Update on me

[Guest guest]

athon,

Good news is always welcome! That is great news that the EB virus is undetectable and you are doing well. It is certainly interesting how these viruses can cause so many problems long term. CMV had that affect on me and ultimately caused my rejection episode. That's my assumption, not the doctors.

Keep on....

Blessings,

Barby - KS

UC - 1965, ileostomy - 1972, BCIR (continent pouch) 1994, PSC - 1995, arthritis 2007, tx 11.29.07married 29 years , 5 sons, 2 daughters in law, 1 granddaughter, 1 grandson , granddaughter due 3/09 and 1 golden retriever

[Guest guest]

Hi all!

Just thought I'd give an update on what's going on with me, since I just

got back from a major Dr. visit complete with CT scan yesterday.

I saw Dr Raiford, (transplant Dr.) Dr Reddy (hematologist/oncologist)

and Dr. Dummer (Infectious Disease), so I got a thorough looking at.

The CT scan I had showed not much change (they were looking at the lymph

nodes to see if the enlarged ones had grown or shrunk). Most of the

lymph nodes were about the same but some had grown just slightly.

That's not really good news but not as bad as it could be. Dr. Reddy

wants me to have a few more rounds of Rituximab to see if that will

help. I also got tested for a fungal lung infection (I've got a cough

and fevers, and had an exposure to bird droppings a few weeks ago) but

results aren't back on that yet.

The CT scan also showed an enlarged thyroid, so they want to do an

ultrasound of that, and Dr. Dummer heard a heart murmur which he's

looking into to see if it's new or not.

I guess at least I'm interesting to my doctors!

athan