Lupus Seizures/Help?

[Guest guest]

I have Lupus seizures A LOT (about 3 times a week now)...they did get

down to 1 every few weeks. I have been tested for narcolepsy and

epilepsy and both were negative. I found out later that Lupus seizures

will not register on any known test so far. I don't know if anyone

else are having these...the last one was BAD...the EMT/Paramedics

couldn't find my heartbeat/pulse/blood pressure...I was pale white and

my lips were blue and I was unresponsive. The ER didn't know what to

do for me. EVERYTIME this happens they instantly think I overdosed on

my meds. I keep arguing (once I come out of the unresponsiveness) and

they don't really know what to do. Has anyone successfully been

treated for these " seizures? " I need help.

Blessings,

In California

> Thanks, Cheryl, for your input, and Becky too.

> I'm sorry you have seizures, Cheryl.

>

> Since I was diagnosed last year with fibromyalgia I validated a lot

with people with fibromyalgia. Like with lupus, people with

fibromyalgia can have it in a mild form or severe form.

> This applies also for the brain fog. Latest researches show there

might be a connection between fibromyalgia and the central nerve system.

> Whatever causes my brain fog, I have it badly. I keep a notebook and

write everything down. I have often forgotten I have made notes. At

least I don't forget all. I can't read books for this. At the end of

page one I have forgotten the first lines. The list of things that

happen are numerous. When people talk to fast, I have a hard time to

understand them.

> Anyway, it's annoying sometimes especially when it involves other

people. Yet I laugh about the most of my mistakes.

> I too have black-outs and they got more severe during my latest flare.

>

> micha.

>

>

>

> brain fog

>

>

> >>>>>>>>>>Micha said: Is there a difference for you between the

lupus fog and the fibro fog?

>

>

>

> Don't know but there surely degrees of the fog thing. I have heard

and seen lupus folks with total black outs. I had a few seizures

myself and some have them all the time. I haven't heard that fibro

caused the fog thing until I got a computer and started on line. I

was under the impression that fibro didn't mess with your head a lot.