

The Vitamin discussion is interesting as my PSC was relatively stable

for almost 4 years but flared in conjunction with our 30th

anniversary to Maui. Sue and I when to a tanning place as well as

being out doors a lot and were as dark as I had been in college. We

kept the tan going through this past June. I am not saying there was

any correlation but it is interesting to me that my Liver Numbers

jumped and did not really come down and am now beginning evaluation

for a TX. What is the specific blood test for Vitamin D? My Health

Provider tends to do the absolute minimum Blood work – in fact, it

wasn't until I was in the hospital with a scary shade of Yellow that

they finally did Liver Tests after having UC for 7 years. At that

time my ALK was 760.

> >

> > >I remember that during the summer I did a good three hours of

outside

> > >activities being well tanned I was sure that I was getting

enough vit

> > d.

> >

>

>

>

>

> That sounds sort of similar to my experience. I'd been outside a

lot

> and had actually been taking about 2000 IU of vit D daily, but I

still

> tested very low. They put me on 50,000 IU once a week for a while,

and

> that got me back to normal. Now I take 3,000 to 4,000 IU a day,

and

> tested in the normal range with that dosage. Of course you should

get

> tested before taking that high of doses, but some people (like me)

do

> need them.

>

> athan

>