Re: Flare??-

[Guest guest]

,

How do you know when you are in remission? Since we

are now thinking that I had a flare back in November

how would I knwo if I were in remission? Thinking

back to the last few months there have been days when

my hands hurt sometimes to the point I couldn't

function normally but it lasted 2-3 days and then

would pass. When it started it would start with one

finger and over the course of a day it would spread.

When it was gone it wasn't gradual like the onset it

was very quick. Often when I would wake up in the

morning I would realize the pain was gone. Sorry to

sound stupid but it's all so confusing!

Thanks!

Nikki

--- Marie s FiushaMirage0582@...>

wrote:

> Nikki,

>

> The length of the flare depends on how things are

> reacting in your body. The length can't be detected

> and varies. My first flare lasted 3 months. I had

> to be homeschooled for that length of time. I was

> in remission about 10 years and the flare that I'm

> in now has been going on for almost two years now.

>

> My rheumy isn't able to tell me when this will be

> over with. He just keeps hoping that it's soon. I

> get symptoms like weight lose and fevers. I get a

> migraine when my flares start. I also break out

> into a rash. I'll get the butterfly rash across the

> bridge of my nose. I break out into these VERY

> painful sores mostly on my arms and face.

> EXHAUSTION is the number one sign that I'm going

> into a flare. It doesn't sneak up on me anymore. I

> know exactly when it's coming.

>

> -.

> Re: Flare??-Sue

>

>

> Hi Nikki! Your Rheumy certainy should give

> you meds to help..especially when you are going

> through a flare! Usually when I have had a flare it

> has lasted about 4 days..with some its longer. I

> usually get a rash on my arm and legs and that

> horrible achy pain everywhere. I have to say that

> since I am on meds now for pain and inflammatiom I

> do feel better. But that can be tricky as when you

> feel better you do more and then you are feeling

> horrible for awhile. I haven't had this disease that

> long..many here are more experienced than me with

> symptoms and meds..I have Mixed Connective Tissue

> Disease which is a relative (the repulsive one )

> of lupus....let me know if you ever need to talk! I

> am here! email address for anyone who needs me

> is--->sisterst57@...

>

>

>

>

__________________________________________________

[Guest guest]

Nikki,

Usually you can tell when you're in remission when you're not experiencing

any symptoms. The fever is gone ... appetite comes back. Even though I was

in remission for nearly ten years ... there would be times when I would

break out in these rashes but they wouldn't be as bad as when I'm flaring.

The arthritis stays unfortunately with me.

It's just not as bad as it is when I'm flaring. I also don't wake up

exhaustified. Not exhausted, but exhaustified! Taking fatigue to a new

level. So I guess I can't really say that it's when you have NO symptoms

.... I imagine that this varies from person to person also. I'm actually

surprised that you're asking MOI a question, because I'm known as the Doofus

around here but ask away. Ha.

-.

Re: Flare??-

> ,

>

> How do you know when you are in remission? Since we

> are now thinking that I had a flare back in November

> how would I knwo if I were in remission? Thinking

> back to the last few months there have been days when

> my hands hurt sometimes to the point I couldn't

> function normally but it lasted 2-3 days and then

> would pass. When it started it would start with one

> finger and over the course of a day it would spread.

> When it was gone it wasn't gradual like the onset it

> was very quick. Often when I would wake up in the

> morning I would realize the pain was gone. Sorry to

> sound stupid but it's all so confusing!

>

> Thanks!

> Nikki